Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Thanks, I guess I thought they must have someone as a 504 / ADA coordinator. It is a small school, so I think I may have to take it up in the fall, " nothing gets done in the summer " . Take care, RH > >>>>> > >>>>> > >>>>>>Hello, > >>>>>>I am new at this group. I have a daughter who is 30 years old > >>>>>> > >>>>>> > >who > > > > > >>>>>has > >>>>> > >>>>> > >>>>>>a clinical diagnosis of mitochondrial encephalopathy. She is > >>>>>>developmentally delayed, has speech and motor problems and > >>>>>> > >>>>>> > >>>>>deteriorates > >>>>> > >>>>> > >>>>>>cognitively, motor and behaviorally after viruses and > >>>>>> > >>>>>> > >infections. > > > > > >>>>>She > >>>>> > >>>>> > >>>>>>periodically becomes psychotic, racing around the house, > >>>>>> > >>>>>> > >yelling, > > > > > >>>>>>screaming, clapping her hands, and throwing things. She is on > >>>>>>Seroquel, an antipsychotic, Ativan, for anxiety, Trazodone for > >>>>>> > >>>>>> > >sleep > > > > > >>>>>>and Eskalith for mood swings and the mito cocktail. Lately, in > >>>>>> > >>>>>> > >spite > > > > > >>>>>>of the medication, she will have one of these " spells " > >>>>>> > >>>>>> > >following her > > > > > >>>>>>monthly period or after several days of activity. Does anyone > >>>>>> > >>>>>> > >have > > > > > >>>>>any > >>>>> > >>>>> > >>>>>>experience with this? She also has had a stroke like episode > >>>>>> > >>>>>> > >and has > > > > > >>>>>>intestinal dysmotility and is mentally retarded (mental age 4- 5 > >>>>>> > >>>>>> > >>>>>years > >>>>> > >>>>> > >>>>>>on a good day) > >>>>>>Thanks, Shelby > >>>>>> > >>>>>> > >>>>> > >>>>>Medical advice, information, opinions, data and statements > >>>>> > >>>>> > >contained > > > > > >>>>>herein are not necessarily those of the list moderators. The > >>>>> > >>>>> > >author of > > > > > >>>>>this e mail is entirely responsible for its content. List > >>>>> > >>>>> > >members are > > > > > >>>>>reminded of their responsibility to evaluate the content of the > >>>>>postings and consult with their physicians regarding changes in > >>>>> > >>>>> > >their > > > > > >>>>>own treatment. > >>>>> > >>>>>Personal attacks are not permitted on the list and anyone who > >>>>> > >>>>> > >sends > > > > > >>>>>one is automatically moderated or removed depending on the > >>>>> > >>>>> > >severity of > > > > > >>>>>the attack. > >>>>> > >>>>> > >>>>> > >>>>> > >>>>> > >>>>> Quote Link to comment Share on other sites More sharing options...
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