RE: New: suggestions for sites and articles

[Guest guest]

I did the first round of testing last week and am waiting the results,

but I sure would like to know about this type of disorder. Could

you direct me to some articles or sites that would be good.

Also, can anyone achieve a so-called " remission " with a mitochondrial

disorder?

Di

[Guest guest]

The first two I would hit would be umdf.org and mda.org. Some of us

have very slowly progressing symptoms while taking the mito " cocktail "

and others more quick. There is no way to know how a person is going to

progress, even within the same family.

artistdi88 wrote:

>I did the first round of testing last week and am waiting the results,

>but I sure would like to know about this type of disorder. Could

>you direct me to some articles or sites that would be good.

>

>Also, can anyone achieve a so-called " remission " with a mitochondrial

>disorder?

>

>Di

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Di

My son is one of the lucky ones who has fewer symptoms today than he had at

an early age. He had tremendous problems with autonomic symptoms, sensory

issues, and severe migraines and a few other things thrown in. He was most

symptomatic as a baby and young child. He is now 30 and has some exercise

intolerance and still has some sensory issues and return of migraines which

are being easily treated. He is not on the mito cocktail, but eats healthy

and gets pleanty of sleep.

He knows that his symptoms will probably increase with age, but it really

isn't much of an issue at all for him. I guess you would call it a

remission.

My symptoms have pregressed very slowly since being on the mito cocktail. I

try to eat healthy (try is the key since I just got back from having an ice

cream sundae).

laurie

>

> Reply-To:

> Date: Sun, 18 Jul 2004 16:12:31 -0000

> To:

> Subject: RE: New: suggestions for sites and articles

>

> I did the first round of testing last week and am waiting the results,

> but I sure would like to know about this type of disorder. Could

> you direct me to some articles or sites that would be good.

>

> Also, can anyone achieve a so-called " remission " with a mitochondrial

> disorder?

>

> Di

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>