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Mine and my daughter's bx were done at CCF.

william hawthorne wrote:

>Hello,

> It appears that might need to have a fresh muscle biopsy done.

>Where were yours done? How many did you have to have done? She had

>one in 1992 which was negative. She does have a clinical diagnosis of

>mito from Dr. Kelley. Dr. Shoffner does not agree with the diagnosis.

> has multiple symptoms like mito.

> Thanks for your help. Shelby

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

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Shelby

I had 4 frozen biopsies that were not tested for mito. I had my diagnostic

fresh biopsy by Shoffner and then had another at CCF, looking for an

additional problem that might exist.

laurie

>

> Reply-To:

> Date: Mon, 9 Aug 2004 20:25:26 -0400

> To:

> Subject: Muscle biopsy

>

> Hello,

> It appears that might need to have a fresh muscle biopsy done.

> Where were yours done? How many did you have to have done? She had

> one in 1992 which was negative. She does have a clinical diagnosis of

> mito from Dr. Kelley. Dr. Shoffner does not agree with the diagnosis.

> has multiple symptoms like mito.

> Thanks for your help. Shelby

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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  • 3 weeks later...

Thanks everyone for your kind words and encouragement, I didn't hear

from the neuro yet, I am calling again tomorrow. I am going to see

what I can do. I am sure they didn't do all the testing. And there

has got to be a reason for my problems. There is medical evidence so

they can't dismiss it.

Thanks Again

I am going to make sure they do the dna testing on it and fight to

get answers

brenda c

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  • 3 weeks later...

Hey Everyone,

I made it through my muscle biopsy at OSU yesterday. They took the sample from

my bi-cep muscle. I also found out that it is a fresh biopsy sample and not a

frozen sample so I feel more confident about the test.

I should get results back in about two weeks they said.

Talk to ya'all later.

McCombs

1 Cor 2:3-4

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---

I am glad to hear that you ahd a fresh biopsy done! Where is OSU?

Did they do a skin biopsy too?

Thanks for the bible verse. I like that one. I am going to use in

the cards that I send out to those ill from my church.

God Bless,

Dawn Anich

In , McCombs

wrote:

> Hey Everyone,

>

> I made it through my muscle biopsy at OSU yesterday. They took

the sample from my bi-cep muscle. I also found out that it is a

fresh biopsy sample and not a frozen sample so I feel more confident

about the test.

>

> I should get results back in about two weeks they said.

>

> Talk to ya'all later.

>

> McCombs

> 1 Cor 2:3-4

>

>

>

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Dawn,

First Answer, OSU is Ohio State University Hospital in Columbus, Ohio. I have a

pretty good Doctor there and a pretty good team of Neuromuscular Doctors. A few

of them treated my Aunt who died from ALS in May of 2003, and also my cousin's

son who has MITO.

The Bible verse was shown to me by my Assistant Pastor at the Church I am a

missionary through in Xenia.

McCombs

2 Cor 2:3-4

dawnanich manich@...> wrote:

---

I am glad to hear that you ahd a fresh biopsy done! Where is OSU?

Did they do a skin biopsy too?

Thanks for the bible verse. I like that one. I am going to use in

the cards that I send out to those ill from my church.

God Bless,

Dawn Anich

In , McCombs

wrote:

> Hey Everyone,

>

> I made it through my muscle biopsy at OSU yesterday. They took

the sample from my bi-cep muscle. I also found out that it is a

fresh biopsy sample and not a frozen sample so I feel more confident

about the test.

>

> I should get results back in about two weeks they said.

>

> Talk to ya'all later.

>

> McCombs

> 1 Cor 2:3-4

>

>

>

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