Fern/ weird symptoms

[Guest guest]

Amazing, Fern.

I still think that an extended survey should have been taken before the

symposium was conducted. I bet we all forget things that happened that only

by hearing others mention it brings it back. I'm betting there are zillions

of little things that we have all experienced. Not that they would mean PLS

but then again there might be something that stands out that would start

that mystery thread....

I also had a very itchy tongue for about a year. Had a period of twitchy

eyelids, too.

Ronnie

Re: weird symptoms

>

> I just read Ronnie's posting and almost dropped out of my chair..

> The summer before I was diagnosed, I also had a numbness on one side of my

> mouth which went away in about 20 minutes, but it was about a month later

that

> my speech started to slur. And I also constantly felt my nose and cheeks

for a

> hair or a fly that I was sure was there, and never was. There was also, at

> times, almost a tingling in my nose, which went away, and a constant

twitching in

> my eyelids which would make me nuts! I also felt a sensation on top of

my

> head which almost felt like a chill, or even sometimes a feeling like mini

> electric shocks going through my head. I was taking a painting class that

summer,

> and one time I jumped and dropped the paintbrush on the floor, which

alarmed

> everyone. When I told them what I felt, one of my fellow students

suggested

> tiny mini-seizures. This scared the hell out of me -- little did I know

what I

> would hear just 6 months later!! Thank you for sharing this Ronnie. My

first

> doctor told me I had had a " Bells Palsy " and it would go away in a few

months.

> Needless to say, it didn't.

> Fern in NY

> dx 1/04

> motorized scooter, unintelligible speech, soft diet

>

>

>

> Read about my " journey " with ALS - Lou Gehrig's Disease and sign my

guestbook

> http://www3.caringbridge.org/ny/auntfern/

>

>

>