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Re: Alice..MCT oil

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Hi Laurie,

Hmmm...I have heard of the MCT oil. Medium chain tryglycerides I

think, right? I will have to add that question to my list to take to

Dr Korson in a few weeks. He already mentioned he wanted to test my

essential fatty acids next time.

Do you use it? Have people seen much difference using it?

Thanks Laurie,

Adam

:-)

> Adam

>

> You might want to ask your doctor about trying MCT oil. It is a

medium chain

> oil which is easier to digest by many. It is expensive, but it

seems to be

> what controls and helps our lives.

>

> laurie

>

>

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Hi Laurie,

Hmmm...I have heard of the MCT oil. Medium chain tryglycerides I

think, right? I will have to add that question to my list to take to

Dr Korson in a few weeks. He already mentioned he wanted to test my

essential fatty acids next time.

Do you use it? Have people seen much difference using it?

Thanks Laurie,

Adam

:-)

> Adam

>

> You might want to ask your doctor about trying MCT oil. It is a

medium chain

> oil which is easier to digest by many. It is expensive, but it

seems to be

> what controls and helps our lives.

>

> laurie

>

>

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Share on other sites

Adam

I use to use it, along with my son, when we had a different diagnosis - long

story. Since the diagnosis was wrong, it didn't do any good. I do know those

who find it an essential part of their diet.

laurie

>

> Reply-To:

> Date: Mon, 20 Sep 2004 11:26:26 -0000

> To:

> Subject: Re: Alice..MCT oil

>

> Hi Laurie,

>

> Hmmm...I have heard of the MCT oil. Medium chain tryglycerides I

> think, right? I will have to add that question to my list to take to

> Dr Korson in a few weeks. He already mentioned he wanted to test my

> essential fatty acids next time.

>

> Do you use it? Have people seen much difference using it?

>

> Thanks Laurie,

> Adam

> :-)

>

>

>

>

>> Adam

>>

>> You might want to ask your doctor about trying MCT oil. It is a

> medium chain

>> oil which is easier to digest by many. It is expensive, but it

> seems to be

>> what controls and helps our lives.

>>

>> laurie

>>

>>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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Adam

I use to use it, along with my son, when we had a different diagnosis - long

story. Since the diagnosis was wrong, it didn't do any good. I do know those

who find it an essential part of their diet.

laurie

>

> Reply-To:

> Date: Mon, 20 Sep 2004 11:26:26 -0000

> To:

> Subject: Re: Alice..MCT oil

>

> Hi Laurie,

>

> Hmmm...I have heard of the MCT oil. Medium chain tryglycerides I

> think, right? I will have to add that question to my list to take to

> Dr Korson in a few weeks. He already mentioned he wanted to test my

> essential fatty acids next time.

>

> Do you use it? Have people seen much difference using it?

>

> Thanks Laurie,

> Adam

> :-)

>

>

>

>

>> Adam

>>

>> You might want to ask your doctor about trying MCT oil. It is a

> medium chain

>> oil which is easier to digest by many. It is expensive, but it

> seems to be

>> what controls and helps our lives.

>>

>> laurie

>>

>>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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Hi Adam, I've had MCT oil and know quite a few other patients who

have also tried it. They were all patients with defects in long-

chain fatty acids and did not get any benefit from it. There is

another oil that is now in trial for various fatty acid oxidation

defects. It is called triheptanion and was developed by Dr.

Roe, an expert in FODs. The FOD site seems to be down at the moment

or I would send you a link to a full-length article on triheptanion.

When I had MCT oil, the assumption was that my defect was confined

to long-chains, which, as it turns out, it wasn't, and MCT oil made

my symptoms much worse.

Barbara

> >> Adam

> >>

> >> You might want to ask your doctor about trying MCT oil. It is a

> > medium chain

> >> oil which is easier to digest by many. It is expensive, but it

> > seems to be

> >> what controls and helps our lives.

> >>

> >> laurie

> >>

> >>

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail is

> > entirely responsible for its content. List members are reminded

of their

> > responsibility to evaluate the content of the postings and

consult with their

> > physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

> >

> >

> >

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