Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Laurie, I started Lamictal about a week ago, and I too have found that it reduces my myoclonus; especially during sleep. However, the cramps, which are sporatic, are still horrible. I find I have some...um...extra gas and loose stools since starting the Lamictal. I " m only on 50 mg per day now, titrating up to 100, then to 200 daily. Hope this is a temporary adjustment. One thing for sure...I have the weirdest dreams since starting it. Vivid, almost like a movie, and make nooooo sense. Not that many dreams do, but these are bizzare. Did you have side effects in the begininng? ~Kathy~ > >>>> Regarding the subject of pain....I like many others here, am > > in > >>> constant > >>>> pain. The pain is pretty localized to my joints and > > especially my > >>> feet. I am > >>>> trying to get into a pain clinic. My sister who started with > > this > >>> sucky disease > >>>> about 3 years before me just got some type of apparatus > > inserted > >>> in her back > >>>> which is supposed to aid in reducing the pain by blocking some > > of > >>> the messages > >>>> the nerves are sending to her brain. I have been on heavy > > duty > >>> narcotics for > >>>> a year ...and a half...I am conpletely functional on the > > narcotics > >>> and I get > >>>> only a little relief. At this point, my PCP says he doesn't > > have > >>> anything else > >>>> to offer me. > >>>> > >>>> I have much difficulty walking...even though I have a crutch > > and a > >>> walker, I > >>>> tend to not use them because of stupid pride and because my > > kids > >>> are > >>>> embarassed by it. I see my Mito Doc in October and as of my > > last > >>> visit in April, she > >>>> was concerned about the deterioration in walking I am having. > >>>> > >>>> One more interesting note....I am 42 years old and in > > Menopause. > >>> I am > >>>> curious if any othe mito women entered menopause early. Of > >>> course I have every > >>>> single symptom to the 10th degree! I started working with a > > Nurse > >>> Practioner who > >>>> has me on bioidentical hormones... right now it's just > >>> progesterone cream > >>>> made of wild yams from Mexico. It takes 2-3 months to find > > the > >>> right recipe for > >>>> you. I have had some relief in my joint pains too. > >>>> > >>>> Carol > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Kathy I still get cramps if I do too much walking or driving or I'm under a lot of stress at work, but can't imagine what they would be without the Lamictal. I have the gas problem, but with my CPAP and other things I take, I can't be sure what is causing it. I have dysmotility, so wasn't aware of the loose bowels. I started at the 50 mg. and am now up to 200 mg. twice a day. It may be that you are getting more REM sleep now and that is the reason for the dreams. The Lamictal does make me sleep more soundly. It will probably cause you some sleepiness when taken during the day, but this will pass over time. Good luck with it! laurie > > Reply-To: > Date: Mon, 30 Aug 2004 02:11:15 -0000 > To: > Subject: Re: Pain and Lamictal > > Laurie, I started Lamictal about a week ago, and I too have found > that it reduces my myoclonus; especially during sleep. However, the > cramps, which are sporatic, are still horrible. > > I find I have some...um...extra gas and loose stools since starting > the Lamictal. I " m only on 50 mg per day now, titrating up to 100, > then to 200 daily. Hope this is a temporary adjustment. > > One thing for sure...I have the weirdest dreams since starting it. > Vivid, almost like a movie, and make nooooo sense. Not that many > dreams do, but these are bizzare. > > Did you have side effects in the begininng? > > ~Kathy~ > > > > > >>>>>> Regarding the subject of pain....I like many others here, am >>> in >>>>> constant >>>>>> pain. The pain is pretty localized to my joints and >>> especially my >>>>> feet. I am >>>>>> trying to get into a pain clinic. My sister who started with >>> this >>>>> sucky disease >>>>>> about 3 years before me just got some type of apparatus >>> inserted >>>>> in her back >>>>>> which is supposed to aid in reducing the pain by blocking some >>> of >>>>> the messages >>>>>> the nerves are sending to her brain. I have been on heavy >>> duty >>>>> narcotics for >>>>>> a year ...and a half...I am conpletely functional on the >>> narcotics >>>>> and I get >>>>>> only a little relief. At this point, my PCP says he doesn't >>> have >>>>> anything else >>>>>> to offer me. >>>>>> >>>>>> I have much difficulty walking...even though I have a crutch >>> and a >>>>> walker, I >>>>>> tend to not use them because of stupid pride and because my >>> kids >>>>> are >>>>>> embarassed by it. I see my Mito Doc in October and as of my >>> last >>>>> visit in April, she >>>>>> was concerned about the deterioration in walking I am having. >>>>>> >>>>>> One more interesting note....I am 42 years old and in >>> Menopause. >>>>> I am >>>>>> curious if any othe mito women entered menopause early. Of >>>>> course I have every >>>>>> single symptom to the 10th degree! I started working with a >>> Nurse >>>>> Practioner who >>>>>> has me on bioidentical hormones... right now it's just >>>>> progesterone cream >>>>>> made of wild yams from Mexico. It takes 2-3 months to find >>> the >>>>> right recipe for >>>>>> you. I have had some relief in my joint pains too. >>>>>> >>>>>> Carol >>>>>> >>>>>> >>>>>> Quote Link to comment Share on other sites More sharing options...
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