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just need to vent a little. we received anna graces (age 3, leighs)

dx 1 1/2 years ago. it took awhile to come to grips with it, but we

have such a supportive network of family and friends which helped a

lot. knowing what could lie ahead (prognosis) for anna grace has

always been in my mind, but i have managed to be positive and enjoy

every moment.

anyway, all three of my kids came down with strep on monday. my

boys are doing fine, but of course, anna grace is really sick. very

lethargic, high fever, very little interest in anything.

the reason i feel so sad, is b/c we just saw a new genetic doctor,

(who i really liked) but talked with us again for what the future

holds................so needless to say.............with the doctor

visit and anna grace being sick, my mind can't help but think of how

much time my baby girl has.

thanks for listening,

bethany

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