Temporarily Stop helmet : (

[Guest guest]

I spoke with Kaitlyn's craniofacial Dr. tonight and he said to

discontinue the helmet due to the optic nerves being elevated. We

will wait until they do an MRI on September 13th to see if it is okay

to continue with her helmet. I am sooo disappointed and I don't want

to see any regression since she has made such good progress. I sure

hope we can continue with her helmet after the MRI. Please keep her

in your prayers as we go forth with the MRI as the optic nerves being

elevated can indicate tumors, hydrocephalus, intracranial pressure, or

bleeding, none of which are good... I will prepare myself for

whatever the outcome is but I pray that they will find nothing of

concern in her MRI.

Thank You,

Naomi

[Guest guest]

Naomi! I sure will be praying! Will you get the results from the MRI on the 13th? Keep us posted! I am sure the wait is hard ~ Praying for you and Kaitlyn!

Pam<><

Temporarily Stop helmet : (

I spoke with Kaitlyn's craniofacial Dr. tonight and he said to discontinue the helmet due to the optic nerves being elevated. We will wait until they do an MRI on September 13th to see if it is okay to continue with her helmet. I am sooo disappointed and I don't want to see any regression since she has made such good progress. I sure hope we can continue with her helmet after the MRI. Please keep her in your prayers as we go forth with the MRI as the optic nerves being elevated can indicate tumors, hydrocephalus, intracranial pressure, or bleeding, none of which are good... I will prepare myself for whatever the outcome is but I pray that they will find nothing of concern in her MRI. Thank You, Naomi

[Guest guest]

Our thoughts and prayers are with you, sweetie. I know sometimes when it comes to our kids, it's sooooo easy to jump to worse case scenario in our heads, but try to keep yourself positive. We're all here for you!!! Candace, AZ mommy to Tiernan, 4 mos tort, plagion_kbarringer <naomibarringer@...> wrote: I spoke with Kaitlyn's craniofacial Dr. tonight and he said to discontinue the helmet due to the optic nerves being elevated. We will

wait until they do an MRI on September 13th to see if it is okay to continue with her helmet. I am sooo disappointed and I don't want to see any regression since she has made such good progress. I sure hope we can continue with her helmet after the MRI. Please keep her in your prayers as we go forth with the MRI as the optic nerves being elevated can indicate tumors, hydrocephalus, intracranial pressure, or bleeding, none of which are good... I will prepare myself for whatever the outcome is but I pray that they will find nothing of concern in her MRI. Thank You, Naomi

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[Guest guest]

Naomi, Just wanted to let you know Kaitlyn is in our thoughts and prayers. We hope the MRI shows the best possible outcome. & Colen_kbarringer <naomibarringer@...> wrote: I spoke with Kaitlyn's craniofacial Dr. tonight and he said to discontinue the helmet due to the optic nerves being elevated. We will wait until they do an MRI on September 13th to see if it is okay to continue with her helmet. I am sooo disappointed and I

don't want to see any regression since she has made such good progress. I sure hope we can continue with her helmet after the MRI. Please keep her in your prayers as we go forth with the MRI as the optic nerves being elevated can indicate tumors, hydrocephalus, intracranial pressure, or bleeding, none of which are good... I will prepare myself for whatever the outcome is but I pray that they will find nothing of concern in her MRI. Thank You, Naomi