Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Maggie- Don't be alarmed. Dr. Cohen just increased my IV dose to 6 grams a day which is twice the max. dose. When you are severely depleted it has to be given in extremely high doses to drive it back into the cells. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I'm on 6 grams so just a little more than that Maggie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Maggie, I have seen it higher. My daughter takes 6 a day so I wouldn't be concerned about this dose. I'd recommend that you increase it slowly, but other than that, it should be fine. I know there are other mito patients who take even more than this. Alice carnitor dosage Hi, Last week I had finally had my biopsy. The doctor put me on a higher dosage of carnitor (the amount being 6x what I had been taking!) I am supposed to take 6 -(330mg tablets) three times a day. What I'm wondering is -- if there's anyone else that's taking this high a dosage (I realize it's weight dependent). My pharmacist was alarmed when I filled the new order -- and said he's never seen this high of a dosage and wondered if it was correct (it's possible he's never seen a prescribed dosage in ANY amount, so I'm not sure how concerned I should be about this comment). Anyone? Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Alice, This would mean that I'm taking 18 pills a day. You've seen this? Thanks. Maggie > Maggie, > > I have seen it higher. My daughter takes 6 a day so I wouldn't be concerned about this dose. I'd recommend that you increase it slowly, but other than that, it should be fine. I know there are other mito patients who take even more than this. > > Alice > carnitor dosage > > > Hi, > Last week I had finally had my biopsy. The doctor put me on a > higher dosage of carnitor (the amount being 6x what I had been > taking!) I am supposed to take 6 -(330mg tablets) three times a day. > > What I'm wondering is -- if there's anyone else that's taking this > high a dosage (I realize it's weight dependent). My pharmacist was > alarmed when I filled the new order -- and said he's never seen this > high of a dosage and wondered if it was correct (it's possible he's > never seen a prescribed dosage in ANY amount, so I'm not sure how > concerned I should be about this comment). > > Anyone? > > Maggie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Whoops.. I read that wrong. I'm sorry. I don't know about that dose. Could the doctor have written it wrong? Is anyone taking 5940 mg. of Carnitor a day? Alice carnitor dosage > > > Hi, > Last week I had finally had my biopsy. The doctor put me on a > higher dosage of carnitor (the amount being 6x what I had been > taking!) I am supposed to take 6 -(330mg tablets) three times a day. > > What I'm wondering is -- if there's anyone else that's taking this > high a dosage (I realize it's weight dependent). My pharmacist was > alarmed when I filled the new order -- and said he's never seen this > high of a dosage and wondered if it was correct (it's possible he's > never seen a prescribed dosage in ANY amount, so I'm not sure how > concerned I should be about this comment). > > Anyone? > > Maggie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Thanks; that helps to know. I've just never seen anyone here mention such a huge dose. I hope you see a big increase in your energy! Maggie > Maggie- > > Don't be alarmed. Dr. Cohen just increased my IV dose to 6 grams a day > which is twice the max. dose. When you are severely depleted it has to be > given in extremely high doses to drive it back into the cells. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 9 pills a day (3 g) is the standard max recommended in the PDR entry and in the prescribing brochure from Sigma Tau, and this is what I take, but I have known CPT and carnitine deficiency patients who have taken as much as 7 g/day for limited length of time. You may have more GI distress on that high a dose, assuming this is oral and not IV (as in 's case). Barbara > > Maggie- > > > > Don't be alarmed. Dr. Cohen just increased my IV dose to 6 > grams a day > > which is twice the max. dose. When you are severely depleted it > has to be > > given in extremely high doses to drive it back into the cells. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I take 2 tablets three times a day and so does my daughter. whoewe2002 wrote: >Hi, >Last week I had finally had my biopsy. The doctor put me on a >higher dosage of carnitor (the amount being 6x what I had been >taking!) I am supposed to take 6 -(330mg tablets) three times a day. > >What I'm wondering is -- if there's anyone else that's taking this >high a dosage (I realize it's weight dependent). My pharmacist was >alarmed when I filled the new order -- and said he's never seen this >high of a dosage and wondered if it was correct (it's possible he's >never seen a prescribed dosage in ANY amount, so I'm not sure how >concerned I should be about this comment). > >Anyone? > >Maggie > > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Maggie I take 9 per day and have for many years. laurie > > Reply-To: > Date: Fri, 30 Jul 2004 14:02:44 -0600 > To: > > Subject: Re: carnitor dosage > > Maggie, > > I have seen it higher. My daughter takes 6 a day so I wouldn't be concerned > about this dose. I'd recommend that you increase it slowly, but other than > that, it should be fine. I know there are other mito patients who take even > more than this. > > Alice > carnitor dosage > > > Hi, > Last week I had finally had my biopsy. The doctor put me on a > higher dosage of carnitor (the amount being 6x what I had been > taking!) I am supposed to take 6 -(330mg tablets) three times a day. > > What I'm wondering is -- if there's anyone else that's taking this > high a dosage (I realize it's weight dependent). My pharmacist was > alarmed when I filled the new order -- and said he's never seen this > high of a dosage and wondered if it was correct (it's possible he's > never seen a prescribed dosage in ANY amount, so I'm not sure how > concerned I should be about this comment). > > Anyone? > > Maggie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Maggie I misread your post from the one I answered. I take 9 in a day, not 18. laurie > > Reply-To: > Date: Fri, 30 Jul 2004 19:58:53 -0000 > To: > Subject: carnitor dosage > > Hi, > Last week I had finally had my biopsy. The doctor put me on a > higher dosage of carnitor (the amount being 6x what I had been > taking!) I am supposed to take 6 -(330mg tablets) three times a day. > > What I'm wondering is -- if there's anyone else that's taking this > high a dosage (I realize it's weight dependent). My pharmacist was > alarmed when I filled the new order -- and said he's never seen this > high of a dosage and wondered if it was correct (it's possible he's > never seen a prescribed dosage in ANY amount, so I'm not sure how > concerned I should be about this comment). > > Anyone? > > Maggie > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 That would be double what I am supposed to take--I weigh 140 now but when the prescription was written last year I weighed 125. In November he also recommended my son take the three 330 mg tablets or 1000 mg 3 times a day. My son is 11 and weighs about 105. You might want to look into taking the liquid. 2 teaspoons is 1000 mg so you would need to take 4 teaspoons three times a day. It is a wierd cherry flavor that you can refrigerate but is not bad. I mixed it in choc milk for my son but someone else said they mixed it with apple juice and it tasted fine. Orange juice was bad though. Whatever you do--start and increase slowly. When I went to the liquid and also went to the dosage I was prescribed I had bad diahrear but once backed down and went up slowly am fine. Janet Sample carnitor dosage > > > > > > Hi, > > Last week I had finally had my biopsy. The doctor put me on a > > higher dosage of carnitor (the amount being 6x what I had been > > taking!) I am supposed to take 6 -(330mg tablets) three times a > day. > > > > What I'm wondering is -- if there's anyone else that's taking > this > > high a dosage (I realize it's weight dependent). My pharmacist > was > > alarmed when I filled the new order -- and said he's never seen > this > > high of a dosage and wondered if it was correct (it's possible > he's > > never seen a prescribed dosage in ANY amount, so I'm not sure > how > > concerned I should be about this comment). > > > > Anyone? > > > > Maggie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.