Needed prayers for our Kira-thanks all

[Guest guest]

In a message dated 9/19/04 4:41:48 PM Pacific Daylight Time, mitooggo@...

writes:

> Hi guys!

>

> You guys are all so wonderful what can I say? Thanks for all the

> encouragement. I didn't even think to call MDA and talk to them about maybe

someone

> sending her a get well card or Dream Street for that matter. Thanks for the

> great Idea. It might just help her. I did just send Dr. Boles a call for

> nursing help! I hope he hears my desperation. I truly am exhausted and need

to

> know that she is OK while I am at work. My friends are all too freaked out

> to deal with her when she is like this, and rightly so if I am not in the

> house. I am not sure if the tables were turned I would be too comfortable with

> doing it either. I have to work to carry their insurance. Being a teacher

> does not lend well to deal with 36 kids when I am so tired either! I am just

at

> my wits end, and way tired, and worried sick about her as well. My own

> health cannot take too much more either. Thanks again you guys and keep

sending

> prayers and good wishes her way! She is an angel girl for having survived

> what she has so far. We just have to get through this thing too! And Yes,

Dr.

> Boles feels they picked something up from the telethon, so many people there

> with Lord knows what! He still tells me it was a good decision though to

> let them participate in it. I know this in my heart, but about now I am

> thinking I don't want to do that again! DR Boles is all for them " living "

life to

> their fullest! I am too but when this happens it is so hard!!!!

>

>

>

> HUGS!

> O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

> Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

> Enrique

> Visit our web page: WWW. caringbridge.org/ca/mitooggo

>

> Help support my sister in her new business at : Come and see what's NEW!

> http://www.youravon.com/elleenmiller Your AVON representative (Sign in

> passcode: ElleensAVON if you are signing in for the first time :-)

>

>

[Guest guest]

aren,

My thoughts and prayers are with you and your family. It can be so

exhausting delaing with all the kids issues and keeping up with your demands.

I hope

you get the nursing you requested. What about IHSS? Cant you get some

support there or has that all been cut?

Please try to keep your chin up she will respond to your moods also..

I wish I was there to help you...

hugs

[Guest guest]

---I am another one praying for Kira, you and your family.Bless your

heart. It has to be so difficult to be working full time esp with 36

kids. You have got a lot of drive!!! I have tears in my eyes for

Kira, it is so hard to be that age and be ill on top of it. Praying

for sunnier days.

hugs,

Dawn a

In , mitooggo@a... wrote:

> In a message dated 9/19/04 4:41:48 PM Pacific Daylight Time,

mitooggo@a...

> writes:

>

>

> > Hi guys!

> >

> > You guys are all so wonderful what can I say? Thanks for all

the

> > encouragement. I didn't even think to call MDA and talk to them

about maybe someone

> > sending her a get well card or Dream Street for that matter.

Thanks for the

> > great Idea. It might just help her. I did just send Dr. Boles

a call for

> > nursing help! I hope he hears my desperation. I truly am

exhausted and need to

> > know that she is OK while I am at work. My friends are all too

freaked out

> > to deal with her when she is like this, and rightly so if I am

not in the

> > house. I am not sure if the tables were turned I would be too

comfortable with

> > doing it either. I have to work to carry their insurance. Being

a teacher

> > does not lend well to deal with 36 kids when I am so tired

either! I am just at

> > my wits end, and way tired, and worried sick about her as well.

My own

> > health cannot take too much more either. Thanks again you guys

and keep sending

> > prayers and good wishes her way! She is an angel girl for

having survived

> > what she has so far. We just have to get through this thing

too! And Yes, Dr.

> > Boles feels they picked something up from the telethon, so many

people there

> > with Lord knows what! He still tells me it was a good decision

though to

> > let them participate in it. I know this in my heart, but about

now I am

> > thinking I don't want to do that again! DR Boles is all for

them " living " life to

> > their fullest! I am too but when this happens it is so hard!!!!

> >

> >

> >

> > HUGS!

> > O and crew - Kira,, and Krisalynn Mitochondrial

Myopathy-MIDS

> > Maternally Inherited Dysautonomia- NVD ( Nuro Vascular

Dystrophy) and dad

> > Enrique

> > Visit our web page: WWW. caringbridge.org/ca/mitooggo

> >

> > Help support my sister in her new business at : Come and see

what's NEW!

> > http://www.youravon.com/elleenmiller Your AVON representative

(Sign in

> > passcode: ElleensAVON if you are signing in for the first time :-

)

> >

> >

>

>

>

>