Worried helmet appt too late

[Guest guest]

We went to see the specialist today for a follow up appt and our 6 mos

old will have to have a helmet. We tried repo for 2 mos with some

success, but he recommends that we proceed with the helmet to avoid any

further potential growth in the forehead area. We can't get in to get

the casting for another week so with the fitting two weeks later she

won't be able to start wearing it for another month! I am afraid that

means we will miss out on any growth spurts and it will mean a longer

time in the helmet. Has anyone started the band at 7 mos and seen

significant improvement early? The doc seems to think maybe 4 mos? i

am worried about how the whole sleeping situation will be. Any

suggestions on what to anticipate? Its to have found this site and to

know that others are going through the same situation.

Amy Black

Nashville, TN

Molly - 6 mos

[Guest guest]

Hi Amy, try and relax. It is very common for it to take several weeks

to a month from the Rx to actually get the helmet. the earlier the

better is true because young babies grow the most, but you are still

starting at a good age. Your baby should do fine. My daughter started

with her band at 5 mo, but most babies start later. 7 mo is still on

the early side because unfortunately some peds are still saying " it

will round out on its own " .

be glad your doc is supportive of banding and enjoy your little one's

head for the next few weeks. do what you can to keep her off her head.

sleeping is hard, but you can minimize time in car seat or put a

blanket under one shoulder to encourage her head to stay off the flat

spot & all the other repo tips you can fit in.

you can't really predict when any particular baby will grow. my

daughter had a big spurt right around 5 mo, then it was little by

little until another spurt at around 9 mo - which surprised her ortho

because we got some extra correction at the end.

take care.

-christine

mom to sydney/ 10.5 mo/ starband grad 10-06

>

> We went to see the specialist today for a follow up appt and our 6 mos

> old will have to have a helmet. We tried repo for 2 mos with some

> success, but he recommends that we proceed with the helmet to avoid any

> further potential growth in the forehead area. We can't get in to get

> the casting for another week so with the fitting two weeks later she

> won't be able to start wearing it for another month! I am afraid that

> means we will miss out on any growth spurts and it will mean a longer

> time in the helmet. Has anyone started the band at 7 mos and seen

> significant improvement early? The doc seems to think maybe 4 mos? i

> am worried about how the whole sleeping situation will be. Any

> suggestions on what to anticipate? Its to have found this site and to

> know that others are going through the same situation.

>

> Amy Black

> Nashville, TN

> Molly - 6 mos

>

[Guest guest]

My dd was scanned and got her band at 6 mo. We saw wonderful improvement and alot of growth - she is now 11 mo. and her growth has really slowed down. I think 7 mo. is OK - better than 12 mo!!!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

Hello. My Daughter didn't start wearing her band until she was 7mo,

1wk and she still got great correction in just 11 weeks. It all

just depends on the severity of the plagio and also how much growth

they have while banded. My Daughter had 14mm of asymmetry and

corrected down to just 4mm. There have been MANY other babies on

here who were also banded after 7 mo and got great correction in

just 3-4 mo.

Good luck and keep us updated.

Jen

(27.5 mo), tort resolved, Hanger Band Grad

(4.75 years)

>

> We went to see the specialist today for a follow up appt and our 6

mos

> old will have to have a helmet. We tried repo for 2 mos with some

> success, but he recommends that we proceed with the helmet to

avoid any

> further potential growth in the forehead area. We can't get in to

get

> the casting for another week so with the fitting two weeks later

she

> won't be able to start wearing it for another month! I am afraid

that

> means we will miss out on any growth spurts and it will mean a

longer

> time in the helmet. Has anyone started the band at 7 mos and seen

> significant improvement early? The doc seems to think maybe 4

mos? i

> am worried about how the whole sleeping situation will be. Any

> suggestions on what to anticipate? Its to have found this site

and to

> know that others are going through the same situation.

>

> Amy Black

> Nashville, TN

> Molly - 6 mos

>

[Guest guest]

--Hi Amy,

That is still not too late to start the helmet. Jenna got her helmet

at 6 mos and we had really good correction that first month, but

between 7 and 8 mos the progress was amazing. She now has this

beautiful round head we have just a little spot that still needs to

come out but hopefully by Christmas she will be finished. But you

are still in the window of opportunity for good correction. Good

luck and keep us posted on the progress.

Tina Mama to Jenna 8 mos

- In Plagiocephaly , " mm51906 " <sacblack@...> wrote:

>

> We went to see the specialist today for a follow up appt and our 6

mos

> old will have to have a helmet. We tried repo for 2 mos with some

> success, but he recommends that we proceed with the helmet to avoid

any

> further potential growth in the forehead area. We can't get in to

get

> the casting for another week so with the fitting two weeks later

she

> won't be able to start wearing it for another month! I am afraid

that

> means we will miss out on any growth spurts and it will mean a

longer

> time in the helmet. Has anyone started the band at 7 mos and seen

> significant improvement early? The doc seems to think maybe 4

mos? i

> am worried about how the whole sleeping situation will be. Any

> suggestions on what to anticipate? Its to have found this site and

to

> know that others are going through the same situation.

>

> Amy Black

> Nashville, TN

> Molly - 6 mos

>

[Guest guest]

Amy -

My daughter was on the exact same schedule as you. She was diagnosed at 6

months and started wearing her DOC band at 7 months. That was 2.5 months

ago and she has made great progress. She was SEVERE when she started (at

101% cephalix index and some assymetry as well). She now is at like 95%

with no assymetry (basically she went from 5 standard deviations to 3

standard deviations in the 2.5 month period). We were just looking at her

photos with the ortho this morning and there is SIGNIFICANT improvement.

She started on her second band today and we anticipate that she will need to

wear it for about 2 months, putting her at 4-5 month total treatment time.

Are you getting a DOC band? One thing to note is that there is a difference

between how long treatment is and how long they can wear their bands (this

was one thing that confused me at the beginning). They told me that she

would be in the band for 10-12 weeks at her age (7 months). This was

correct, however, she will need to be treated for longer than that (hence

the second band).

Soooo, don't worry. 7 months is definately not too late to start and you

will get great results.

Good luck!

Kerily (and Keira, DOC banded on 9/13)

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