Re: Stressed out and confused about the whole process

[Guest guest]

We switched to a DOCBand at 12 months and our location (Cranial

Therapies in Toluca Lake, CA, not Cranial Technologies) did do an

evaluation and gave us a handout sheet with stretches, but we also

got a referral to a separate PT through our pediatrician. I'm VERY

grateful for their evaluation since I'd been asking the doctors for

months if he should be doing PT since he couldn't turn left very

well. The PT confirmed the stretches the DOCband ortho had given us

were correct and gave us some other exercises to work on since he'd

started to compensate for the tort in other ways.

Sheila, mom to , 19 months, DOCband

> > >

> > > My son is seven months this week. I've posted several times

and I

> > > just wanted to post again. It's a vent I guess. My son's

doctor

> > > had known since maybe 2 months that something was off with my

> > son's

> > > head. He noticed the tilt more than anything and mentioned it

to

> > > me. But he didn't do anything other than give me the

instructions

> > > to put his toys to the left and everything to the left, do

this

> > > muscle movement with his neck, and do tummy time. He continued

to

> > > say these things and said he would look for improvement at

every

> > > appointment. At every appointment he continued to see

> > improvement.

> > > Not that I didn't see a little improvement.

> > >

> > > By the time I got my son an appointment I was starting to feel

> > that

> > > he had improved. The doctor told me that once he sat up and

> > rolled

> > > over we would see improvement and we seemed to see a little.

But

> > he

> > > never measured my son or checked his ears to see if they were

> off.

> > >

> > > I made an appointment on my day off to see someone at Cranial

> > > Technologies. I was told that my son did need a DOC band and

that

> > > his measurements were a 14 and they should be a 2 if normal.

I'm

> > > not sure of all the details exactly. They showed me visually

that

> > > his ears are off.

> > >

> > > It's absolutely heartbreaking to me. I thought I was going to

go

> > in

> > > there and be told I was nuts for being there. That's the

> > impression

> > > my doctor was giving me. He said it was a southern thing and

as

> > > long as I gave him tummy time he would outgrow the problem.

> > >

> > > Now I'm struggling so hard to get his treatment started. We

are

> > > working with Cranial Technologies to do this. They said that

my

> > > son's insurance is out of network but will pay 70% after

> > > deductible. If I went to Hanger it would be covered 90% after

> > > deductible.

> > >

> > > I scheduled to see someone at Hanger but after reading on the

> > files

> > > here I feel confused. I am now hoping that I'm doing the right

> > > thing. I've cancelled with Hanger because I don't have all the

> > time

> > > in the world to be taking off to go to an appointment if I'm

> going

> > > to go with someone else. Hopefully I'm right in the idea that

> > > Cranial should have more experience since they deal with this

> > > problem and these problems only. But I can only stop and think

> > that

> > > I could be making a mistake.

> > >

> > > And then my doctor has written a prescription but not a letter

of

> > > medical necessity which MedCost requires. I've called and they

> > > refaxed over a letter which wasn't detailed enough. So Cranial

is

> > > trying again. But he will be seven months this week. That

means

> > it

> > > will take a week to two to get approval and then casting, then

> two

> > > weeks to get the darn helmet. It's so frustrating. I could go

> > > ahead and do the process without insurance approval. I'm so

> > > conflicted.

> > >

> > > And I'm scared that he will end up messed up because I missed

> > > something or didn't go fast enough. Did everyone feel this way

in

> > > the beginning? Does this feelling get better?

> > >

> > > I don't know if Cranial does physical therapy and if he needs

it.

> > I

> > > don't know much since Cranial is leading me here and his

doctor

> > > could care less. How could a doctor be so careless and

> > > thoughtless. I guess he really doesn't understand. It makes me

> > so

> > > upset, angry, and hurt.

> > >

> > > I mean what will happen if the ears don't become aligned. Will

he

> > > suffer? Will it ruin his chances at being a normal kid? You

> > can't

> > > tell it from looking but it could hurt him if he needs glasses

or

> > it

> > > could hurt his teeth.

> > >

> > > Anyway, thanks for being there and just letting me get this

out.

> > > I'm so stressed and I just don't know what to do.

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car " smell?

> > Check outnew cars at Autos.

> >

>