Re: Stressed out and confused about the whole process

[Guest guest]

No, they only do the band. You will need to get the physical therapy

elsewhere.

Becky, repo mod

, repo grad

> >

> > My son is seven months this week. I've posted several times and I

> > just wanted to post again. It's a vent I guess. My son's doctor

> > had known since maybe 2 months that something was off with my

> son's

> > head. He noticed the tilt more than anything and mentioned it to

> > me. But he didn't do anything other than give me the instructions

> > to put his toys to the left and everything to the left, do this

> > muscle movement with his neck, and do tummy time. He continued to

> > say these things and said he would look for improvement at every

> > appointment. At every appointment he continued to see

> improvement.

> > Not that I didn't see a little improvement.

> >

> > By the time I got my son an appointment I was starting to feel

> that

> > he had improved. The doctor told me that once he sat up and

> rolled

> > over we would see improvement and we seemed to see a little. But

> he

> > never measured my son or checked his ears to see if they were

off.

> >

> > I made an appointment on my day off to see someone at Cranial

> > Technologies. I was told that my son did need a DOC band and that

> > his measurements were a 14 and they should be a 2 if normal. I'm

> > not sure of all the details exactly. They showed me visually that

> > his ears are off.

> >

> > It's absolutely heartbreaking to me. I thought I was going to go

> in

> > there and be told I was nuts for being there. That's the

> impression

> > my doctor was giving me. He said it was a southern thing and as

> > long as I gave him tummy time he would outgrow the problem.

> >

> > Now I'm struggling so hard to get his treatment started. We are

> > working with Cranial Technologies to do this. They said that my

> > son's insurance is out of network but will pay 70% after

> > deductible. If I went to Hanger it would be covered 90% after

> > deductible.

> >

> > I scheduled to see someone at Hanger but after reading on the

> files

> > here I feel confused. I am now hoping that I'm doing the right

> > thing. I've cancelled with Hanger because I don't have all the

> time

> > in the world to be taking off to go to an appointment if I'm

going

> > to go with someone else. Hopefully I'm right in the idea that

> > Cranial should have more experience since they deal with this

> > problem and these problems only. But I can only stop and think

> that

> > I could be making a mistake.

> >

> > And then my doctor has written a prescription but not a letter of

> > medical necessity which MedCost requires. I've called and they

> > refaxed over a letter which wasn't detailed enough. So Cranial is

> > trying again. But he will be seven months this week. That means

> it

> > will take a week to two to get approval and then casting, then

two

> > weeks to get the darn helmet. It's so frustrating. I could go

> > ahead and do the process without insurance approval. I'm so

> > conflicted.

> >

> > And I'm scared that he will end up messed up because I missed

> > something or didn't go fast enough. Did everyone feel this way in

> > the beginning? Does this feelling get better?

> >

> > I don't know if Cranial does physical therapy and if he needs it.

> I

> > don't know much since Cranial is leading me here and his doctor

> > could care less. How could a doctor be so careless and

> > thoughtless. I guess he really doesn't understand. It makes me

> so

> > upset, angry, and hurt.

> >

> > I mean what will happen if the ears don't become aligned. Will he

> > suffer? Will it ruin his chances at being a normal kid? You

> can't

> > tell it from looking but it could hurt him if he needs glasses or

> it

> > could hurt his teeth.

> >

> > Anyway, thanks for being there and just letting me get this out.

> > I'm so stressed and I just don't know what to do.

> >

>

>

>

>

>

>

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