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Re: RE: Ginny

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Lyn, Ginny,

Count me in. with the questions. I wish there was a study out there we could all be in. Seems like we all have alot of symptoms that are the same. But I think it ccomes down to money and popularity of disease. Don't know any famous people that have it. Wouldn't wish this on to anybody but someone with money wouldn't hurt. Shame on me.

Laurie

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Lyn, Ginny,

Count me in. with the questions. I wish there was a study out there we could all be in. Seems like we all have alot of symptoms that are the same. But I think it ccomes down to money and popularity of disease. Don't know any famous people that have it. Wouldn't wish this on to anybody but someone with money wouldn't hurt. Shame on me.

Laurie

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Lyn,

At that time, I was still trying to find out if I actually had RSD or not....so that was what I was asking him......and I gave him all of my symptoms. So, yes, he did help me, because he said that yes, it did sound like I had RSD, just not the "classic" symptoms totally, I had a few "odd ball" symptoms along with the others.

The Doctor I have now actually goes out 3 times a year and see's Dr. Schwartzmann.....they know each other very well. So, because of that, I know that I'm in very good hands (even if it IS hard to understand half of what my doctor says!)

Tonia

-------Original Message-------

Thank you Tonia, I think JO is going to give me the info for the Dr with thumb. Did Schwartzmann help you?Lyn

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`....WHAT MAKES IT KICK BACK IN WITH SUCH FORCE?? WHY DOES IT SPREAD ON SOME PEOPLE AND NOT WITH OTHERS??? THAT IS JUST SOME OF MY QUESTIONS AND LET ME KNOW WHAT YOU THINK I SEND YOU SOFT HUGS WITH LOVE PAM

Pam,

I don't know why RSD does what it does but it sure gets frustrating for all of us. Heck some of us have all the symptoms others don't. there are a million questions that the doctors don't even have the answers for.

Lyn,

I have cold hands and feet. But I am not sure if this has anything to do with it because my RSD started in my left knee.

I think that they are looking for what triggers this disease at the research place in Bethseda.

but I could be wrong.

Lin

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`....WHAT MAKES IT KICK BACK IN WITH SUCH FORCE?? WHY DOES IT SPREAD ON SOME PEOPLE AND NOT WITH OTHERS??? THAT IS JUST SOME OF MY QUESTIONS AND LET ME KNOW WHAT YOU THINK I SEND YOU SOFT HUGS WITH LOVE PAM

Pam,

I don't know why RSD does what it does but it sure gets frustrating for all of us. Heck some of us have all the symptoms others don't. there are a million questions that the doctors don't even have the answers for.

Lyn,

I have cold hands and feet. But I am not sure if this has anything to do with it because my RSD started in my left knee.

I think that they are looking for what triggers this disease at the research place in Bethseda.

but I could be wrong.

Lin

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  • 4 weeks later...

Lin...don't worry about it..I misread things all the time..especially when my pain level is higher...it's hard to concentrate sometimes. I am glad you caught their mistake...if you didn't you would be in trouble when you ran out of meds...hope you have a great day...Hugs..Ginny

Ginny,

That is so true about misreading things when pain level is high. I am glad I caught it too, luckily I was filling my pill minder box, that was when it clicked in. That would have been a total bummer.

Have a good evening.

Lin

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