Re: Janie-Severe Brachy question

[Guest guest]

's band looks great in the pics. He has beautiful blue eyes.

If you find out his cephalic index before and after DOC band #1 and

then maybe at the end of #2 that would be great. Just curious how

he has done by the numbers. Of course my concern is that Nate will

need another band and we are paying out of pocket. Oh well, it

really doesn't matter in the grand scheme. Lots of luck to you at

the end of the month.

Bobbi H.

7 months tor/brachy/plagio

DOC Band 5/8/06

PHX

>

> 's pics are on the 7th page of the J's. It's under P.

These were taken the third day he got his band on Nov. 24, 2005. My

husband painted the band and applied stickers to it.

>

> Janie

>

> " Janie P. " <rjjpencek@...> wrote:

> Bobbi,

>

> I looked at 's pics ( he sure is cute), but I will have to

look back at 's pics they took at CT, But I think my sons head

was higher and flatter that your son was.

> I will post bfore/after pics when they do the exit pics at the

end of June.

>

> Janie

>

> Bobbi <heybobbisox@...> wrote:

> I just read your second post about having his second band coming

to

> an end soon. My son got his DOC band 2 days before he turned 6

> months. His pics are at the end of the N album ( H) if you

> want to take a look to compare to you son. Thanks again for your

> help.

>

> Bobbi H.

> 7 months/tort/brachy/plagio

> DOC band 5/8/06

> PHX

>

>

> >

> > Janie, I read your post and my son also has severe brachy. His

> > cephalic index is 95%. I was just wondering where you are in

the

> > process and what results you have seen so far if you wouldn't

mind

> > sharing. He has been in his DOC band 4 weeks. I noticed at one

> > week the bottom portion where his occipital bone is has popped

out

> > across the back. But since then not too much, excpet maybe that

> > popped out a little more. The top back is still very flat. I

> know

> > brachy is very hard to correct. I was just wondering about your

> > experience. Thanks in advance.

> >

> > Bobbi H.

> > tort/brachy/plagio

> > DOC band 5/8/06

> > PHX

> >

> >

> >

> > > My son had severe brachy that his pedi said at 3 mos and at 6

> mos

> > would round out when he sits up. I didn't believe her and

wanted

> a

> > second opinion from a neurologist and a neursurgeon. Boyh

agreed

> > that he needed to have a band. I went to the Plagio clinic at

> > Children's Medical Center in Dallas. The did some measurement

and

> > said that he was in range for a band. They wrote the RX and we

> went

> > to cranial tech to get a band. The whole process took about a

> month.

> > > Try to go to a neurosurgeon or a hospital that has a plagio

> > clinic.

> > >

> > > I hope this helps.

> > >

> > > Janie

> > >

> > > carolyn fox <cdfox@> wrote:

> > > You're story breaks my heart. I'm very sorry to hear that

> > you've had to

> > > live with plagio. Please continue to post here so others my

> > benefit from

> > > your plagio. Best.

> > >

> > > Carolyn in NYC

> > > Mum to Malcolm - 7 mos - Doc band 3/27, Doc band #2 6/9

> > >

> > > Re: Will it really go away on its own?

> > >

> > > Hi,

> > >

> > > I'm an adult with plagio. The docs told my parents the same

> thing

> > > when I was an infant. They also said that if it didnt go away

on

> > > it's own, we could pursue surgery (if that's what I chose to

> do),

> > > when I was done growing.

> > >

> > > I've lived with the plagio my whole life. It is not something

I

> > > chose for myself, and it is not something I've enjoyed dealing

> > with.

> > > I too wish the docs would have been more proactive with my

> > > situation. I grew up with the same hairstyle in hopes to hide

> the

> > > shape of my head from the world. Are you kidding me? You can't

> > make

> > > the shape of your head any less conspicuous. I grew very tired

> of

> > > hiding behind my hair. With that mentality, I also hid away

from

> > > other activities in life that I would enjoy.

> > >

> > > I say, this is your child, this is your life, this is your

> > decision.

> > > Do not allow the doctors to dictate what you know in your

heart

> is

> > > best for your child. For whatever reason, they are being

> > > unaccommodating with your needs. Keep persisting, and be firm.

> > They

> > > must comply once they see how strongly you feel about it.

> > Eventually

> > > you will find a doc who is compassionate and understanding of

> your

> > > situation. Dont give up until you feel you have exhausted all

> your

> > > resources.

> > >

> > > Best wishes,

> > >

> > >

> > >

> > > >

> > > > Hi, i'm new to this whole group thing so if someone already

> > asked

> > > the

> > > > question, please let me know where I can find the answer.

> > > >

> > > > My daughter is four months old has moderate

plagio.

> I

> > > have

> > > > been taking her to the doctor regarding her head shape since

> she

> > > was 6

> > > > weeks old and they keep telling me that it will go away.

Well

> it

> > > > hasen't and it doesn't seem to be getting any better. I keep

> > going

> > > to

> > > > different doctors to see if they will give me a different

> > response

> > > and

> > > > they all have the same answer. " Lots of tummy time,

> reposintion,

> > > and

> > > > it will all go away after she starts to sit up on her own " .

> The

> > > whole

> > > > tummy time thing isn't working because she can only stand it

> for

> > > about

> > > > 15 min at a time before she starts to cry uncontrolably. I

> feel

> > > like I

> > > > am the only one concerned about my babys head shape. One

> doctor

> > > even

> > > > had the nerve to tell me that if it didn't go away it was

okay

> > > because

> > > > I had a girl and her hair could cover it up. What a jerk!

Oh,

> > and

> > > to

> > > > top it all off I go to a miltary hospital.... not the best

> > service

> > > in

> > > > the world. What can I do to make them take action??

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > For more plagio info