you're a big help even when not trying

[Guest guest]

Hello everybody,

Was reading several days worth of messages and got a lot of info that

I had been wondering about. Last week I took a bad fall twice in one

day. my mom was worried about what would happen if I fell and nobody

was here but here, then today I read what to do. Makes it nice. I

went to the new nero today. He said he was 90% sure it was MSA, but

had a couple of other test, including a sleep study, to do. He also

is ruling out sjorgen syndrom to go with some form of ataxia and

autonomic failure. Good luck to him. He put me on Amatadine for the

ataxia. I am going to look that up next. Said he was trying this

before the simenet. I was in there for an hour and had loads of " fun "

as he was testing my balance and other things. He took me off the

Diovan for high BP. Said that could be really bad when BP drops to

much. Half the dose of Florinef, said he may go to the other one,

don't remember that name. Think it is the one Fred is on now. He is

doing another tilt table test, no meds for two days before hand. And

an echocardiogram and some blood work. I laughed when I read about

the -ologist considering he now has me going to two more of them,

cardiologist and urinologist-find out if I'm " emptying " every time.

That will make four for me.

I too was ask what did I want-my response was similar to the

person signed " Tenacity " , I think that was the name. Said I wanted a

miricle(?) cure-all. He aske what was 2nd on list. I said quality,

He said he would work on that part.

Reading this has really helped alot today. Got depressed again over

the amout of pills I take, 6 or 7 different ones everyday. I HATE

taking any meds, but do it out of wanting to be as good as I can be.

Almost like the army slogan.

Oh well must sign out now

Thanks again

wanda

[Guest guest]

Wanda,

Exercise (range of motion is better than aerobic) is the best thing to give

you as much quality of life as you can get. You need to do stretching

exercises every day (best in the morning) to keep the movement you already

have. If your community center has a class on arthritis exercises, take it

and remember the exercises. If they ask for where you hurt - tell them you

need the exercises for the whole body, as they often concentrate on

extremities.

Making sure you get proper amounts of liquids and eat a balanced diet is also

important. Adding small amounts of antioxidants may help also (like 400 IU

of vitamin E per day), but beware of mega doses of supplements as they are

not always balanced diets and may cause blood chemistry problems especially

for MSA patients who often need large amounts of sodium.

Amantadine was used for Parkinson's before Sinemet came along ) and no one

knows how it helps PD. But it does help in many cases, and more MSA patients

use it every day from what we see here.

Hang in there, Bill and Charlotte

Note: Charlotte had first signs of MSA (tired and clumsiness) in 1986 - we

went back to our GP's records and that was the first time she complained

about it. He admits it was probably the first sign ) even though he

suggested it might be an early sign of menopause ) gave her a shot of B

vitamins and did some blood work. He did ask her to come back in a few weeks

and went over how she felt after the shots.

lawandajbell@... wrote:

> Hello everybody,

>

> Was reading several days worth of messages and got a lot of info that

> I had been wondering about. Last week I took a bad fall twice in one

> day. my mom was worried about what would happen if I fell and nobody

> was here but here, then today I read what to do. Makes it nice. I

> went to the new nero today. He said he was 90% sure it was MSA, but

> had a couple of other test, including a sleep study, to do. He also

> is ruling out sjorgen syndrom to go with some form of ataxia and

> autonomic failure. Good luck to him. He put me on Amatadine for the

> ataxia. I am going to look that up next. Said he was trying this

> before the simenet. I was in there for an hour and had loads of " fun "

> as he was testing my balance and other things. He took me off the

> Diovan for high BP. Said that could be really bad when BP drops to

> much. Half the dose of Florinef, said he may go to the other one,

> don't remember that name. Think it is the one Fred is on now. He is

> doing another tilt table test, no meds for two days before hand. And

> an echocardiogram and some blood work. I laughed when I read about

> the -ologist considering he now has me going to two more of them,

> cardiologist and urinologist-find out if I'm " emptying " every time.

> That will make four for me.

>

> I too was ask what did I want-my response was similar to the

> person signed " Tenacity " , I think that was the name. Said I wanted a

> miricle(?) cure-all. He aske what was 2nd on list. I said quality,

> He said he would work on that part.

>

> Reading this has really helped alot today. Got depressed again over

> the amout of pills I take, 6 or 7 different ones everyday. I HATE

> taking any meds, but do it out of wanting to be as good as I can be.

> Almost like the army slogan.

>

> Oh well must sign out now

>

> Thanks again

>

> wanda

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>