Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I think you need to balance out the other side of the argument, so you don't worry yourself sick. This reply isn't to disagree but to help reassure. It's true that there should be more information, support and representation for patients. As we're preparing for and going through our operations as individuals, we have to make the best of the system as it is now. Research is good, but there has to be a point when we stop, trust snd let the experts get on with their jobs whilst still asking questions to put our fears at rest. I understand your feelings at having precious little information from the medical profession. You're not going to change the system now overnight, so you can see that your needs are met now for your hospital stay, as far as the system allows. Then once you are fully recovered you'll be in a fit state to do anything you want to do to help improve their services and patient advocacy. I don't think a hospital or company would let a bad anaestheologist lose on patients. Something like that would be very damaging all round. They will be trained and experienced and be vetted. Hospitals are so busy that they have to make some decisions at short notice about operation order and bed availability. I know it's particularly bad here in Britain but I'll bet that's the case in most places. I suggest you have another chat with your gynaecologist or doctor or somebody about your concerns being left alone. Assume you will be in a room with other people and then if you have a room to yourself, that'll be a plus. The down side of sharing is the very ill old person in the next bed. Take ear plugs and a walkman in case you're sharing. There can be advantages to sharing a room, such as a good conversation, having a soon-to-leave patient help drawing the curtains or passing you something, and more nurses passing by to call over if you need to. If it turns out you will definitely be alone in recovery don't forget nurses will be monitoring your recovery immediately after surgery and you may want to dose off to sleep for that time anyway. I felt I was cat-napping, but I must have been asleep. I felt tired rather than drugged, as if from the early morning start. My boyfriend didn't know when he'd be allowed to see me or how long it would take. He was pleasantly surprised at how normal I seemed. Some women get nausea after the operation and I'd get advice about avoiding and minimising that. Don't eat and drink until the doctor says you can except for water. Be prepared for a catheter which you won't feel at all in any sense (mine was put in when I was unconscious in surgery)and numbness in the belly. Avoid using your 'stomach' muscles and wriggle ankles and toes to get the circulation moving. I reccommend a diplomatic friendly approach rather than a confrontational one. The staff want things to go well for everyone and they're only human, trying to do the best with the system as it stands, according to the usual procedures they're used to. <I'm not disappointed in my surgeon but am in the whole hospital experience so far..> <... No one was very understanding and I was close to tears a few times.> Yes, I'd have another chat with someone else about what you'd like to happen and what worries you. <I can only have someone spend the night with me if I have a private room and that does not seem likely. Then visiting hours aren't until 1pm the next day!> I was told by NHS UK pre-op that I could have one special visitor who could be with me outside normal visiting hours. Another roommate may be handy to call a nurse if you feel sick You could always write on the permission form some word or sentence of your own that covers you legally in polite business-like cover-all terms?? I don't know how that works or how it would go down. <They told me about pain meds but seem to be pretty cavaleir about If Its not working you can call us.> Pain meds are very strong unless you've built up a tolerance to them from some other health problem. I had a morphine self administering thing where you can press a button attatched to your own arm if you want more. I wouldn't go crazy with it though for more than you need. I think it's a better idea to lie still and quiet, so your 'stomach area' isn't over-exerted. They can offer different options in my experience they certainly weren't slow to offer pain killers which they had on a trolley, like the tea lady doing the rounds! <I'm just close to tears and wondering if I should just call it off but arent all hospitals the same?> Some times of day may be more hectic than other times. You may find some nurses particularly helpful and see various ones each day. <I need help learning how to do Out of Body experience so I can just stand back and let it happen without caring.> You'll sleep through the worst of it and then be so releived it's all over, finding and knowing every day you'll feel better than the previous day. I hope that helps Maureen Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Maureen, I don't know if you are religious or not but this prayer has come to mind many times over the past year, maybe it will help comfort you as well. God, grant me the serenity to accept the things I cannot change; Courage to change the things I can; And wisdom to know the difference. You also might try saying a rosary or something similar might be done with just a string of beads, you could just assign some affirmative phrase to each bead. It is a very soothing practice when you are feeling like life is out of control -- I'm not a regular user of rosary beads but there have been a few times like when the Gulf War started where it was the only thing that would ease my mind. Maybe listmembers could help come up with some good phrases for a non- denominational prayer bead ritual. Peace, Ann > I need help learning how to do Out of Body experience so I can just stand > back and let it happen without caring. Quote Link to comment Share on other sites More sharing options...
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