Volunteers Wanted for Fibroid Study - Sisters

[Guest guest]

The Center for Uterine Fibroids at Brigham and Women's Hospital in

Boston is conducting a study of genetic factors that cause fibroids.

They are still looking for another 250 sister pairs to participate.

My sister and I are going to participate. Information is included

below or you can visit the study webpage.

-Ann

http://www.fibroids.net/html/study1.htm

What: The Center for Uterine Fibroids is currently enrolling families

in the " Finding Genes for Fibroids " study. This is a clinical

research study, aimed at identifying the causes of uterine fibroids.

This study has been reviewed and approved by the Human Research

Committee at Brigham and Women's Hospital.

Why: We hope that information gained from the study will provide

future generations of women with non-surgical treatment options. This

is not a treatment study. We hope that your generous efforts will

make a meaningful difference in the future treatment of fibroids.

Who: In order to be eligible for this study, your family must have at

least two women who are full sisters and have uterine fibroids.

Sisters with a past history of uterine fibroids are also eligible.

The sisters may be you and your sister, your mother and her sister,

two cousins who are sisters, or any other sisters in your family.

Once your family meets this minimum requirement, we encourage other

family members with or without fibroids to participate. This includes

men. The more family members who take part, the more powerful our

data will be.

How: You can participate from anywhere in the world; all study

procedures are completed through the mail at no cost to you or your

family. The study involves filling out a consent form and a survey

and sending us a small one-time blood sample. The consent form

discusses the risks and benefits of the study. We ask you to read and

sign the consent form and fill out a medical records release form. We

request only medical records having to do with fibroid diagnosis and

treatment. The survey can take from 15 to 45 minutes to complete,

depending upon your medical history. Once these forms are sent back,

we send all participants a blood sample kit. The kit contains

directions about how to get your blood sample drawn and reimbursement

procedures. Once this sample is returned to us, your participation in

the study is complete.

If you know that you are eligible for the study and you would like to

take part, or if you have questions and would like a study staff

member to contact you, please fill out the form below or call 1-800-

722-5520 (x80081).

We hope you will join us in our effort to search for the causes and

treatments for uterine fibroids.

from study update page:

" We now have 235 pairs of sisters who have finished the study--almost

half way there! Please help us reach our goal of 500 pairs of sisters

who have completed the study.

If you know of sister-pairs among your family or friends who are

interested in participating, please contact us at 1- (x

80081) or fibroids@... "

//