Re: More questions - Becky

[Guest guest]

Thank you . That is very nice of you.

Becky

> >

> > I have already learned so much from this board! I've been

browsing

> > around in the Files section ... it's great!

> >

> > We are seeing Dr. at Children's in Boston next week.

> I'm

> > certain he's going to recommend a helmet. We said no to the

helmet

> > when Cam was 6 months but now that he's 8 months and his plagio

> seems

> > to have progressed to brachy, I guess we're giving up on

> > repositioning having any effect (he wriggles onto his back and

> tucks

> > his head into his shoulder no matter what we do).

> >

> > I've heard people sometimes bypass Children's and go to CT for

> > treatment ... ? Anything I should watch out for?

> >

> > Is Dr. (or NOPCO, the brace place at Children's) going to

> > recommend a particular helmet? I'm trying to grasp the

differences

> > between the various kinds before I go in, so I know what to

> advocate

> > for (if I get a choice). I know there's a Hanger place closer to

us

> > which would be a lot more convenient for fittings.

> >

> > We have United HealthCare (they've been AWFUL -- we're counting

the

> > months until we can change plans at the end of the year). I saw

> lots

> > of info in the files section about trying to get coverage, and at

> > least one successful UHC appeal ... but realistically, if Cam's

> > brachy is moderate and totally cosmetic ... is it even worth

trying?

> >

> > A helmet question ... I keep hearing that the helmet has to stay

on

> > 23 hours a day. How big of a deal is it if you take it off here

and

> > there? Like, we're going to the beach and it's going to be really

> > hot -- could it stay off for a couple of hours, or are you not

> > supposed to do that?

> >

> > Thanks!!

> >

> > Laurie

> >

>

>

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