Re: Pspriasis, New Drug

[Guest guest]

Thank you so much, Sue. You have touched on several of my concerns and am not so

sure I am ready to pursue the Embrel. Don't wan't to cause myself any further

medical problems. And though my psoriasis is not pleasant, it is also as bad as

it could be. I'm also not sure what the long term implications might be. It's

one thing if you have to take something like this for reasons such as your;s,

that can be life threatening, where as you say it's the lesser of two evils, but

my psoriasis is not life threatening, just ugly and damn uncomfortable.

Thanks again for your in-put. I think I'm going to put it off and go with the

light box for awhile.

Robin

smginleyrn@... wrote:

Robin,

You can go here for more information: http://www.enbrel.com/index.jsp

I am on a similar drug, called Remicade. Both of these are considered to be

TNF (tumor necrosis factor) inhibitors or anti-TNF drugs. Mine needs to be

given IV. I have not ever experienced any side effects, but this is not true

for all people. Some actually have some pretty severe reactions. Most

important side effect is higher risk for infection and they have been finding a

correlation in of worsening of congestive heart failure in those with cardiac

problems. Also other kinds of drugs may or may not be dangerous to take with

it. I

would not take it myself, except that the Crohn's puts me at a much higher

risk for intestinal/arterial ruptures due to VEDS, so I do it.......lesser of

two evils so to speak. I have noticed that the more inflammation I have going

on in the intestines and other places, the more dissections I have, so as far

as my GI doc is concerned this is most important. I guess what bothers me most

is there are really no long term studies on what these types of drugs do.

FDA approved based on eight week clinical trials.

I have a friend I met when we were both getting our Remicade treatment...he

was receiving it for Psoriasis. He had a bad reaction and had to stop it, and

they then put him on Enbrel. I seen him at the store recently and he told me

it took it longer to work, but it is working really good. He is older and

seems to tolerate pretty well. He also has a pretty severe case too.....

So, I guess there is probably a lot to consider. Go look at the site and see

what you think. If there is any chance of using the sunbox you might want to

try that first. Hope this helps. Take care.

Hugs,

Sue

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