RE: /Bogdan

[Guest guest]

Hi

Steve!

Thanks

for your comment! šIt is so hard to make a decision, there are so many

things that I have to take into account. In any case there is a compromise -

with the quality, or with the pain, or with the risk of repeat, or with the

risk of psychological effects, or..., or... As much information I get

and as many surgeons I consult, the options augment and the decision become

harder. But I hope soon the quantity accumulations result the quality changesJ.

Best

to All!

-----Original

Message-----

From: P. Barrows

Sent: Friday, June 14, 2002 4:28 PM

To:

AtresiaMicrotia

Subject:

/Bogdan

Hi , the reason for

waiting until 14 for jaw surgery is bone growth.

The surgery itself may stunt the growth of the

jaw. There are surgeons here

in the states that are doing it much earlier now,

but with the possibility

of having to repeat the procedure again when the

child is older.

As Dr Nagata said growth again is the reason not

to intervene to early with

ear reconstruction. I my on experience being

" different " wasn't such a

problem until age 9 or so and even then it wasn't

to bad. The really bad

stuff didn't kick in until adolescence. So waiting

until the right time

medically shouldn't be to damaging to Bogdan

especially if he has access to

therapy if he needs it. (Growing up working poor

and Irish catholic therapy

was not even a consideration for me).

Best of luck

Steve Barrows

With Goldenhars syndrome

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