New to this

[Guest guest]

> I have a 7 y/o with Asperger's and I am completely new to all of

> the diet info and enzyme info. Could anyone brief me on it and/or

> recommend a good basic website or book? Thanks!

LOL how can I NOT reply to this message!!

You can start with my site [gee, no self-promotion here, is there????]

http://home.pacbell.net/cscomp/dmain.htm

Go to " parent information " page. Then if you want to look into diet

and supplements , you would choose page 3 " biological

information " . I have a lot of information and links there.

You can also read my AS Recovery Story, on the " Stories of Recovery "

link from my main page.

Good luck.

Dana

[Guest guest]

In a message dated 12/12/01 10:13:42 AM Eastern Standard Time,

madmom53151@... writes:

<< I have a 7 y/o with Asperger's and I am completely new to all of

the diet info and enzyme info. Could anyone brief me on it and/or

recommend a good basic website or book? Thanks!

>>

Hi. I can highly recommend the following website, which will give you a

comprehensive understanding of the GFCF diet and why it works for so many

ASD, PDD, Aspergers, ADD, ADHD, etc. kids:

www.GFCFdiet.com

You are in the right place for getting help for your son. Best of luck to

you!!!

[Guest guest]

> I have a 7 y/o with Asperger's and I am completely new to all of

> the diet info and enzyme info. Could anyone brief me on it and/or

> recommend a good basic website or book? Thanks!

There is a good FAQ section on enzymes at:

http://www.houstonni.com/pages/enzyme_faq.html

or www.enzymeuniversity.com

I will send you some documents from the Files section to get you

started. Glad you are here.

.

[Guest guest]

> In a message dated 12/12/01 10:13:42 AM Eastern Standard Time,

> madmom53151@y... writes:

>

> << I have a 7 y/o with Asperger's and I am completely new to all of

> the diet info and enzyme info. Could anyone brief me on it and/or

> recommend a good basic website or book? Thanks!

> >>

>

> Hi. I can highly recommend the following website, which will give

you a

> comprehensive understanding of the GFCF diet and why it works for

so many

> ASD, PDD, Aspergers, ADD, ADHD, etc. kids:

>

> www.GFCFdiet.com

>

> You are in the right place for getting help for your son. Best of

luck to

> you!!!

Thanks for the info. I just went on the website. Molly

>

[Guest guest]

> Hi. I'm new to all this. We just started the enzymes a couple of

days

> ago. I would love to hear from parents with older non-verbal kids to

> get their experiences. My son is 10. Also, what is GSE? I want to

> start ALA after the enzymes and someone posted that GSE be given

> before ALA. Thanks, Nina

My son was nonverbal until diet, then enzymes, then chelation. He

started talking basically at age 4. Here is his story.

http://home.pacbell.net/cscomp/myson.htm

GSE is grapefruit seed extract, it kills yeast, which should be under

control before you begin chelation, especially with ALA, because ALA

can aggravate a yeast issue.

My chelation update tomorrow will give you more chelation/yeast info.

Dana

[Guest guest]

Hi Dana, what brand of GSE did/do you use and how much would you give to a 7

year old

Cheers H

[ ] Re: new to this

> Hi. I'm new to all this. We just started the enzymes a couple of

days

> ago. I would love to hear from parents with older non-verbal kids to

> get their experiences. My son is 10. Also, what is GSE? I want to

> start ALA after the enzymes and someone posted that GSE be given

> before ALA. Thanks, Nina

My son was nonverbal until diet, then enzymes, then chelation. He

started talking basically at age 4. Here is his story.

http://home.pacbell.net/cscomp/myson.htm

GSE is grapefruit seed extract, it kills yeast, which should be under

control before you begin chelation, especially with ALA, because ALA

can aggravate a yeast issue.

My chelation update tomorrow will give you more chelation/yeast info.

Dana

[Guest guest]

Dana:

I am also considering using GSE in liquid form -- in fact, I just bought the

kind you mentioned in your post today -- but I'm very concerned about the

high phenol issue. Do you do anything to counteract the phenol reaction?

Kris

[Guest guest]

> Hi Dana, what brand of GSE did/do you use and how much would you

give to a 7 year old

> Cheers H

NutriBiotic, in a bottle, from health food store. My son is almost

age 6, weighs 50 pounds. I give him 3 drops in the morning, 2 drops

at lunch, 1 drop at dinner. It is high phenol, so I taper off as the

day progresses. If his yeast is getting worse, I add one drop to each

of those times.

Dana

[Guest guest]

> Dana:

>

> I am also considering using GSE in liquid form -- in fact, I just

bought the

> kind you mentioned in your post today -- but I'm very concerned

about the

> high phenol issue. Do you do anything to counteract the phenol

reaction?

>

I give more drops in the morning than I do at night, to avoid as

much as possible the phenol issue. When I first gave GSE, it made my

son hyper on just one drop in the morning. But now with chelation,

this reaction is significantly reduced. He has a yeast issue [again],

which makes him hyper, so I figure any phenol hyper effect would be

counteracting the yeast hyper effect, so trading one hyper for

another. I gave 4 drops yesterday morning, 3 at lunch, 3 at dinner,

and he was actually less hyper than he was the day before when the

yeast flared again.

His phenol/hyper issues are reducing with chelation, so that is also

good. But I would recommend you try it, one drop in the morning to

start, and see how your son tolerates it and what his reaction might

be. Or you can try epsom salt baths or something else like that.

Dana

[Guest guest]

Hi, well about 1 month ago my then 2 mth old daughter Emme was

diagnosed with plagiocephaly + torticollis. We have had her in therapy

for 2 weeks for the torticollis. Today the terapist mentioned she

wanted to refer us she thought we should go ahead with the doc band,

plus wants our daughter tested for other neurological issues. First

off...neurological issues..that can be tested at 2 months??? Second, I

have this overwhelming feeling of guilt that this is somehow my

fault...and that I am such a bad parent! I have a 2 yr old as well and

when she was my daughters age we held her 24/7..well with Emme being

the second child she definetly isn't held 24/7 although I thought I

was holding her a fair amount..now I feel like I should have been

holding her more. My pediatrician said the torticollis was congenital,

bu the plagiocephaly..that isn't right? I have no clue this was all

just thrown upon me in the past few weeks. Can anyone offer words of

encouragement or advice??

Thanks so much-

[Guest guest]

Hi

My son was fitted with his just over a week ago at 5.5 months. I was really nervous that he was going to be really disrupted/ not settle to sleep etc. Actually, we have found the opposite and he has slept soundly through the night and napped brilliantly since he first had it on. He only seems to fret a little for about a minute after we first put it on after cleaning it. Otherwise he is totally comfortable. Obviously each baby is different but I have heard from a lot of parents that young babies seem to adapt really quickly.

Our band is pre decorated so no ideas there. I am so pleased we have Dan in a helmet. He went from 14mm assymetry to 8mm in the first week! 5-6 months is definitely the best time to catch them.

Good luck tonight x

From: rkks1 <rkks1@...>Subject: new to thisPlagiocephaly Date: Wednesday, July 15, 2009, 1:25 PM

my 4 year old should have had one but his dr. at the time didnt think he did and said he would grown out of it, well he still has a significant flat spot and now my 5 month old is getting one today, what should i expect from him? will he mind it at all, will sleeping be hell tonight and for the next few nights? should he be ok and not notice it? aslso i would like to decorate it anyone have tips for me on what to buy for his helmet?let me know thanks

[Guest guest]

Our 5.5 month old adjusted beautifully to his DOCband. Didn't skip a beat. I

will admit his first night was rough, but we think that had more to do with his

acid reflux, as we had forgotten his medicine that night. (Guess we had our

minds on plagio and helmets that night and not on reflux!) Anyway, other than

that one rough night, he's done great. Doesn't ever seem to even notice when the

helmet is on. It was most definitely a bigger adjustment for us than for him.

On decorating...we opted to use stickers instead of painting it, after we talked

to a few people who said the paint chips and has to be touched up frequently.

We've had fun with the stickers, since we can change them without much effort.

We took a trip to our local scrapbook store and had fun picking them out. I

found some great stickers... " Gel Candy " ...that go on easily and are flexible, so

they lay nice and smooth on the curves of the band. The larger stickers worked

great; however, the little stickers (stars, in this case) came off pretty

easily, which I didn't realize until a day or two into it. I took all the little

stickers off immediately...after I found a couple of them stuck to my son's

blanket. I was afraid he might swallow them. Anyway, the larger stickers were

great...very sticky. But I'd steer clear of the little ones just to be safe.

Good luck! I bet your little one will do just fine!

Jill

Cade's mom, 6 mo, DOCband 6/18/09

Texas

>

> my 4 year old should have had one but his dr. at the time didnt think he did

and said he would grown out of it, well he still has a significant flat spot and

now my 5 month old is getting one today, what should i expect from him? will he

mind it at all, will sleeping be hell tonight and for the next few nights?

should he be ok and not notice it? aslso i would like to decorate it anyone have

tips for me on what to buy for his helmet?

>

> let me know thanks

>

[Guest guest]

Hi Cari,

I can't really answer either of your questions because we didn't get insurance coverage and we got a band that was already decorated (STARband).

I can tell you that it will probably not be as bad as you are thinking. At your son's very young age, he will not be in the band very long. I'm guessing a couple months at the most. Most of the babies also don't seem to mind it. And, as you can see, many of them also look quite cute. More than likely, you'll be totally used to it in a couple of weeks. My daughter was older (14.5 months) so she had to wear it for 6 months, but we could have continued to go longer. We were so used to it that it would have been no big deal.

Insurance companies can be a hassle, although some people have gotten coverage without one. You'll have to see. Others have appealed and won. We decided not to appeal because we didn't get coverage due to going with an out of network company. It was our choice not to wait the extra month to get her in to a Hanger band.

This group is a great resource. Please continue to ask questions as they come up.

, mom to , 23 months

STARband grad May 2009 CST currently

land

New to This

Hi,My son's Pediatrician referred us to Cranial Tech at his 4 month appointment on Tuesday. We have his evaluation in 2 weeks, but I can allready tell from looking at the before pictures on the cranial tech website that he will need the helmet. He looks like their examples. These past few days have been like a roller coaster, and I'm trying to keep from crying as much as possible, but it's hard!Anyways, I'm going to pull it together now. I actually have two questions for anyone who can answer them. How do most insurance companies few this procedure? For some reason our company won't tell us if they will cover the band until after he has it. We will definitely be getting it either way; I would just like to know what I can expect. On a lighter note, how do you make the bands look so cute? I see many of them that look like they've been painted or have stickers on them. Do they come that way? If not, what is safe to put on them? Thanks for any help that you can give! -Cari