Re: Conference Goers - A Must Read

[Guest guest]

ALice,

I will be at the conference but will be unable to attend a Thursday

night get together. I have committed to attend the get together the

UMDF office planned. I bowed out of the discussion once I knew it was

being planned for Thursday night. Sorry, Shelby

> Thanks for the info, Ken.  Yes - we have held very nice Mitoldies get

> get togethers at each conference and I've managed to put them together

> being a distance away, but I won't be at this conference and Laurie

> has been actively working on the silent auction for months and needs

> to spent the time wrapping it all up for show time now so she

> shouldn't be trying to work on the get together. 

>

> Someone needs to come forward and say that they will make all the

> arrangements but first the group needs to know how many are really

> interested in this.  Everyone will need to be prepared to order and 

> pay for their own meals as of course as we don't have a Mitoldies

> budget.  Bringing in Pizza or subs seems to be a good solution and a

> room set aside to do this would be ideal of possible but if not, I

> think that the group is small enough to meet in someone's room. 

>

> Does anyone have the energy to do this?  The time is getting rather

> short now so we need to solve this today.   Are you planning to attend

> a Thursday night get together?   Will you offer to be in charge?

>

> Alice

>

>

>   Hi Alice,

>

>   I'm hoping to attend but it isn't a done deal yet.

>

>   Unfortunately, I don't have the time to get involved in making the

>   arrangements for the Thursday get together. I'm still working on

>   bringing things together for an appeal re: a disability pension

>   denial. (I use the time when the " brain-fog " has lifted to compile

>   more data)

>

>   It could take quite a bit time and some money (for phone calls) to

>   bring this together

>

>   I found the info on the hotel site itself. They apparently have a

>   number of meeting rooms that can accommodate 30, 500, and more.

>

>   A couple of things to consider: (1) the pizza shop closes at 8:00pm

>   (2) could the on site pizza shop handle a mass order of pizzas?

>   (3) there should be a set number of people who make a definite

>   committment to being there - before hotel management are approached

>   with a request for a meeting room, etc.

>

>   Whoever will look after this should call the hotel management and

>   explain what is being planned, what will be needed (room size,

> number

>   of tables & chairs etc.) and will the hotel be willing to provide

> it?

>

>   Ken

>   ===================================================================

>

>     

>  

>   > Ken,

>   >

>   > It sounds as if you have really checked this out. Perhaps you

> could

>   follow thru and take care of this Thursday night get together by

>   making the arrangements you have mentioned here. Are you attending

> the

>   conference?

>   >

>   > Alice

>

>

>

[Guest guest]

Laurie,

What kind of things do you have for the silent auction? At the Dallas

conference I bid on and received a baby blanket which my grandson has

thoroughly enjoyed using when he came to Gama and Pa's house for a

visit. Thanks for putting things like this together. I know it must

take a lot of time.

I hope to meet you at the conference.

Take care, Shelby, mother of , 30 years, mitochondrial

encephalopathy, clinically diagnosed in 1998 by Dr. Kelley, Kennedy

Krieger; also organizer of Virginia support group

> I am interested.

>

> Another option, if the Pizzeria Uno is not an option is Pizza Outlet

> () which appears to be almost next door by the address.

> It is

> now called something different (Vermillies or something similar).

>

> laurie

>

> >

> > Reply-To:

> > Date: Fri, 30 Jul 2004 07:19:51 -0600

> > To: >

> > Subject: Conference Goers - A Must  Read

> >

> > Thanks for the info, Ken.  Yes - we have held very nice Mitoldies

> get get

> > togethers at each conference and I've managed to put them together

> being a

> > distance away, but I won't be at this conference and Laurie has

> been actively

> > working on the silent auction for months and needs to spent the

> time wrapping

> > it all up for show time now so she shouldn't be trying to work on

> the get

> > together. 

> >

> > Someone needs to come forward and say that they will make all the

> arrangements

> > but first the group needs to know how many are really interested in

> this.

> > Everyone will need to be prepared to order and  pay for their own

> meals as of

> > course as we don't have a Mitoldies budget.  Bringing in Pizza or

> subs seems

> > to be a good solution and a room set aside to do this would be

> ideal of

> > possible but if not, I think that the group is small enough to meet

> in

> > someone's room. 

> >

> > Does anyone have the energy to do this?  The time is getting rather

> short now

> > so we need to solve this today.   Are you planning to attend a

> Thursday night

> > get together?   Will you offer to be in charge?

> >

> > Alice

> >

> >

> > Hi Alice,

> >

> > I'm hoping to attend but it isn't a done deal yet.

> >

> > Unfortunately, I don't have the time to get involved in making the

> > arrangements for the Thursday get together. I'm still working on

> > bringing things together for an appeal re: a disability pension

> > denial. (I use the time when the " brain-fog " has lifted to compile

> > more data)

> >

> > It could take quite a bit time and some money (for phone calls) to

> > bring this together

> >

> > I found the info on the hotel site itself. They apparently have a

> > number of meeting rooms that can accommodate 30, 500, and more.

> >

> > A couple of things to consider: (1) the pizza shop closes at 8:00pm

> > (2) could the on site pizza shop handle a mass order of pizzas?

> > (3) there should be a set number of people who make a definite

> > committment to being there - before hotel management are approached

> > with a request for a meeting room, etc.

> >

> > Whoever will look after this should call the hotel management and

> > explain what is being planned, what will be needed (room size,

> number

> > of tables & chairs etc.) and will the hotel be willing to provide

> it?

> >

> > Ken

> > ===================================================================

> >

> >

> >

> >> Ken,

> >>

> >> It sounds as if you have really checked this out. Perhaps you could

> > follow thru and take care of this Thursday night get together by

> > making the arrangements you have mentioned here. Are you attending

> the

> > conference?

> >>

> >> Alice

> >

> >

> >

[Guest guest]

I am interested.

Another option, if the Pizzeria Uno is not an option is Pizza Outlet

() which appears to be almost next door by the address. It is

now called something different (Vermillies or something similar).

laurie

>

> Reply-To:

> Date: Fri, 30 Jul 2004 07:19:51 -0600

> To: >

> Subject: Conference Goers - A Must Read

>

> Thanks for the info, Ken. Yes - we have held very nice Mitoldies get get

> togethers at each conference and I've managed to put them together being a

> distance away, but I won't be at this conference and Laurie has been actively

> working on the silent auction for months and needs to spent the time wrapping

> it all up for show time now so she shouldn't be trying to work on the get

> together.

>

> Someone needs to come forward and say that they will make all the arrangements

> but first the group needs to know how many are really interested in this.

> Everyone will need to be prepared to order and pay for their own meals as of

> course as we don't have a Mitoldies budget. Bringing in Pizza or subs seems

> to be a good solution and a room set aside to do this would be ideal of

> possible but if not, I think that the group is small enough to meet in

> someone's room.

>

> Does anyone have the energy to do this? The time is getting rather short now

> so we need to solve this today. Are you planning to attend a Thursday night

> get together? Will you offer to be in charge?

>

> Alice

>

>

> Hi Alice,

>

> I'm hoping to attend but it isn't a done deal yet.

>

> Unfortunately, I don't have the time to get involved in making the

> arrangements for the Thursday get together. I'm still working on

> bringing things together for an appeal re: a disability pension

> denial. (I use the time when the " brain-fog " has lifted to compile

> more data)

>

> It could take quite a bit time and some money (for phone calls) to

> bring this together

>

> I found the info on the hotel site itself. They apparently have a

> number of meeting rooms that can accommodate 30, 500, and more.

>

> A couple of things to consider: (1) the pizza shop closes at 8:00pm

> (2) could the on site pizza shop handle a mass order of pizzas?

> (3) there should be a set number of people who make a definite

> committment to being there - before hotel management are approached

> with a request for a meeting room, etc.

>

> Whoever will look after this should call the hotel management and

> explain what is being planned, what will be needed (room size, number

> of tables & chairs etc.) and will the hotel be willing to provide it?

>

> Ken

> ===================================================================

>

>

>

>> Ken,

>>

>> It sounds as if you have really checked this out. Perhaps you could

> follow thru and take care of this Thursday night get together by

> making the arrangements you have mentioned here. Are you attending the

> conference?

>>

>> Alice

>

>

>

[Guest guest]

It might be a good idea to list the silent auction items here because perhaps

some of the list members who can't make the conference would like the

opportunity to bid. Is that possible, Laurie?

Alice

Conference Goers - A Must Read

> >

> > Thanks for the info, Ken. Yes - we have held very nice Mitoldies

> get get

> > togethers at each conference and I've managed to put them together

> being a

> > distance away, but I won't be at this conference and Laurie has

> been actively

> > working on the silent auction for months and needs to spent the

> time wrapping

> > it all up for show time now so she shouldn't be trying to work on

> the get

> > together.

> >

> > Someone needs to come forward and say that they will make all the

> arrangements

> > but first the group needs to know how many are really interested in

> this.

> > Everyone will need to be prepared to order and pay for their own

> meals as of

> > course as we don't have a Mitoldies budget. Bringing in Pizza or

> subs seems

> > to be a good solution and a room set aside to do this would be

> ideal of

> > possible but if not, I think that the group is small enough to meet

> in

> > someone's room.

> >

> > Does anyone have the energy to do this? The time is getting rather

> short now

> > so we need to solve this today. Are you planning to attend a

> Thursday night

> > get together? Will you offer to be in charge?

> >

> > Alice

> >

> >

> > Hi Alice,

> >

> > I'm hoping to attend but it isn't a done deal yet.

> >

> > Unfortunately, I don't have the time to get involved in making the

> > arrangements for the Thursday get together. I'm still working on

> > bringing things together for an appeal re: a disability pension

> > denial. (I use the time when the " brain-fog " has lifted to compile

> > more data)

> >

> > It could take quite a bit time and some money (for phone calls) to

> > bring this together

> >

> > I found the info on the hotel site itself. They apparently have a

> > number of meeting rooms that can accommodate 30, 500, and more.

> >

> > A couple of things to consider: (1) the pizza shop closes at 8:00pm

> > (2) could the on site pizza shop handle a mass order of pizzas?

> > (3) there should be a set number of people who make a definite

> > committment to being there - before hotel management are approached

> > with a request for a meeting room, etc.

> >

> > Whoever will look after this should call the hotel management and

> > explain what is being planned, what will be needed (room size,

> number

> > of tables & chairs etc.) and will the hotel be willing to provide

> it?

> >

> > Ken

> > ===================================================================

> >

> >

> >

> >> Ken,

> >>

> >> It sounds as if you have really checked this out. Perhaps you could

> > follow thru and take care of this Thursday night get together by

> > making the arrangements you have mentioned here. Are you attending

> the

> > conference?

> >>

> >> Alice

> >

> >

> >

[Guest guest]

OK Laurie.. thanks and thank you for all your hard work on this. Alice

Conference Goers - A Must Read

>>>

>>> Thanks for the info, Ken. Yes - we have held very nice Mitoldies

>> get get

>>> togethers at each conference and I've managed to put them together

>> being a

>>> distance away, but I won't be at this conference and Laurie has

>> been actively

>>> working on the silent auction for months and needs to spent the

>> time wrapping

>>> it all up for show time now so she shouldn't be trying to work on

>> the get

>>> together.

>>>

>>> Someone needs to come forward and say that they will make all the

>> arrangements

>>> but first the group needs to know how many are really interested in

>> this.

>>> Everyone will need to be prepared to order and pay for their own

>> meals as of

>>> course as we don't have a Mitoldies budget. Bringing in Pizza or

>> subs seems

>>> to be a good solution and a room set aside to do this would be

>> ideal of

>>> possible but if not, I think that the group is small enough to meet

>> in

>>> someone's room.

>>>

>>> Does anyone have the energy to do this? The time is getting rather

>> short now

>>> so we need to solve this today. Are you planning to attend a

>> Thursday night

>>> get together? Will you offer to be in charge?

>>>

>>> Alice

>>>

>>>

>>> Hi Alice,

>>>

>>> I'm hoping to attend but it isn't a done deal yet.

>>>

>>> Unfortunately, I don't have the time to get involved in making the

>>> arrangements for the Thursday get together. I'm still working on

>>> bringing things together for an appeal re: a disability pension

>>> denial. (I use the time when the " brain-fog " has lifted to compile

>>> more data)

>>>

>>> It could take quite a bit time and some money (for phone calls) to

>>> bring this together

>>>

>>> I found the info on the hotel site itself. They apparently have a

>>> number of meeting rooms that can accommodate 30, 500, and more.

>>>

>>> A couple of things to consider: (1) the pizza shop closes at 8:00pm

>>> (2) could the on site pizza shop handle a mass order of pizzas?

>>> (3) there should be a set number of people who make a definite

>>> committment to being there - before hotel management are approached

>>> with a request for a meeting room, etc.

>>>

>>> Whoever will look after this should call the hotel management and

>>> explain what is being planned, what will be needed (room size,

>> number

>>> of tables & chairs etc.) and will the hotel be willing to provide

>> it?

>>>

>>> Ken

>>> ===================================================================

>>>

>>>

>>>

>>>> Ken,

>>>>

>>>> It sounds as if you have really checked this out. Perhaps you could

>>> follow thru and take care of this Thursday night get together by

>>> making the arrangements you have mentioned here. Are you attending

>> the

>>> conference?

>>>>

>>>> Alice

>>>

>>>

>>>

[Guest guest]

Alice

Everything is packed in boxes. I have a partial list of what I am taking,

but I also know that others are bringing things and some folks have mailed

things to the UMDF office, so they can take them to the hotel. My stuff is

mainly notecards, stationary, dolls, baby clothes, yarn octopi (made by

's daughter, yarn shaggy dogs. and other misc. items.

Everything will have a minimum bit on them which is in the $.50 to $5.00

range.

laurie

>

> Reply-To:

> Date: Fri, 30 Jul 2004 09:46:40 -0600

> To: >

> Subject: Re: Conference Goers - A Must Read

>

> It might be a good idea to list the silent auction items here because perhaps

> some of the list members who can't make the conference would like the

> opportunity to bid. Is that possible, Laurie?

>

> Alice

> Conference Goers - A Must Read

>>>

>>> Thanks for the info, Ken. Yes - we have held very nice Mitoldies

>> get get

>>> togethers at each conference and I've managed to put them together

>> being a

>>> distance away, but I won't be at this conference and Laurie has

>> been actively

>>> working on the silent auction for months and needs to spent the

>> time wrapping

>>> it all up for show time now so she shouldn't be trying to work on

>> the get

>>> together.

>>>

>>> Someone needs to come forward and say that they will make all the

>> arrangements

>>> but first the group needs to know how many are really interested in

>> this.

>>> Everyone will need to be prepared to order and pay for their own

>> meals as of

>>> course as we don't have a Mitoldies budget. Bringing in Pizza or

>> subs seems

>>> to be a good solution and a room set aside to do this would be

>> ideal of

>>> possible but if not, I think that the group is small enough to meet

>> in

>>> someone's room.

>>>

>>> Does anyone have the energy to do this? The time is getting rather

>> short now

>>> so we need to solve this today. Are you planning to attend a

>> Thursday night

>>> get together? Will you offer to be in charge?

>>>

>>> Alice

>>>

>>>

>>> Hi Alice,

>>>

>>> I'm hoping to attend but it isn't a done deal yet.

>>>

>>> Unfortunately, I don't have the time to get involved in making the

>>> arrangements for the Thursday get together. I'm still working on

>>> bringing things together for an appeal re: a disability pension

>>> denial. (I use the time when the " brain-fog " has lifted to compile

>>> more data)

>>>

>>> It could take quite a bit time and some money (for phone calls) to

>>> bring this together

>>>

>>> I found the info on the hotel site itself. They apparently have a

>>> number of meeting rooms that can accommodate 30, 500, and more.

>>>

>>> A couple of things to consider: (1) the pizza shop closes at 8:00pm

>>> (2) could the on site pizza shop handle a mass order of pizzas?

>>> (3) there should be a set number of people who make a definite

>>> committment to being there - before hotel management are approached

>>> with a request for a meeting room, etc.

>>>

>>> Whoever will look after this should call the hotel management and

>>> explain what is being planned, what will be needed (room size,

>> number

>>> of tables & chairs etc.) and will the hotel be willing to provide

>> it?

>>>

>>> Ken

>>> ===================================================================

>>>

>>>

>>>

>>>> Ken,

>>>>

>>>> It sounds as if you have really checked this out. Perhaps you could

>>> follow thru and take care of this Thursday night get together by

>>> making the arrangements you have mentioned here. Are you attending

>> the

>>> conference?

>>>>

>>>> Alice

>>>

>>>

>>>

[Guest guest]

Shelby

I listed the type of things I will be taking, but I have made well over 100

things, so listing each one isn't possible, besides which almost everything

is already packed in boxes.

We will be selling the few " " shirts that are left from Dallas,

plus the pins and keychains we had made.

laurie

>

> Reply-To:

> Date: Fri, 30 Jul 2004 10:10:55 -0400

> To:

> Subject: Re: Conference Goers - A Must Read

>

> Laurie,

> What kind of things do you have for the silent auction? At the Dallas

> conference I bid on and received a baby blanket which my grandson has

> thoroughly enjoyed using when he came to Gama and Pa's house for a

> visit. Thanks for putting things like this together. I know it must

> take a lot of time.

>

> I hope to meet you at the conference.

>

> Take care, Shelby, mother of , 30 years, mitochondrial

> encephalopathy, clinically diagnosed in 1998 by Dr. Kelley, Kennedy

> Krieger; also organizer of Virginia support group

>

>

>

>> I am interested.

>>

>> Another option, if the Pizzeria Uno is not an option is Pizza Outlet

>> () which appears to be almost next door by the address.

>> It is

>> now called something different (Vermillies or something similar).

>>

>> laurie

>>

>>>

>>> Reply-To:

>>> Date: Fri, 30 Jul 2004 07:19:51 -0600

>>> To: >

>>> Subject: Conference Goers - A Must  Read

>>>

>>> Thanks for the info, Ken.  Yes - we have held very nice Mitoldies

>> get get

>>> togethers at each conference and I've managed to put them together

>> being a

>>> distance away, but I won't be at this conference and Laurie has

>> been actively

>>> working on the silent auction for months and needs to spent the

>> time wrapping

>>> it all up for show time now so she shouldn't be trying to work on

>> the get

>>> together. 

>>>

>>> Someone needs to come forward and say that they will make all the

>> arrangements

>>> but first the group needs to know how many are really interested in

>> this.

>>> Everyone will need to be prepared to order and  pay for their own

>> meals as of

>>> course as we don't have a Mitoldies budget.  Bringing in Pizza or

>> subs seems

>>> to be a good solution and a room set aside to do this would be

>> ideal of

>>> possible but if not, I think that the group is small enough to meet

>> in

>>> someone's room. 

>>>

>>> Does anyone have the energy to do this?  The time is getting rather

>> short now

>>> so we need to solve this today.   Are you planning to attend a

>> Thursday night

>>> get together?   Will you offer to be in charge?

>>>

>>> Alice

>>>

>>>

>>> Hi Alice,

>>>

>>> I'm hoping to attend but it isn't a done deal yet.

>>>

>>> Unfortunately, I don't have the time to get involved in making the

>>> arrangements for the Thursday get together. I'm still working on

>>> bringing things together for an appeal re: a disability pension

>>> denial. (I use the time when the " brain-fog " has lifted to compile

>>> more data)

>>>

>>> It could take quite a bit time and some money (for phone calls) to

>>> bring this together

>>>

>>> I found the info on the hotel site itself. They apparently have a

>>> number of meeting rooms that can accommodate 30, 500, and more.

>>>

>>> A couple of things to consider: (1) the pizza shop closes at 8:00pm

>>> (2) could the on site pizza shop handle a mass order of pizzas?

>>> (3) there should be a set number of people who make a definite

>>> committment to being there - before hotel management are approached

>>> with a request for a meeting room, etc.

>>>

>>> Whoever will look after this should call the hotel management and

>>> explain what is being planned, what will be needed (room size,

>> number

>>> of tables & chairs etc.) and will the hotel be willing to provide

>> it?

>>>

>>> Ken

>>> ===================================================================

>>>

>>>

>>>

>>>> Ken,

>>>>

>>>> It sounds as if you have really checked this out. Perhaps you could

>>> follow thru and take care of this Thursday night get together by

>>> making the arrangements you have mentioned here. Are you attending

>> the

>>> conference?

>>>>

>>>> Alice

>>>

>>>

>>>

[Guest guest]

I am interested and my 14 year old daughter will be with us too.

Laureta Fitzgerald wrote:

>I am interested.

>

>Another option, if the Pizzeria Uno is not an option is Pizza Outlet

>() which appears to be almost next door by the address. It is

>now called something different (Vermillies or something similar).

>

>laurie

>

>

>

>>

>>Reply-To:

>>Date: Fri, 30 Jul 2004 07:19:51 -0600

>>To: >

>>Subject: Conference Goers - A Must Read

>>

>>Thanks for the info, Ken. Yes - we have held very nice Mitoldies get get

>>togethers at each conference and I've managed to put them together being a

>>distance away, but I won't be at this conference and Laurie has been actively

>>working on the silent auction for months and needs to spent the time wrapping

>>it all up for show time now so she shouldn't be trying to work on the get

>>together.

>>

>>Someone needs to come forward and say that they will make all the arrangements

>>but first the group needs to know how many are really interested in this.

>>Everyone will need to be prepared to order and pay for their own meals as of

>>course as we don't have a Mitoldies budget. Bringing in Pizza or subs seems

>>to be a good solution and a room set aside to do this would be ideal of

>>possible but if not, I think that the group is small enough to meet in

>>someone's room.

>>

>>Does anyone have the energy to do this? The time is getting rather short now

>>so we need to solve this today. Are you planning to attend a Thursday night

>>get together? Will you offer to be in charge?

>>

>>Alice

>>

>>

>>Hi Alice,

>>

>>I'm hoping to attend but it isn't a done deal yet.

>>

>>Unfortunately, I don't have the time to get involved in making the

>>arrangements for the Thursday get together. I'm still working on

>>bringing things together for an appeal re: a disability pension

>>denial. (I use the time when the " brain-fog " has lifted to compile

>>more data)

>>

>>It could take quite a bit time and some money (for phone calls) to

>>bring this together

>>

>>I found the info on the hotel site itself. They apparently have a

>>number of meeting rooms that can accommodate 30, 500, and more.

>>

>>A couple of things to consider: (1) the pizza shop closes at 8:00pm

>>(2) could the on site pizza shop handle a mass order of pizzas?

>>(3) there should be a set number of people who make a definite

>>committment to being there - before hotel management are approached

>>with a request for a meeting room, etc.

>>

>>Whoever will look after this should call the hotel management and

>>explain what is being planned, what will be needed (room size, number

>>of tables & chairs etc.) and will the hotel be willing to provide it?

>>

>>Ken

>>===================================================================

>>

>>

>>

>>

>>

>>>Ken,

>>>

>>>It sounds as if you have really checked this out. Perhaps you could

>>>

>>>

>>follow thru and take care of this Thursday night get together by

>>making the arrangements you have mentioned here. Are you attending the

>>conference?

>>

>>

>>>Alice

>>>

>>>

>>