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increased carnitine question

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My daughter's internist called with the mito lab results that Dr.

Boles recommends for MIDS. Her urine caritine was very elevated, but

not her blood carnitine levels. She has been taking L-carnitine

supplements, but Boles' office said that wouldn't affect the test.

Does the fact that her urine carnitine is significantly elevated mean

anything? The internist doesn't know.

Thanks.

Beth

bethb48@...

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I know of another patient who has elevated carnitine in urine, but

that person has low carnitine in blood. The explanation given in

that case was that the patient is losing carnitine through the

kidneys, a renal leak.

I must admit I am puzzled by the comment that carnitine supplements

would not affect this test, especially urine results, but Dr. Boles

certainly is an expert, so his office must be correct.

Barbara

> My daughter's internist called with the mito lab results that Dr.

> Boles recommends for MIDS. Her urine caritine was very elevated,

but

> not her blood carnitine levels. She has been taking L-carnitine

> supplements, but Boles' office said that wouldn't affect the test.

>

> Does the fact that her urine carnitine is significantly elevated

mean

> anything? The internist doesn't know.

>

> Thanks.

> Beth

> bethb48@h...

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These lab results are exactly the same for me. I was not been on Carnitor when

the labs were done but I am now taking it and I do believe it helps. If

anything, it makes a lot of sense that someone who is losing Carnitine thru

urine would need to be supplemented with it to help keep things balanced as much

as possible.

Alice

Re: increased carnitine question

I know of another patient who has elevated carnitine in urine, but

that person has low carnitine in blood. The explanation given in

that case was that the patient is losing carnitine through the

kidneys, a renal leak.

I must admit I am puzzled by the comment that carnitine supplements

would not affect this test, especially urine results, but Dr. Boles

certainly is an expert, so his office must be correct.

Barbara

> My daughter's internist called with the mito lab results that Dr.

> Boles recommends for MIDS. Her urine caritine was very elevated,

but

> not her blood carnitine levels. She has been taking L-carnitine

> supplements, but Boles' office said that wouldn't affect the test.

>

> Does the fact that her urine carnitine is significantly elevated

mean

> anything? The internist doesn't know.

>

> Thanks.

> Beth

> bethb48@h ...

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