Re: (CEDA) Pregnancy and Heparin - Advice Please

[Guest guest]

(CEDA) Pregnancy and Heparin - Advice Please

Oh Fay... I'm sooo sorry to hear of your loss of the baby. How

heartbreaking! I'm sure something will be found to help you.

I had a friend who had problems with protein in her system....can't remember

what it's called...but it caused miscarriages...

We have had friends in the past who miscarried and I know it was devastating

for them!

Bonnie

[Guest guest]

Date: Mon Jan 5, 2004 1:26:41 PM Europe/London

To: ceda

Subject: Re: (CEDA) Pregnancy and Heparin - Advice Please

Jill,

Thank you for your kind words. Your thoughts on the use of heparin is

very encouraging, and I am hoping to have the confidence to give it a

go. Firstly though, I have to get through this loss and make sure I am

healthy enough.

Lots of love,

Fay.

> Fay,

>

> I am so sorry to hear of your loss - you and Simon must be devastated,

> and

> rightly so!

>

> The heparin used for this purpose is not a high dose, There are other

> EDS'rs

> who have used this - including one with vascular type EDS that I know

> of,

> who carried successfully where they could not before.

>

> Jill

>

>

[Guest guest]

I'm so sorry to hear this. I don't know anything about heparin, but I just

wanted to tell you I'm sorry for your loss.

(CEDA) Pregnancy and Heparin - Advice Please

Hello,

On New Years Eve a ultra sound scan showed that my fourth pregnancy had

gone the way of my previous three - with no fetal heart beat detected.

Instead of having a D+C (as I have done previously) I have chosen to

let " nature " do its job. So I am currently waiting for the

'miscarriage' to start. At the moment there is no sign of it starting

and I am having no symptoms - but I have read that a missed miscarriage

can take a few weeks to start - and my consultant thinks that the scan

detected it within about a day. Like the other 3, all have been lost at

8-9 weeks. I am due back to the maternity hospital on the 14th to

report my progress.

After the 3rd miscarriage the hospital did every test going on myself,

Simon and the baby - all proved normal. But, the consultant is

convinced that we have a clotting problem which is depriving the baby

of what it needs to survive. He wanted me to try baby asprin on this

pregnancy, but I have had bruising/bleeding problems - so we decided

that taking it for 9 months was not a good idea (assuming it worked).

He is now suggesting Heparin. This is something he originally did not

want to do due to the loss of bone density it would cause (and we know

that my bone density is already low, though I have never broken

anything) - but he is now suggesting it for the next pregnancy. We all

feel that doing nothing will result in another missed miscarriage.

Apparently heparin is given by a daily injection into the tummy or back

and has to be taken for the duration of the pregnancy. Being a

classical type with a lot of skin issues, I am wondering how a daily

injection would effect me (bruising, bleeding, pain etc)?

I am wondering if anyone else has been Heparin and what effects it had?

How would daily injections be with classical type. Plus, due to many

factors I would have a c-section (if we can get a pregnancy to

progress) and I am wondering how thinning the blood with heparin would

work with an operation - especially if it had to be done earlier than

planned.

I am quite scared at the moment, as I have no idea when the miscarriage

will start. We have a number at the hospital to call if we have a

problem and they are seeing us in 2 weeks. I get the impression that

they would rather I have the D+C, but I really don't want an operation

if it can be avoided and my consultant said that it had to start

sometime naturally.

Any advice would be very appreciated.

Love,

Fay.

Classical Type - Age 26 - UK.

To learn more about EDS, visit our website: http://www.ceda.ca

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