Overwhelmed?

[Guest guest]

Hello All, it is me, ...Zayne's mom.

I really do not know what to post......I am so distraught.

I feel like I am on a nonstop roller coaster....With all the Dr.

visits and therapy meetings for Zayne, Sign language (which I feel I

will never get the hang of it) to keeing the BCHA on Zayne like we

are suppost to do every day. It just feels like so much for me to

take in. Is that wrong of me as a mother of 3 to feels this

way??????/

I sometimes feel like I can not breathe. I am so overwhelmed with

everything we have to do for Zayne. And that makes me feel as if I

am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs

old. knowing they do not understand what I am feeling or going

through as well. And my husband...God knows I love him with all I

have..t has been tough o us too. The mariage goes up and down, and I

feel as if he does not understand me. And that urks me sometimes, and

makes me so angry with him.

Am i alone, Does all of this mean I am just being selfish. Or is this

a feeling that happens to us all. I want to be the best mom I can be

for my children. They depend on m..but I feel like I am starting to

fall apart in someways.

i do not mean to dump this on any of you, Iknow all of you have your

own's life test to handle, but i just wanted my "Group" to know the

true feelings of this mom. An maybe some advice or words of wisdom

can help put my mind at ease, or just plain help what i am going

through all together!

I hope I did not upset any of you by this message...I am just a mom

that feels like a basket case

Thanks and Zayne(Bilateral Aural Atresia)

hi shelly

my daughter-in-law has 3 kids age 3 and under.

my other daughter-in-law has 2 kids 2 and under.

neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.

AND THEY FEEL EXACTLY AS YOU DO!

i read with awe your postings replete with the love and care which you lavish on your family, including your husband.

i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!

well...guess what?

YOU'RE ENTITLED!

you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.

me, i think you're AWESOME!

a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!

right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!

motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.

jack

[Guest guest]

Hello All, it is me, ...Zayne's mom.

I really do not know what to post......I am so distraught.

I feel like I am on a nonstop roller coaster....With all the Dr.

visits and therapy meetings for Zayne, Sign language (which I feel I

will never get the hang of it) to keeing the BCHA on Zayne like we

are suppost to do every day. It just feels like so much for me to

take in. Is that wrong of me as a mother of 3 to feels this

way??????/

I sometimes feel like I can not breathe. I am so overwhelmed with

everything we have to do for Zayne. And that makes me feel as if I

am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs

old. knowing they do not understand what I am feeling or going

through as well. And my husband...God knows I love him with all I

have..t has been tough o us too. The mariage goes up and down, and I

feel as if he does not understand me. And that urks me sometimes, and

makes me so angry with him.

Am i alone, Does all of this mean I am just being selfish. Or is this

a feeling that happens to us all. I want to be the best mom I can be

for my children. They depend on m..but I feel like I am starting to

fall apart in someways.

i do not mean to dump this on any of you, Iknow all of you have your

own's life test to handle, but i just wanted my "Group" to know the

true feelings of this mom. An maybe some advice or words of wisdom

can help put my mind at ease, or just plain help what i am going

through all together!

I hope I did not upset any of you by this message...I am just a mom

that feels like a basket case

Thanks and Zayne(Bilateral Aural Atresia)

hi shelly

my daughter-in-law has 3 kids age 3 and under.

my other daughter-in-law has 2 kids 2 and under.

neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.

AND THEY FEEL EXACTLY AS YOU DO!

i read with awe your postings replete with the love and care which you lavish on your family, including your husband.

i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!

well...guess what?

YOU'RE ENTITLED!

you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.

me, i think you're AWESOME!

a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!

right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!

motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.

jack

[Guest guest]

Hello All, it is me, ...Zayne's mom.

I really do not know what to post......I am so distraught.

I feel like I am on a nonstop roller coaster....With all the Dr.

visits and therapy meetings for Zayne, Sign language (which I feel I

will never get the hang of it) to keeing the BCHA on Zayne like we

are suppost to do every day. It just feels like so much for me to

take in. Is that wrong of me as a mother of 3 to feels this

way??????/

I sometimes feel like I can not breathe. I am so overwhelmed with

everything we have to do for Zayne. And that makes me feel as if I

am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs

old. knowing they do not understand what I am feeling or going

through as well. And my husband...God knows I love him with all I

have..t has been tough o us too. The mariage goes up and down, and I

feel as if he does not understand me. And that urks me sometimes, and

makes me so angry with him.

Am i alone, Does all of this mean I am just being selfish. Or is this

a feeling that happens to us all. I want to be the best mom I can be

for my children. They depend on m..but I feel like I am starting to

fall apart in someways.

i do not mean to dump this on any of you, Iknow all of you have your

own's life test to handle, but i just wanted my " Group " to know the

true feelings of this mom. An maybe some advice or words of wisdom

can help put my mind at ease, or just plain help what i am going

through all together!

I hope I did not upset any of you by this message...I am just a mom

that feels like a basket case

Thanks and Zayne(Bilateral Aural Atresia)

[Guest guest]

((())) As a mom of 3 myself please know your feelings are completely

NORMAL. You are not alone. I'm glad you felt like you could come to the

group for support. Running a household is stressful in its self at times and

then add on the extra " duties " of appointments and such and it can be

overwhelming.

Please feel free to vent any time.

Autumn

[Guest guest]

Well said Jack....

, your doing a wonderful job. The fact that your on this list, venting, and trying to be better, shows that you are a loving caring mother. And that's the best thing you could be. Jack's right, the feelings you are getting are totally normal, and I am sure every mother feels that way sometimes. If it helps, feel free to vent on this list. I am sure noone minds. Keep in mind you are normal, and human. Don't try to be perfect, o one ever is. Try to do the best you can, and from what I can tell, you are already there.

Steve

-----Original Message-----From: GrossInsCo@... Sent: Tuesday, September 17, 2002 8:26 PMTo: AtresiaMicrotia Subject: Re: Overwhelmed?

Hello All, it is me, ...Zayne's mom.I really do not know what to post......I am so distraught.I feel like I am on a nonstop roller coaster....With all the Dr. visits and therapy meetings for Zayne, Sign language (which I feel I will never get the hang of it) to keeing the BCHA on Zayne like we are suppost to do every day. It just feels like so much for me to take in. Is that wrong of me as a mother of 3 to feels this way??????/I sometimes feel like I can not breathe. I am so overwhelmed with everything we have to do for Zayne. And that makes me feel as if I am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs old. knowing they do not understand what I am feeling or going through as well. And my husband...God knows I love him with all I have..t has been tough o us too. The mariage goes up and down, and I feel as if he does not understand me. And that urks me sometimes, and makes me so angry with him.Am i alone, Does all of this mean I am just being selfish. Or is this a feeling that happens to us all. I want to be the best mom I can be for my children. They depend on m..but I feel like I am starting to fall apart in someways.i do not mean to dump this on any of you, Iknow all of you have your own's life test to handle, but i just wanted my "Group" to know the true feelings of this mom. An maybe some advice or words of wisdom can help put my mind at ease, or just plain help what i am going through all together!I hope I did not upset any of you by this message...I am just a mom that feels like a basket caseThanks and Zayne(Bilateral Aural Atresia)hi shellymy daughter-in-law has 3 kids age 3 and under.my other daughter-in-law has 2 kids 2 and under.neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.AND THEY FEEL EXACTLY AS YOU DO!i read with awe your postings replete with the love and care which you lavish on your family, including your husband.i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!well...guess what?YOU'RE ENTITLED!you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.me, i think you're AWESOME!a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.jack

[Guest guest]

Well said Jack....

, your doing a wonderful job. The fact that your on this list, venting, and trying to be better, shows that you are a loving caring mother. And that's the best thing you could be. Jack's right, the feelings you are getting are totally normal, and I am sure every mother feels that way sometimes. If it helps, feel free to vent on this list. I am sure noone minds. Keep in mind you are normal, and human. Don't try to be perfect, o one ever is. Try to do the best you can, and from what I can tell, you are already there.

Steve

-----Original Message-----From: GrossInsCo@... Sent: Tuesday, September 17, 2002 8:26 PMTo: AtresiaMicrotia Subject: Re: Overwhelmed?

Hello All, it is me, ...Zayne's mom.I really do not know what to post......I am so distraught.I feel like I am on a nonstop roller coaster....With all the Dr. visits and therapy meetings for Zayne, Sign language (which I feel I will never get the hang of it) to keeing the BCHA on Zayne like we are suppost to do every day. It just feels like so much for me to take in. Is that wrong of me as a mother of 3 to feels this way??????/I sometimes feel like I can not breathe. I am so overwhelmed with everything we have to do for Zayne. And that makes me feel as if I am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs old. knowing they do not understand what I am feeling or going through as well. And my husband...God knows I love him with all I have..t has been tough o us too. The mariage goes up and down, and I feel as if he does not understand me. And that urks me sometimes, and makes me so angry with him.Am i alone, Does all of this mean I am just being selfish. Or is this a feeling that happens to us all. I want to be the best mom I can be for my children. They depend on m..but I feel like I am starting to fall apart in someways.i do not mean to dump this on any of you, Iknow all of you have your own's life test to handle, but i just wanted my "Group" to know the true feelings of this mom. An maybe some advice or words of wisdom can help put my mind at ease, or just plain help what i am going through all together!I hope I did not upset any of you by this message...I am just a mom that feels like a basket caseThanks and Zayne(Bilateral Aural Atresia)hi shellymy daughter-in-law has 3 kids age 3 and under.my other daughter-in-law has 2 kids 2 and under.neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.AND THEY FEEL EXACTLY AS YOU DO!i read with awe your postings replete with the love and care which you lavish on your family, including your husband.i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!well...guess what?YOU'RE ENTITLED!you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.me, i think you're AWESOME!a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.jack

[Guest guest]

Well said Jack....

, your doing a wonderful job. The fact that your on this list, venting, and trying to be better, shows that you are a loving caring mother. And that's the best thing you could be. Jack's right, the feelings you are getting are totally normal, and I am sure every mother feels that way sometimes. If it helps, feel free to vent on this list. I am sure noone minds. Keep in mind you are normal, and human. Don't try to be perfect, o one ever is. Try to do the best you can, and from what I can tell, you are already there.

Steve

-----Original Message-----From: GrossInsCo@... Sent: Tuesday, September 17, 2002 8:26 PMTo: AtresiaMicrotia Subject: Re: Overwhelmed?

Hello All, it is me, ...Zayne's mom.I really do not know what to post......I am so distraught.I feel like I am on a nonstop roller coaster....With all the Dr. visits and therapy meetings for Zayne, Sign language (which I feel I will never get the hang of it) to keeing the BCHA on Zayne like we are suppost to do every day. It just feels like so much for me to take in. Is that wrong of me as a mother of 3 to feels this way??????/I sometimes feel like I can not breathe. I am so overwhelmed with everything we have to do for Zayne. And that makes me feel as if I am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs old. knowing they do not understand what I am feeling or going through as well. And my husband...God knows I love him with all I have..t has been tough o us too. The mariage goes up and down, and I feel as if he does not understand me. And that urks me sometimes, and makes me so angry with him.Am i alone, Does all of this mean I am just being selfish. Or is this a feeling that happens to us all. I want to be the best mom I can be for my children. They depend on m..but I feel like I am starting to fall apart in someways.i do not mean to dump this on any of you, Iknow all of you have your own's life test to handle, but i just wanted my "Group" to know the true feelings of this mom. An maybe some advice or words of wisdom can help put my mind at ease, or just plain help what i am going through all together!I hope I did not upset any of you by this message...I am just a mom that feels like a basket caseThanks and Zayne(Bilateral Aural Atresia)hi shellymy daughter-in-law has 3 kids age 3 and under.my other daughter-in-law has 2 kids 2 and under.neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.AND THEY FEEL EXACTLY AS YOU DO!i read with awe your postings replete with the love and care which you lavish on your family, including your husband.i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!well...guess what?YOU'RE ENTITLED!you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.me, i think you're AWESOME!a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.jack

[Guest guest]

I understand the range of emotion you are going through. I went through the

sadness, the anger, the why me, why my son. Then you get to a point where you

focus all your energy on fixing him. As progressed, so did I. He is now

6 & doing great(and so am I).

[Guest guest]

I understand the range of emotion you are going through. I went through the

sadness, the anger, the why me, why my son. Then you get to a point where you

focus all your energy on fixing him. As progressed, so did I. He is now

6 & doing great(and so am I).

[Guest guest]

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU.

FROM A LOVING AUNT

[Guest guest]

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU.

FROM A LOVING AUNT

[Guest guest]

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU.

FROM A LOVING AUNT

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Re: Overwhelmed?

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU. FROM A LOVING AUNT

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Re: Overwhelmed?

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU. FROM A LOVING AUNT

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Re: Overwhelmed?

HI, I AM THE AUNT OF A 10 YEAR OLD KEVIN WHO HAS MICROTIA. I READ EVERYONES E-MAIL AND WONDER HOW DO YOU MOTHERS DEAL WITH EVERYTHING. I FEEL FOR YOU MORE THAN YOU KNOW. THE MOTHER OF MY KEVIN IS MY TWIN SISTER. SO I FEEL FOR HER. IT'S HARD WHEN I SEE HER LOOK AT PICTURES OF KEVIN AND SAYS, WHAT HAPPENED? I WISH I COULD TAKE ALL HER PAIN BUT I CAN'T. I JUST REMIND HER THAT KEVIN IS THE ONE WHO WILL DEAL WITH THIS AND MORE THEN WE GIVE KIDS CREDIT FOR.THEY WILL GET THROUGH IT.THEY DON'T KNOW ANYTHING ELSE THIS IS THE WAY THEY WERE BORN. BUT WHAT THEY DO KNOW IS MOMMY LOVES ME JUST THE WAY I AM. THE REST IS SECONDY. I FEEL FOR ALL THE PARENTS WHO ARE SO STRONG FOR THIER KIDS. AND I FEEL FOR ALL THE KIDS WHO HAVE TO DEAL WITH NOT KNOWNING WHY THEY ARE DIFFERENT. AT THE SAME TIME DEALING WITH THE NAME CALLING, THE STARING ,GOING TO DOCTORS ,ETC. HANG IN THERE. I TAKE MY HAT TO ALL OF YOU. FROM A LOVING AUNT

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her. Remember that God qualifies the chosen. In all things give glory to God! Have a great day! Amy Colletti

wow!

jack

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her. Remember that God qualifies the chosen. In all things give glory to God! Have a great day! Amy Colletti

wow!

jack

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her. Remember that God qualifies the chosen. In all things give glory to God! Have a great day! Amy Colletti

wow!

jack

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Our son is now 7 years old, with bilateral Atresia Microtia. My advice to you would be to talk to your son/daughter as he/she grows up. Don't leave anything out. By talking about it openly, you demonstrate that there is nothing "wrong" with them, and nothing to be ashamed of, and no need to hide anything. Don't pity them, or feel sorry for them. Everyone has things they need to deal with, everyone has things that make them unique and special.

We have taken this approach with our son, and he is a happy, well-adjusted 2nd-grader with many friends. I think with a well-adjusted, confident child, the teasing is kept to a minimum. Kids ask what's that?, he says "it's my hearing aid, it helps me hear". The kids see he is not ashamed or embarrassed, their curiosity is satisfied, and they go on playing.

I am not saying that we will never have to deal with teasing...I think the prime teasing years are still to some. But I think we have armed with good tools to deal with it. We try to keep his self-confidence up, help him be a good self-advocate, and raise him as best we can.

Just my $0.02

Steve

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Our son is now 7 years old, with bilateral Atresia Microtia. My advice to you would be to talk to your son/daughter as he/she grows up. Don't leave anything out. By talking about it openly, you demonstrate that there is nothing "wrong" with them, and nothing to be ashamed of, and no need to hide anything. Don't pity them, or feel sorry for them. Everyone has things they need to deal with, everyone has things that make them unique and special.

We have taken this approach with our son, and he is a happy, well-adjusted 2nd-grader with many friends. I think with a well-adjusted, confident child, the teasing is kept to a minimum. Kids ask what's that?, he says "it's my hearing aid, it helps me hear". The kids see he is not ashamed or embarrassed, their curiosity is satisfied, and they go on playing.

I am not saying that we will never have to deal with teasing...I think the prime teasing years are still to some. But I think we have armed with good tools to deal with it. We try to keep his self-confidence up, help him be a good self-advocate, and raise him as best we can.

Just my $0.02

Steve

[Guest guest]

I'm curious - how does your ten year old deal with things? Do the other kids say hurtful things? And if so, is this how most kids act? I'm a mom of a four month old and I'm just trying to prepare myself as best I can for the future. Thanks.

Our son is now 7 years old, with bilateral Atresia Microtia. My advice to you would be to talk to your son/daughter as he/she grows up. Don't leave anything out. By talking about it openly, you demonstrate that there is nothing "wrong" with them, and nothing to be ashamed of, and no need to hide anything. Don't pity them, or feel sorry for them. Everyone has things they need to deal with, everyone has things that make them unique and special.

We have taken this approach with our son, and he is a happy, well-adjusted 2nd-grader with many friends. I think with a well-adjusted, confident child, the teasing is kept to a minimum. Kids ask what's that?, he says "it's my hearing aid, it helps me hear". The kids see he is not ashamed or embarrassed, their curiosity is satisfied, and they go on playing.

I am not saying that we will never have to deal with teasing...I think the prime teasing years are still to some. But I think we have armed with good tools to deal with it. We try to keep his self-confidence up, help him be a good self-advocate, and raise him as best we can.

Just my $0.02

Steve

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her.

Fantastic approach! Way to go!! We too openly discuss it with anyone who is interested/curious, adult or child. I think if children understand, and see that there is nothing embarrassing, what's left to tease about?

Steve (Father to , bilateral Atresia/Microtia)

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her.

Fantastic approach! Way to go!! We too openly discuss it with anyone who is interested/curious, adult or child. I think if children understand, and see that there is nothing embarrassing, what's left to tease about?

Steve (Father to , bilateral Atresia/Microtia)

[Guest guest]

This time I asked the young boy if he had a question. He tried to act like he did not know what I was talking about. I told him it wasn't very nice to make fun of people, I would be happy to talk to him if he would like. His friend smiled and agreed that it isn't nice to laugh at people. Whenever someone asks about may daughter, I happily explain. I feel that when someone has enough courage to approach me about Abby, it is Gods way of showing his love through her.

Fantastic approach! Way to go!! We too openly discuss it with anyone who is interested/curious, adult or child. I think if children understand, and see that there is nothing embarrassing, what's left to tease about?

Steve (Father to , bilateral Atresia/Microtia)

[Guest guest]

jack........absolutely beautifully felt and said!!!!!!

-----Original Message-----From: GrossInsCo@... Sent: 18 September 2002 05:26To: AtresiaMicrotia Subject: Re: Overwhelmed?

Hello All, it is me, ...Zayne's mom.I really do not know what to post......I am so distraught.I feel like I am on a nonstop roller coaster....With all the Dr. visits and therapy meetings for Zayne, Sign language (which I feel I will never get the hang of it) to keeing the BCHA on Zayne like we are suppost to do every day. It just feels like so much for me to take in. Is that wrong of me as a mother of 3 to feels this way??????/I sometimes feel like I can not breathe. I am so overwhelmed with everything we have to do for Zayne. And that makes me feel as if I am a bad mom. I catch myself yelling at my other two kids, 2,7 yrs old. knowing they do not understand what I am feeling or going through as well. And my husband...God knows I love him with all I have..t has been tough o us too. The mariage goes up and down, and I feel as if he does not understand me. And that urks me sometimes, and makes me so angry with him.Am i alone, Does all of this mean I am just being selfish. Or is this a feeling that happens to us all. I want to be the best mom I can be for my children. They depend on m..but I feel like I am starting to fall apart in someways.i do not mean to dump this on any of you, Iknow all of you have your own's life test to handle, but i just wanted my "Group" to know the true feelings of this mom. An maybe some advice or words of wisdom can help put my mind at ease, or just plain help what i am going through all together!I hope I did not upset any of you by this message...I am just a mom that feels like a basket caseThanks and Zayne(Bilateral Aural Atresia)hi shellymy daughter-in-law has 3 kids age 3 and under.my other daughter-in-law has 2 kids 2 and under.neither has any kids with health problems, let alone the incredible strain of the symptoms and conditions zaynie is experiencing with you.AND THEY FEEL EXACTLY AS YOU DO!i read with awe your postings replete with the love and care which you lavish on your family, including your husband.i think you are a superlative mom, and a wonderful loving, giving spouse, who, like the rest of us, like ALL of us, sometimes (often ? almost ALways?) feels a bit, well, overwhelmed!well...guess what?YOU'RE ENTITLED!you work non-stop, you have precious little feedback on a (simply put) often depressing situation with zaynie's day-to-day struggles, you balance 2 other human beings who are frail , demanding, and have a RIGHT to your love, and then...there's that MAN! he's only a little bit less than perfect, but you are ALWAYS there, always putting out superhuman BIG-TIME affection.me, i think you're AWESOME!a mom like you KNOW there's plenty of time to rest and lick her wounds, and feel sorry for herself... in 70 years in the GRAVE!right NOW there's too much to do making the indelible impression on the four precious lives around whom your world revolves. in time, all too little time, they will all become much more cognizant and appreciative of how you've carried on under adversity... but you don't need anyone else but yourself (and ok, well, maybe once in awhile, YOUR group) to KNOW for yourself just how critical you are in the lives, health and happiness of all of them!motherhood may not come heralded as such, but i think, honestly, it is its OWN reward.jack