Re: Stressed out and confused about the whole process

April 23, 2007

I LOVE it That is what I will call my ped. We had the same experience.!!!!

Marissa

From: timkris724 [mailto: timkris724@...]

Plagiocephaly

Date: Mon, 23 Apr 2007 23:46:35 -0000

Subject: Re: Stressed out and confused about the whole process

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Lara, What state and county are you in? You have to look up the

Early

Intervention Office for your area. It is a free program to all

children under 3 across the country who have any sort of delay. Kids

that have Tort usually are assessed to have a gross motor delay that

qualifies them for free Physical Therapy. A gross motor delay just

means that their muscles are weak in the neck area and they have a

little more trouble holding themselves up or turning fully and

reaching. I had no idea that my daughters Tort was as bad as it was

until after EI assessed her.

Oh and by the way we call our pediatrician the impede-iatrician

because he caused us to waste so much time as well!!!

> > >

> > > My son is seven months this week. I've posted several times and

I

> > > just wanted to post again. It's a vent I guess. My son's doctor

> > > had known since maybe 2 months that something was off with my

> > son's

> > > head. He noticed the tilt more than anything and mentioned it

to

> > > me. But he didn't do anything other than give me the

instructions

> > > to put his toys to the left and everything to the left, do this

> > > muscle movement with his neck, and do tummy time. He continued

to

> > > say these things and said he would look for improvement at

every

> > > appointment. At every appointment he continued to see

> > improvement.

> > > Not that I didn't see a little improvement.

> > >

> > > By the time I got my son an appointment I was starting to feel

> > that

> > > he had improved. The doctor told me that once he sat up and

> > rolled

> > > over we would see improvement and we seemed to see a little.

But

> > he

> > > never measured my son or checked his ears to see if they were

> off.

> > >

> > > I made an appointment on my day off to see someone at Cranial

> > > Technologies. I was told that my son did need a DOC band and

that

> > > his measurements were a 14 and they should be a 2 if normal.

I'm

> > > not sure of all the details exactly. They showed me visually

that

> > > his ears are off.

> > >

> > > It's absolutely heartbreaking to me. I thought I was going to

go

> > in

> > > there and be told I was nuts for being there. That's the

> > impression

> > > my doctor was giving me. He said it was a southern thing and as

> > > long as I gave him tummy time he would outgrow the problem.

> > >

> > > Now I'm struggling so hard to get his treatment started. We are

> > > working with Cranial Technologies to do this. They said that my

> > > son's insurance is out of network but will pay 70% after

> > > deductible. If I went to Hanger it would be covered 90% after

> > > deductible.

> > >

> > > I scheduled to see someone at Hanger but after reading on the

> > files

> > > here I feel confused. I am now hoping that I'm doing the right

> > > thing. I've cancelled with Hanger because I don't have all the

> > time

> > > in the world to be taking off to go to an appointment if I'm

> going

> > > to go with someone else. Hopefully I'm right in the idea that

> > > Cranial should have more experience since they deal with this

> > > problem and these problems only. But I can only stop and think

> > that

> > > I could be making a mistake.

> > >

> > > And then my doctor has written a prescription but not a letter

of

> > > medical necessity which MedCost requires. I've called and they

> > > refaxed over a letter which wasn't detailed enough. So Cranial

is

> > > trying again. But he will be seven months this week. That means

> > it

> > > will take a week to two to get approval and then casting, then

> two

> > > weeks to get the darn helmet. It's so frustrating. I could go

> > > ahead and do the process without insurance approval. I'm so

> > > conflicted.

> > >

> > > And I'm scared that he will end up messed up because I missed

> > > something or didn't go fast enough. Did everyone feel this way

in

> > > the beginning? Does this feelling get better?

> > >

> > > I don't know if Cranial does physical therapy and if he needs

it.

> > I

> > > don't know much since Cranial is leading me here and his doctor

> > > could care less. How could a doctor be so careless and

> > > thoughtless. I guess he really doesn't understand. It makes me

> > so

> > > upset, angry, and hurt.

> > >

> > > I mean what will happen if the ears don't become aligned. Will

he

> > > suffer? Will it ruin his chances at being a normal kid? You

> > can't

> > > tell it from looking but it could hurt him if he needs glasses

or

> > it

> > > could hurt his teeth.

> > >

> > > Anyway, thanks for being there and just letting me get this

out.

> > > I'm so stressed and I just don't know what to do.

> > >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car " smell?

> > Check outnew cars at Autos.

> >

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

>

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