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Re: Trying to find help

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The thing that helped me the most, other than the mito cocktail is Lamictal.

It has improved my muscle cramps and myoclonus. I also have Quinine to take

when I get some cramping as this usually adds to many episodes of cramps.

laurie

>

> Reply-To:

> Date: Fri, 20 Aug 2004 22:20:11 -0700 (PDT)

> To:

> Subject: Trying to find help

>

> I am going for my muscle biopsy on September 22. In the mean time, is there

> anything I can do or take to help alleviate my symptoms before then. My

> doctor is leaning heavily towards a mito disorder and everything that I have

> looked up points that way also. But my doc has had me on several different

> medicines topamax (which gave me kidney stones), neurontin (which made me

> looney), bextra now which is an anti-imflammatory (and note it does nothing

> for the twithces and cramps I have been having).

>

> I just wrapped up 5 months of physical therapy, but I have had several

> episodes in the past few weeks.

>

> If someone can help let me know.

>

> Thanks,

>

>

>

>

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