Re: hi this is holly its been aalloonngg time since Ive been on this mail box

[Guest guest]

Holly

I'm glad to see you back. I will think of you as you deal with things.

laurie

> From: Noelshep247@...

> Reply-To:

> Date: Mon, 23 Aug 2004 13:40:24 EDT

> To:

> Subject: hi this is holly its been aalloonngg time since Ive been on

> this mail box

>

> I dot know if you will remember me my name is Holly Sheppard, I have a

> metabolic disorder. still not diagnoesed whic one. its been 6 years, for the

> first 5

> years I was in horific pain had to use a wheel chair, but now I went off all

> the drugs they had me on dor pain exept 2 oxi per day a muscle relaxw\ers,

> which by my doctors say that my muscles are just so bound up, they spasm and

> like

> then they are rock hard like there stuck in a spasm and wont let go. Im out

> of the wheelchair, but I also stay away from things and activities the would

> make me have to walk far. Im taking high doses of magnisium and enzyme

> complex. the mag. is exellent for my muscles. and the enzymes are good for

> braking

> down the foos process. But my problem right now is my stomach has swollen up

> to the size of a 7 month pregnant woman , and its not from constipation. the

> magnisium makes you go. ALOT. which is good becauce that used to be a big

> problem for me.. I dot have a mito doc my regular doc doesnt know anything

> about

> mito or any other metabolic disorders. I guess its time I come back to the

> group

> I really couls use some cheering up. Holly Sheppard this is my

> private e-mail hnoels@... so if you are answering back to any of my

> questions

> us hnoels@... I will never find anything in my other address noelshep247.

> which is where im at now. there are hundreds od e-mails per day and would

> never be able to go through them all. thanks....

>

>

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[Guest guest]

-hI HOLLY, You've probably had all sorts of responses to your question

by now (I have been away for a few days) but I just wanted to ask if

you've considered a GI motility disorder, which is all too often part

of mito, as a cause of your gastric distention. This is a common sign

of motility disorders, as well as nausea, vomiting, early saity, abd.

pain, constipation, diarrhea. There are drugs that you can take to

help the situation, although not all people respond to them (I'm

lucky, I do), Celia-

- In , Noelshep247@c... wrote:

> I dot know if you will remember me my name is Holly Sheppard, I have a

> metabolic disorder. still not diagnoesed whic one. its been 6 years,

for the first 5

> years I was in horific pain had to use a wheel chair, but now I went

off all

> the drugs they had me on dor pain exept 2 oxi per day a muscle

relaxw\ers,

> which by my doctors say that my muscles are just so bound up, they

spasm and like

> then they are rock hard like there stuck in a spasm and wont let go.

Im out

> of the wheelchair, but I also stay away from things and activities

the would

> make me have to walk far. Im taking high doses of magnisium and enzyme

> complex. the mag. is exellent for my muscles. and the enzymes are

good for braking

> down the foos process. But my problem right now is my stomach has

swollen up

> to the size of a 7 month pregnant woman , and its not from

constipation. the

> magnisium makes you go. ALOT. which is good becauce that used to be

a big

> problem for me.. I dot have a mito doc my regular doc doesnt know

anything about

> mito or any other metabolic disorders. I guess its time I come back

to the group

> I really couls use some cheering up. Holly Sheppard this

is my

> private e-mail hnoels@c... so if you are answering back to any of my

questions

> us hnoels@c... I will never find anything in my other address

noelshep247.

> which is where im at now. there are hundreds od e-mails per day and

would

> never be able to go through them all. thanks....