Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 In RSD-CRPSofAmerica , "Cliff Huber" <drummerbassist@c...> wrote:> I don't > know anyone personally in my area with RSD, although my pain doc has > a thriving practice so unless he's spending most of his time cooling > off sunburns I suspect he's treating others with RSD. I really > would like to meet some RSD folks around here though...so come out > of hiding!!!> Cliff, I wouldn't get your hopes up. I am my doctors only RSD patient at this time and he is extremely busy. His patients are made up of Rhuemtoid arthritis, Fibromyalgia etc etc. But I am keeping my fingers crossed, I am sure there has to be other people around that area, have you tried doing a search for support groups around your area. I hope you find someone close to you. We are going to be in Atwater for Thanksgiving but you are a lot further south than that aren't you. take care, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 In RSD-CRPSofAmerica , "Cliff Huber" <drummerbassist@c...> wrote:> I don't > know anyone personally in my area with RSD, although my pain doc has > a thriving practice so unless he's spending most of his time cooling > off sunburns I suspect he's treating others with RSD. I really > would like to meet some RSD folks around here though...so come out > of hiding!!!> Cliff, I wouldn't get your hopes up. I am my doctors only RSD patient at this time and he is extremely busy. His patients are made up of Rhuemtoid arthritis, Fibromyalgia etc etc. But I am keeping my fingers crossed, I am sure there has to be other people around that area, have you tried doing a search for support groups around your area. I hope you find someone close to you. We are going to be in Atwater for Thanksgiving but you are a lot further south than that aren't you. take care, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 In RSD-CRPSofAmerica , "Cliff Huber" <drummerbassist@c...> wrote:> I don't > know anyone personally in my area with RSD, although my pain doc has > a thriving practice so unless he's spending most of his time cooling > off sunburns I suspect he's treating others with RSD. I really > would like to meet some RSD folks around here though...so come out > of hiding!!!> Cliff, I wouldn't get your hopes up. I am my doctors only RSD patient at this time and he is extremely busy. His patients are made up of Rhuemtoid arthritis, Fibromyalgia etc etc. But I am keeping my fingers crossed, I am sure there has to be other people around that area, have you tried doing a search for support groups around your area. I hope you find someone close to you. We are going to be in Atwater for Thanksgiving but you are a lot further south than that aren't you. take care, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi! Lin, So far I have 4 in MA, 3 in NY, and 2 or less in other states. 27 total so far. I need more!!!! Let me hear from you all out there. Do you think the awareness factor is the reason for the west to be so shy of members here? or do you think the incidence of RSD is less? I know that you have been in high pain levels and I hope you can get them under some control, the sooner the better. Who is this Dr. O? What is his specialty? Quackery? Is he local? Why does he think he is the expert and on what does he base his cock-eyed postion that there is " no such thing " as RSD? I'm thinking of getting a dart board for the really bad ones. What do you think? love to you my NW buddy, Lyn Lin wrote: > Lyn, > It sounds like fun, I can't wait to see it. So which state has the largest amount of pins in it. > Lin > Original message, Lyn wrote: I am having the most fun finding your hometowns and > pinning your names to my wall map. Quote Link to comment Share on other sites More sharing options...
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