Re: First post here,for Alice

[Guest guest]

Thanks Alice...we are members of Climb who run the National

Information and Advice centre for Metabolic Diseases and know about

Mito. and deal with adults as well as teenagers and children..they

have been tremendous.http://www.niacmd.net/ The neuro sent us to

them.

I went to our leading neuromuscular centre and had the biopsy from

there I was reffered to Metabolic Medicine as over here it appears

mito is being classified as metabolic.logical really as our cells

dont metabolise/utilise substances correctly.this we have found to

be tremendous and the day I was discharged from neuro.care I felt as

if a load had been lifted from me !!!

Metabolic medicine looks at mito from a different angle.....

chuckle....one that we feel very comfortable with and makes us much

more positive...the doc only uses other top medics that know about

mito. but also know the interactions of organs/hormones within the

body and cellular energy deficits....and the effects if you

have a deficit/excess..mito is not being classed as neuromuscular

here...Europe seems to also be leaning the same way.

I think that with so many disease coming under the heading of

neuromuscular this division for storage/metabolic etc disorders

works well for me and leaves the neuros free for other disorders

Could be interesting to see what they find working on this different

angle

Gillian

> > Gillian

> >

> > I believe you have Muscular Dystrophy Clinics over there. I also

> think they

> > help some with wheelchairs or scooters.

[Guest guest]

oops typo. http://www.niacmd.net/

> > > Gillian

> > >

> > > I believe you have Muscular Dystrophy Clinics over there. I

also

> > think they

> > > help some with wheelchairs or scooters.