Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn, Brayden was only a few months old when he had his CT Scan. It did go very smoothly. With the new ones they have it literally takes a few minutes for the actual scan. They did let me be with him the entire time. We could see him the whole time during the scan. It is very scary having your baby go through anything. All I can say is he did fine and other than sleeping a lot that day (which wasn't so terrible he did great. Don't know if I was much help. I hope all goes well for you. Take Care Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn, Brayden was only a few months old when he had his CT Scan. It did go very smoothly. With the new ones they have it literally takes a few minutes for the actual scan. They did let me be with him the entire time. We could see him the whole time during the scan. It is very scary having your baby go through anything. All I can say is he did fine and other than sleeping a lot that day (which wasn't so terrible he did great. Don't know if I was much help. I hope all goes well for you. Take Care Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 My daughter is supposed to go in next week (Jan 16) for a CT scan. I am so worried about it, they have to put her under anaesthetic since she is only 14 months old, and I guess that is the part that I am most worried about. I know many of you have been through this too, does it go as smoothly as what I'm being told that it will? Has anyone had a reaction to the anaesthetic? Do they usually allow you to stay with your child? Please, I would like to know as much as possible before we go next week. She has to go for a physical on Jan 13 with the pediatrician just to make sure I guess that she is healthy enough for this test? TIA Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 --- Hi there! My son had his cat scan when he was five months old. Luckily, he decided to take a nap right at the moment they told us to come in. I too was very scared about the thought of anesthetic. I was so happy not to have to use it. Is there any possibility your daughter would want to take a nap during the time of her scan? They wouldn't let us stay with him, and I was very dissappointed in that. However, it took only a few minutes for the whole thing. We left the room so they could start, and I decided to use the opportunity to visit the restroom, and when I came out my husband and Brennen were there waiting for me. It was less than five minutes, I swear. I was surprised at how fast it all went. Good luck with your daughter's cat scan, I hope everything turns out perfectly. Crystal & Brennen In AtresiaMicrotia , " marblesab " wrote: > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? Do they usually allow you > to stay with your child? Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? > > TIA > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 --- Hi there! My son had his cat scan when he was five months old. Luckily, he decided to take a nap right at the moment they told us to come in. I too was very scared about the thought of anesthetic. I was so happy not to have to use it. Is there any possibility your daughter would want to take a nap during the time of her scan? They wouldn't let us stay with him, and I was very dissappointed in that. However, it took only a few minutes for the whole thing. We left the room so they could start, and I decided to use the opportunity to visit the restroom, and when I came out my husband and Brennen were there waiting for me. It was less than five minutes, I swear. I was surprised at how fast it all went. Good luck with your daughter's cat scan, I hope everything turns out perfectly. Crystal & Brennen In AtresiaMicrotia , " marblesab " wrote: > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? Do they usually allow you > to stay with your child? Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? > > TIA > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 --- Hi there! My son had his cat scan when he was five months old. Luckily, he decided to take a nap right at the moment they told us to come in. I too was very scared about the thought of anesthetic. I was so happy not to have to use it. Is there any possibility your daughter would want to take a nap during the time of her scan? They wouldn't let us stay with him, and I was very dissappointed in that. However, it took only a few minutes for the whole thing. We left the room so they could start, and I decided to use the opportunity to visit the restroom, and when I came out my husband and Brennen were there waiting for me. It was less than five minutes, I swear. I was surprised at how fast it all went. Good luck with your daughter's cat scan, I hope everything turns out perfectly. Crystal & Brennen In AtresiaMicrotia , " marblesab " wrote: > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? Do they usually allow you > to stay with your child? Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? > > TIA > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? When had his ABR when he was 8 months old, they gave him some orange liquid...a form of anasthetic. It put him to sleep within 10-15minutes. He didn't like it, (the taste I imagine) and he cried a lot. He was quite tired at the time, as we wanted him to go to sleep by himself, but he has never been one to fall asleep with new surroundings (too interested in what was going on). Anyway, other than the crying, he didn't have any adverse reaction. Since then he has been under general anasthetic for the first stage of the BAHA surgery. He was a little nervous, understandably, but didn't have any adverse reaction to that either (just a little nauseous afterwards, which is quite normal). > Do they usually allow you > to stay with your child? We were with the whole time for the ABR (even during the test). And my wife was with until after he was asleep in the surgery. I was with the whole time when he had his CAT scan too, but he was 6 years old, and was awake for it. > Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? Don't know about this one. didn't need any special exams or physicals before his surgery, CAT scan or ABR. Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? When had his ABR when he was 8 months old, they gave him some orange liquid...a form of anasthetic. It put him to sleep within 10-15minutes. He didn't like it, (the taste I imagine) and he cried a lot. He was quite tired at the time, as we wanted him to go to sleep by himself, but he has never been one to fall asleep with new surroundings (too interested in what was going on). Anyway, other than the crying, he didn't have any adverse reaction. Since then he has been under general anasthetic for the first stage of the BAHA surgery. He was a little nervous, understandably, but didn't have any adverse reaction to that either (just a little nauseous afterwards, which is quite normal). > Do they usually allow you > to stay with your child? We were with the whole time for the ABR (even during the test). And my wife was with until after he was asleep in the surgery. I was with the whole time when he had his CAT scan too, but he was 6 years old, and was awake for it. > Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? Don't know about this one. didn't need any special exams or physicals before his surgery, CAT scan or ABR. Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Good luck with the CT scan. It is a scary thought, but it isn't too bad. We were with (he had the CT scan when he was three months old) the entire time - a nurse will give your baby an anesthetic to drink (it does taste yucky) but within three to four minutes, your daughter will be quite sleepy. During this time, her oxygenation and vital signs will be constantly monitored. Once she is asleep, the CT scan will be done. Depending on the situation, one parent may be allowed to stay with the baby, as long as he or she wears protective " robe " to shield from radiation. I wish you the best of luck. Try not to worry too much! Lili ('s mom, 7 1/2 months) RE: Please need help... > > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > > am so worried about it, they have to put her under anaesthetic since > > she is only 14 months old, and I guess that is the part that I am > > most worried about. I know many of you have been through this too, > > does it go as smoothly as what I'm being told that it will? Has > > anyone had a reaction to the anaesthetic? > > When had his ABR when he was 8 months old, they gave him some orange > liquid...a form of anasthetic. It put him to sleep within 10-15minutes. He > didn't like it, (the taste I imagine) and he cried a lot. He was quite > tired at the time, as we wanted him to go to sleep by himself, but he has > never been one to fall asleep with new surroundings (too interested in what > was going on). Anyway, other than the crying, he didn't have any adverse > reaction. > > Since then he has been under general anasthetic for the first stage of the > BAHA surgery. He was a little nervous, understandably, but didn't have any > adverse reaction to that either (just a little nauseous afterwards, which is > quite normal). > > > Do they usually allow you > > to stay with your child? > > We were with the whole time for the ABR (even during the test). And > my wife was with until after he was asleep in the surgery. > > I was with the whole time when he had his CAT scan too, but he was 6 > years old, and was awake for it. > > > Please, I would like to know as much as > > possible before we go next week. She has to go for a physical on Jan > > 13 with the pediatrician just to make sure I guess that she is > > healthy enough for this test? > > Don't know about this one. didn't need any special exams or physicals > before his surgery, CAT scan or ABR. > > Steve (Father to , bilateral Atresia/Microtia) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Sending (((hugs))) your way, Dawn. I remember all to well the few days before went under general anesthesia. He was only 3 months old and I was absolutely terrified. They put him under to give him a hearing test and to get a better look at his stenotic ear, so he was out longer than a few minutes, probably an hour. The worst part was not being able to feed him for a certain number of hours beforehand and when they took him from us. Thank goodness at that point he was asleep and not crying. Anyway, he did great with the anesthetic and the nurses told us that babies do so much better with it than older children. And also slept the rest of the day away. turns 1 next month and the ENT told us he wanted to put him under general again at 18 months...I'm already dreading it. Christie -----Original Message----- Sent: Wednesday, January 08, 2003 3:01 PMTo: AtresiaMicrotia Subject: Please need help...My daughter is supposed to go in next week (Jan 16) for a CT scan. I am so worried about it, they have to put her under anaesthetic since she is only 14 months old, and I guess that is the part that I am most worried about. I know many of you have been through this too, does it go as smoothly as what I'm being told that it will? Has anyone had a reaction to the anaesthetic? Do they usually allow you to stay with your child? Please, I would like to know as much as possible before we go next week. She has to go for a physical on Jan 13 with the pediatrician just to make sure I guess that she is healthy enough for this test?TIADawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn, My son had a CT scan when he was young and like some of the others he had the orange drink - I think it's called Versed? He didin't like the taste either, but it made him really sleepy and relaxed. I couldn't go into the CT room, but it didn't take long and they brought him to me sleeping like a .....baby. I hope this helps and all goes well on the 16th. Love, beth > " marblesab@...> >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: Please need help... >Date: Wed, 08 Jan 2003 20:01:25 -0000 > >My daughter is supposed to go in next week (Jan 16) for a CT scan. I >am so worried about it, they have to put her under anaesthetic since >she is only 14 months old, and I guess that is the part that I am >most worried about. I know many of you have been through this too, >does it go as smoothly as what I'm being told that it will? Has >anyone had a reaction to the anaesthetic? Do they usually allow you >to stay with your child? Please, I would like to know as much as >possible before we go next week. She has to go for a physical on Jan >13 with the pediatrician just to make sure I guess that she is >healthy enough for this test? > >TIA >Dawn > > _________________________________________________________________ The new MSN 8 is here: Try it free* for 2 months http://join.msn.com/?page=dept/dialup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Why do you need a CT scan? The doctors can't do anything until the child is at least 5yrs old. I wouldn't subject my child to any more anesthesia than is necessary. My son()is six and he now has 2 polythelene ears and 2 BAHA anchors. He has 1 BAHA and will be getting the 2nd one soon. He's doing great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn, its , i was wondering why your daughter is having a ct scan we were told that they would not even consider it until Kai is at least 5 or 6. Please need help...>Date: Wed, 08 Jan 2003 20:01:25 -0000>>My daughter is supposed to go in next week (Jan 16) for a CT scan. I>am so worried about it, they have to put her under anaesthetic since>she is only 14 months old, and I guess that is the part that I am>most worried about. I know many of you have been through this too,>does it go as smoothly as what I'm being told that it will? Has>anyone had a reaction to the anaesthetic? Do they usually allow you>to stay with your child? Please, I would like to know as much as>possible before we go next week. She has to go for a physical on Jan>13 with the pediatrician just to make sure I guess that she is>healthy enough for this test?>>TIA>Dawn>>_________________________________________________________________The new MSN 8 is here: Try it free* for 2 months http://join.msn.com/?page=dept/dialup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn, its , i was wondering why your daughter is having a ct scan we were told that they would not even consider it until Kai is at least 5 or 6. Please need help...>Date: Wed, 08 Jan 2003 20:01:25 -0000>>My daughter is supposed to go in next week (Jan 16) for a CT scan. I>am so worried about it, they have to put her under anaesthetic since>she is only 14 months old, and I guess that is the part that I am>most worried about. I know many of you have been through this too,>does it go as smoothly as what I'm being told that it will? Has>anyone had a reaction to the anaesthetic? Do they usually allow you>to stay with your child? Please, I would like to know as much as>possible before we go next week. She has to go for a physical on Jan>13 with the pediatrician just to make sure I guess that she is>healthy enough for this test?>>TIA>Dawn>>_________________________________________________________________The new MSN 8 is here: Try it free* for 2 months http://join.msn.com/?page=dept/dialup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn-Anesthetic is pretty safe under supervision of a professional. Some people have allergies to it but they know what to look for and how to help her if that was to happen. The pediatrician will be looking for colds, fevers and any loose teeth. Don't hesitate to cancel if she has any of these after the appointment with the pediatrician. Usually they want people to be fever free for at least 12 hours. After your daughter wakes up from the anesthetic she will probably be very tired, unsteady on her feet (better to carry her) and will probably sleep most of the day. Her tummy may feel alittle sick but as long as you follow the directions about eating and drinking from the docs, you'll lessen the chance of vomiting. Start food and liquids slowly afterwards. If she holds down and feels fine after alittle liquid, give her more. If she doesn't feel good after, wait 30-60 minutes and try again. Most kids are back to their old selves the day after. Whether you can go in for the CT scan usually depends on the rules of your hospital. Please need help... My daughter is supposed to go in next week (Jan 16) for a CT scan. I am so worried about it, they have to put her under anaesthetic since she is only 14 months old, and I guess that is the part that I am most worried about. I know many of you have been through this too, does it go as smoothly as what I'm being told that it will? Has anyone had a reaction to the anaesthetic? Do they usually allow you to stay with your child? Please, I would like to know as much as possible before we go next week. She has to go for a physical on Jan 13 with the pediatrician just to make sure I guess that she is healthy enough for this test?TIADawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn-Anesthetic is pretty safe under supervision of a professional. Some people have allergies to it but they know what to look for and how to help her if that was to happen. The pediatrician will be looking for colds, fevers and any loose teeth. Don't hesitate to cancel if she has any of these after the appointment with the pediatrician. Usually they want people to be fever free for at least 12 hours. After your daughter wakes up from the anesthetic she will probably be very tired, unsteady on her feet (better to carry her) and will probably sleep most of the day. Her tummy may feel alittle sick but as long as you follow the directions about eating and drinking from the docs, you'll lessen the chance of vomiting. Start food and liquids slowly afterwards. If she holds down and feels fine after alittle liquid, give her more. If she doesn't feel good after, wait 30-60 minutes and try again. Most kids are back to their old selves the day after. Whether you can go in for the CT scan usually depends on the rules of your hospital. Please need help... My daughter is supposed to go in next week (Jan 16) for a CT scan. I am so worried about it, they have to put her under anaesthetic since she is only 14 months old, and I guess that is the part that I am most worried about. I know many of you have been through this too, does it go as smoothly as what I'm being told that it will? Has anyone had a reaction to the anaesthetic? Do they usually allow you to stay with your child? Please, I would like to know as much as possible before we go next week. She has to go for a physical on Jan 13 with the pediatrician just to make sure I guess that she is healthy enough for this test?TIADawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Dawn-Anesthetic is pretty safe under supervision of a professional. Some people have allergies to it but they know what to look for and how to help her if that was to happen. The pediatrician will be looking for colds, fevers and any loose teeth. Don't hesitate to cancel if she has any of these after the appointment with the pediatrician. Usually they want people to be fever free for at least 12 hours. After your daughter wakes up from the anesthetic she will probably be very tired, unsteady on her feet (better to carry her) and will probably sleep most of the day. Her tummy may feel alittle sick but as long as you follow the directions about eating and drinking from the docs, you'll lessen the chance of vomiting. Start food and liquids slowly afterwards. If she holds down and feels fine after alittle liquid, give her more. If she doesn't feel good after, wait 30-60 minutes and try again. Most kids are back to their old selves the day after. Whether you can go in for the CT scan usually depends on the rules of your hospital. Please need help... My daughter is supposed to go in next week (Jan 16) for a CT scan. I am so worried about it, they have to put her under anaesthetic since she is only 14 months old, and I guess that is the part that I am most worried about. I know many of you have been through this too, does it go as smoothly as what I'm being told that it will? Has anyone had a reaction to the anaesthetic? Do they usually allow you to stay with your child? Please, I would like to know as much as possible before we go next week. She has to go for a physical on Jan 13 with the pediatrician just to make sure I guess that she is healthy enough for this test?TIADawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Hi (and ), The ENT wanted a bunch of tests done, and this is one of them. (he also had a ECG, urine, and some blood work done too.) He is also sending her to an eye doctor just to make sure that all is well there too. (he said there is a slight connection between the heart and the ear, as well as the eyes and the ears...also a connection between the ears and the kidneys, but she has an ultrasound at 1-2 months to check her kidneys and all was well) He wanted her to have the CT I know to check to make sure that if there is an ear canal that ear wax, dead skin cells, and such were not building up and causing problems (he said that if those things build up and build up that they will start to erode the bone away and then we would have BIG problems... he wants to avoid that) and of course he wants to see what was formed in the way of a middle ear etc. He said that if he sees that there is starting to be a build up then he will be opening the ear canal sooner then he wants to, otherwise he will wait until the plastic surgeon has done his part, then the ENT will go in and do what he has to. He said that he just wants to do whats best for Devin, and from what I've heard he is a great doctor, and we trust him. I'm sure he wouldn't have these tests done if he didn't think it was necessary Dawn > Hi Dawn, its , i was wondering why your daughter is having a ct scan we were told that they would not even consider it until Kai is at least 5 or 6. > Please need help... > >Date: Wed, 08 Jan 2003 20:01:25 -0000 > > > >My daughter is supposed to go in next week (Jan 16) for a CT scan. I > >am so worried about it, they have to put her under anaesthetic since > >she is only 14 months old, and I guess that is the part that I am > >most worried about. I know many of you have been through this too, > >does it go as smoothly as what I'm being told that it will? Has > >anyone had a reaction to the anaesthetic? Do they usually allow you > >to stay with your child? Please, I would like to know as much as > >possible before we go next week. She has to go for a physical on Jan > >13 with the pediatrician just to make sure I guess that she is > >healthy enough for this test? > > > >TIA > >Dawn > > > > > > > _________________________________________________________________ > The new MSN 8 is here: Try it free* for 2 months > http://join.msn.com/?page=dept/dialup > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Hi (and ), The ENT wanted a bunch of tests done, and this is one of them. (he also had a ECG, urine, and some blood work done too.) He is also sending her to an eye doctor just to make sure that all is well there too. (he said there is a slight connection between the heart and the ear, as well as the eyes and the ears...also a connection between the ears and the kidneys, but she has an ultrasound at 1-2 months to check her kidneys and all was well) He wanted her to have the CT I know to check to make sure that if there is an ear canal that ear wax, dead skin cells, and such were not building up and causing problems (he said that if those things build up and build up that they will start to erode the bone away and then we would have BIG problems... he wants to avoid that) and of course he wants to see what was formed in the way of a middle ear etc. He said that if he sees that there is starting to be a build up then he will be opening the ear canal sooner then he wants to, otherwise he will wait until the plastic surgeon has done his part, then the ENT will go in and do what he has to. He said that he just wants to do whats best for Devin, and from what I've heard he is a great doctor, and we trust him. I'm sure he wouldn't have these tests done if he didn't think it was necessary Dawn > Hi Dawn, its , i was wondering why your daughter is having a ct scan we were told that they would not even consider it until Kai is at least 5 or 6. > Please need help... > >Date: Wed, 08 Jan 2003 20:01:25 -0000 > > > >My daughter is supposed to go in next week (Jan 16) for a CT scan. I > >am so worried about it, they have to put her under anaesthetic since > >she is only 14 months old, and I guess that is the part that I am > >most worried about. I know many of you have been through this too, > >does it go as smoothly as what I'm being told that it will? Has > >anyone had a reaction to the anaesthetic? Do they usually allow you > >to stay with your child? Please, I would like to know as much as > >possible before we go next week. She has to go for a physical on Jan > >13 with the pediatrician just to make sure I guess that she is > >healthy enough for this test? > > > >TIA > >Dawn > > > > > > > _________________________________________________________________ > The new MSN 8 is here: Try it free* for 2 months > http://join.msn.com/?page=dept/dialup > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > He wanted her to have the CT I > know to check to make sure that if there is an ear canal that ear > wax, dead skin cells, and such were not building up and causing > problems (he said that if those things build up and build up that > they will start to erode the bone away and then we would have BIG > problems... he wants to avoid that) This is essentially what Cholesteatoma is. http://www.sinuscarecenter.com/choleaao.html http://www.earsite.com/tumors/cholesteatoma.html http://www.earsurgery.org/cholest.html Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > He wanted her to have the CT I > know to check to make sure that if there is an ear canal that ear > wax, dead skin cells, and such were not building up and causing > problems (he said that if those things build up and build up that > they will start to erode the bone away and then we would have BIG > problems... he wants to avoid that) This is essentially what Cholesteatoma is. http://www.sinuscarecenter.com/choleaao.html http://www.earsite.com/tumors/cholesteatoma.html http://www.earsurgery.org/cholest.html Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > He wanted her to have the CT I > know to check to make sure that if there is an ear canal that ear > wax, dead skin cells, and such were not building up and causing > problems (he said that if those things build up and build up that > they will start to erode the bone away and then we would have BIG > problems... he wants to avoid that) This is essentially what Cholesteatoma is. http://www.sinuscarecenter.com/choleaao.html http://www.earsite.com/tumors/cholesteatoma.html http://www.earsurgery.org/cholest.html Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Dawn, I am by no means an expert in any of this, but I wanted to pass along some information that has been passed along to me. Here is a clip from the e-mail that was sent to me just in case the scan does show a build up and the doctor decides to proceed with opening the canal before the outer ear is reconstructed.... "He was followed by the only ENT there with any kind of microtia experience for 4 years. That doctor then had a revelation of sorts. He said that in his opinion, it would be a good idea to open one of Evan's ear canals. He had one canal that was partially opened and making that canal larger and improving his hearing was the ultimate goal. Not being as well informed then as I am now and with no access to a computer, I didn't know that this was NOT the way to proceed and I put complete faith in Evan's doctor to guide me down the correct road. That's the last time I ever put my faith in someone without having complete knowledge of the exact situation! We went ahead and allowed him to operate on Evan when he was 4, to reconstruct that ear canal. That was mistake #1...well, no, putting faith in him was mistake #1! LOL Come to find out later that the ear canal is never done before the outer ear surgery. Now, don't you think a doctor that touts himself as a microtia specialist would know this? I'm still amazed to this day!. To shorten the rest of the story, the ear canal ended up getting horribly infected because he also did not tell us to have it cleaned out every 6 months or so and in September 2001, Evan had another surgery with Dr.J. in Virginia to fix the mess that was left by the doctor at CHOP. And you are correct when you say that there are only a few surgeons in the country qualified to do ear reconstruction surgery. As you heard from my story, just because a claim is made regarding a specialty or area of expertise, this isn't always true. " Hope this helps. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 Hi Dawn, My heart goes out to you. I remember the experience well. When Cameron was born (6 years ago), the hospital I was in was unfamiliar with microtia, so they did a CT scan almost immediately after birth. There was fluid in his microtic ear so they wanted to do another CT scan at 4 months. They figured it was amniotic fluid, but wanted to be sure that it drained out so that it wouldn't become infected or anything. We did the scan and had the same experience as most others: he drank the yucky medicine, fell asleep crying (presumably because of the taste), slept through the scan while I sat with him, and woke up just fine - no adverse affects. Good luck this week! Lyn > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? Do they usually allow you > to stay with your child? Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? > > TIA > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 Hi Dawn, My heart goes out to you. I remember the experience well. When Cameron was born (6 years ago), the hospital I was in was unfamiliar with microtia, so they did a CT scan almost immediately after birth. There was fluid in his microtic ear so they wanted to do another CT scan at 4 months. They figured it was amniotic fluid, but wanted to be sure that it drained out so that it wouldn't become infected or anything. We did the scan and had the same experience as most others: he drank the yucky medicine, fell asleep crying (presumably because of the taste), slept through the scan while I sat with him, and woke up just fine - no adverse affects. Good luck this week! Lyn > My daughter is supposed to go in next week (Jan 16) for a CT scan. I > am so worried about it, they have to put her under anaesthetic since > she is only 14 months old, and I guess that is the part that I am > most worried about. I know many of you have been through this too, > does it go as smoothly as what I'm being told that it will? Has > anyone had a reaction to the anaesthetic? Do they usually allow you > to stay with your child? Please, I would like to know as much as > possible before we go next week. She has to go for a physical on Jan > 13 with the pediatrician just to make sure I guess that she is > healthy enough for this test? > > TIA > Dawn Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.