Re: Janie-Severe Brachy question

[Guest guest]

Hi Janie and Bobbi,

my daughter also has severe brachy, and got her helmet last week - 2

days after she turned 5 months. Her cranial index is 100%. I looked at

both and 's photos - they are both adorable. I haven't

posted Sydney's yet.

Her starband is open at the top - but the opening is toward the front

so the top of her head is covered at the back. I would love to see

's before and after picks when you're done. Hopefully they'll all

have nice heads before we know it :-)

-christine

mom to Sydney - brachy - 5mo - starband 5/31/06

> I just read your second post about having his second band coming to

> an end soon. My son got his DOC band 2 days before he turned 6

> months. His pics are at the end of the N album ( H) if you

> want to take a look to compare to you son. Thanks again for your

> help.

>

> Bobbi H.

> 7 months/tort/brachy/plagio

> DOC band 5/8/06

> PHX

>

>

> >

> > Janie, I read your post and my son also has severe brachy. His

> > cephalic index is 95%. I was just wondering where you are in the

> > process and what results you have seen so far if you wouldn't mind

> > sharing. He has been in his DOC band 4 weeks. I noticed at one

> > week the bottom portion where his occipital bone is has popped out

> > across the back. But since then not too much, excpet maybe that

> > popped out a little more. The top back is still very flat. I

> know

> > brachy is very hard to correct. I was just wondering about your

> > experience. Thanks in advance.

> >

> > Bobbi H.

> > tort/brachy/plagio

> > DOC band 5/8/06

> > PHX

> >

> >

> >

> > > My son had severe brachy that his pedi said at 3 mos and at 6

> mos

> > would round out when he sits up. I didn't believe her and wanted

> a

> > second opinion from a neurologist and a neursurgeon. Boyh agreed

> > that he needed to have a band. I went to the Plagio clinic at

> > Children's Medical Center in Dallas. The did some measurement and

> > said that he was in range for a band. They wrote the RX and we

> went

> > to cranial tech to get a band. The whole process took about a

> month.

> > > Try to go to a neurosurgeon or a hospital that has a plagio

> > clinic.

> > >

> > > I hope this helps.

> > >

> > > Janie

> > >

>