Re: Lack of Awareness - What about 20/20 or Dateline NBC taking on this story ?

[Guest guest]

I think all of those ideas are great. I will send my letter to

Barbara, NBC's Dateline and Today Show, as well as Oprah. I am

initially approaching this through their websites, so there are no

signatures needed. For those of you who would like to participate, I

am sure that the more emails they get from Moms and Dads on Plagio,

especially if they are all coming in around the same time, the more

attention it will bring to their producers. I'll be happy to share my

letter with you and also include website links, so they are easy for

you to find.

I believe that the only way to get national awareness out on Plagio

is to keep trying. The more we persist, the closer we will come to

getting the recognition. What is that saying... " Rome wasn't built in

a day. " If these letters or emails go unanswered this year, we are

still putting the word out there. Maybe in another year or 2 or 5 or

10, someone will say " Hey, I've been hearing a lot about this issue

over the years. Let's cover it. "

I think local awareness is a great place to start, especially if you

live in a large, metropolitan area. I spent 2 months in the hospital

on complete bedrest in the high-risk pregnancy unit before Ian was

born (along with MANY other Moms). I know that I could go and hand

those wonderful nurses who cared for me a stack of pamphlets on

Plagio, and that they would give one to every single Mom that comes

through that unit. The hospital also has one of the top NICU's in the

nation and I am sure that I could talk to some of the nurses who

cared for Ian and get them to help spread the awareness. The hospital

is right outside of Washington DC in Northern VA and is very busy! I

am fortunate to live in a very highly-populated area, so I am going

to take complete advantage of that.

I am doing some research now for current numbers and statistics, so

that I can have as much accurate information as possible to include

in the letters and my pamphlet. I will be happy to share what I find

with the group, if anyone would like to use it for their own campaign.

We're never going to get anywhere unless we keep trying. I believe

persistence is key, so don't give up! Whether you live in a small

town or a big, metro area there are things that you can do.

I'll have those website links and my letter for you later...Ian is

awake!!

Proud Mommy to Ian - 6 mos (4 mos corrected age)

Northern VA

> > > > > > >

> > > > > > > Hi Everyone and Happy Easter!

> > > > > > >

> > > > > > > Thanks to all of you for your very helpful answers to

my

> > > question

> > > > > > > last week about aggressive repositioning for my 6 mo (4

> mo

> > > > > corrected

> > > > > > > age) preemie. He is developing like a typical 6 mo old

> and

> > is

> > > > > very

> > > > > > > mobile. I have been attempting aggressive repo for 5

days

> > > now,

> > > > > and I

> > > > > > > can reposition him during the day and at nap times to

> keep

> > > him

> > > > > off of

> > > > > > > his flat side, but not at night. He insists on moving

off

> > the

> > > > > > > repositioner or rolling back onto his flat side, so

> > > aggressive

> > > > > > > repositioning seems like it won't be an option for us.

> > > So...this

> > > > > > > leads me to many questions about getting started with

the

> > > banding.

> > > > > > >

> > > > > > > My DS, Ian has his 6 mo vaccinations and well-check

> > tomorrow

> > > with

> > > > > his

> > > > > > > ped. We have a Cranial Technologies 30 min. from where

we

> > > live in

> > > > > > > Northern VA (I feel extremely blessed). What do I need

> from

> > > my

> > > > > ped.

> > > > > > > in order to get an appt. with Cranial Tech or can I

just

> > call

> > > > > Cranial

> > > > > > > tech directly to make an appt? I want to get this

process

> > > started

> > > > > > > ASAP, because the hot summer months are coming soon and

> > Baby

> > > > > Ian's

> > > > > > > head is still so small yet and growing rapidly.

> > > > > > >

> > > > > > > If anyone would like to share their process and/or

hints

> on

> > > how

> > > > > to

> > > > > > > get him in a DOC helmet as quickly as possible, I would

> > LOVE

> > > to

> > > > > hear

> > > > > > > them! I should mention that my insurane is Aetna, so I

> > don't

> > > > > think I

> > > > > > > will run into any issues there (praying).

> > > > > > >

> > > > > > > Thanks to all for any input, advice and help!

> > > > > > >

> > > > > > >

> > > > > > > Proud Mommy to Ian - Her Miracle Baby

> > > > > > > 6 mos (4 mos corrected age)

> > > > > > > Northern VA

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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