Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 my 5 mo daughter has tort., mild plagio and very subtle facial asymmetry. i had been going back and forth over whether to get the band. i was leaning towards not getting it since i've seen some change from all the repo and starting OT. this afternoon, we went for a consultation with a neurologist and i decided to go ahead and get the band. while he said her case was mild, he said that repo and therapy would help - but probably not " fix " it completely. also, the clincher was that he said that when our daughter is 13 and she sees and is upset by the asymmetry in her face she might ask why we didn't do everything we could to fix it when she was a baby. that did it for me. we have an appointment at CT in two weeks. i just wanted to share my experience for those out there with mild cases and not sure what to do. --julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 I personally think you are making the right decision. The band is such an easy fix and then you know you did everything you could. You may very well regret if you don't band. I doubt you will regret banding. I have never been more sure about my decision than the day he got his band. You just get a calmness about you when that sweet little baby starts getting a round head. We are more than half way through and it seems like yesterday when we were trying to decide. Good job mommy. Bobbi H. 7.5 months tort/brachy/plagio DOC band 5/8/06 Phx > my 5 mo daughter has tort., mild plagio and very subtle facial > asymmetry. i had been going back and forth over whether to get the > band. i was leaning towards not getting it since i've seen some change > from all the repo and starting OT. this afternoon, we went for a > consultation with a neurologist and i decided to go ahead and get the > band. while he said her case was mild, he said that repo and therapy > would help - but probably not " fix " it completely. also, the clincher > was that he said that when our daughter is 13 and she sees and is > upset by the asymmetry in her face she might ask why we didn't do > everything we could to fix it when she was a baby. that did it for me. > we have an appointment at CT in two weeks. > > i just wanted to share my experience for those out there with mild > cases and not sure what to do. > > --julie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 That is exactly what my son's father and I thought. I wish so bad that I had your doctor. It would be great if you could add this doctor to our database (I think you can add doctors there but it may just be for band providers i'm not too sure). I wish you the best of luck. Haylee mom to Andre 21 months tort/doc band #1 22/11/05 doc band #2 21/6/06 & Lesly 21 months > > my 5 mo daughter has tort., mild plagio and very subtle facial > asymmetry. i had been going back and forth over whether to get the > band. i was leaning towards not getting it since i've seen some change > from all the repo and starting OT. this afternoon, we went for a > consultation with a neurologist and i decided to go ahead and get the > band. while he said her case was mild, he said that repo and therapy > would help - but probably not " fix " it completely. also, the clincher > was that he said that when our daughter is 13 and she sees and is > upset by the asymmetry in her face she might ask why we didn't do > everything we could to fix it when she was a baby. that did it for me. > we have an appointment at CT in two weeks. > > i just wanted to share my experience for those out there with mild > cases and not sure what to do. > > --julie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 We were told my son has a mild case as well but because we are in Hawaii, we would have to go to the mainland for treatment. I am torn about what to do but the expense of traveling to get treatments kinda scares us. So we are just doing the repositioning. Good Luck --- haylee204 <rascle204@...> wrote: > That is exactly what my son's father and I thought. > I wish so bad > that I had your doctor. It would be great if you > could add this > doctor to our database (I think you can add doctors > there but it may > just be for band providers i'm not too sure). I > wish you the best > of luck. > > Haylee > mom to Andre 21 months tort/doc band #1 22/11/05 doc > band #2 21/6/06 > & Lesly 21 months > > > > > > > > my 5 mo daughter has tort., mild plagio and very > subtle facial > > asymmetry. i had been going back and forth over > whether to get the > > band. i was leaning towards not getting it since > i've seen some > change > > from all the repo and starting OT. this afternoon, > we went for a > > consultation with a neurologist and i decided to > go ahead and get > the > > band. while he said her case was mild, he said > that repo and > therapy > > would help - but probably not " fix " it completely. > also, the > clincher > > was that he said that when our daughter is 13 and > she sees and is > > upset by the asymmetry in her face she might ask > why we didn't do > > everything we could to fix it when she was a baby. > that did it for > me. > > we have an appointment at CT in two weeks. > > > > i just wanted to share my experience for those out > there with mild > > cases and not sure what to do. > > > > --julie > > > > > > > Children are educated by what the grown-up is and not by his talk. Carl G. Jung __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 There are a couple of different charities that will fly you for free to your appointments. You may want to look into them if the repositioning doesn't help and if you decide to pursue treatment on the mainland. http://www.angelflightamerica.org/index.php http://www.angelflight.com/ http://www.angelflight.org/ Molly California Nicolas, 8.5 months, tort & plagio, STARband 4/25/06 , 3 , 6.5 Re: Re: mild plagio - decided to get the band We were told my son has a mild case as well but because we are in Hawaii, we would have to go to the mainland for treatment. I am torn about what to do but the expense of traveling to get treatments kinda scares us. So we are just doing the repositioning. Good Luck --- haylee204 <rascle204@...> wrote: > That is exactly what my son's father and I thought. > I wish so bad > that I had your doctor. It would be great if you > could add this > doctor to our database (I think you can add doctors > there but it may > just be for band providers i'm not too sure). I > wish you the best > of luck. > > Haylee > mom to Andre 21 months tort/doc band #1 22/11/05 doc > band #2 21/6/06 > & Lesly 21 months > > > > > > > > my 5 mo daughter has tort., mild plagio and very > subtle facial > > asymmetry. i had been going back and forth over > whether to get the > > band. i was leaning towards not getting it since > i've seen some > change > > from all the repo and starting OT. this afternoon, > we went for a > > consultation with a neurologist and i decided to > go ahead and get > the > > band. while he said her case was mild, he said > that repo and > therapy > > would help - but probably not " fix " it completely. > also, the > clincher > > was that he said that when our daughter is 13 and > she sees and is > > upset by the asymmetry in her face she might ask > why we didn't do > > everything we could to fix it when she was a baby. > that did it for > me. > > we have an appointment at CT in two weeks. > > > > i just wanted to share my experience for those out > there with mild > > cases and not sure what to do. > > > > --julie > > > > > > > Children are educated by what the grown-up is and not by his talk. Carl G. Jung __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Molly, Thank you so much for the info. I wil look into this. a --- " Foley, Molly " <mafoley@...> wrote: > There are a couple of different charities that will > fly you for free to your > appointments. You may want to look into them if the > repositioning doesn't > help and if you decide to pursue treatment on the > mainland. > > http://www.angelflightamerica.org/index.php > > http://www.angelflight.com/ > > http://www.angelflight.org/ > > Molly > California > Nicolas, 8.5 months, tort & plagio, STARband > 4/25/06 > , 3 > , 6.5 > > > Re: Re: mild plagio - decided to > get the band > > > We were told my son has a mild case as well but > because we are in Hawaii, we would have to go to the > mainland for treatment. I am torn about what to do > but the expense of traveling to get treatments kinda > scares us. So we are just doing the repositioning. > Good Luck > > --- haylee204 <rascle204@...> wrote: > > > That is exactly what my son's father and I > thought. > > I wish so bad > > that I had your doctor. It would be great if you > > could add this > > doctor to our database (I think you can add > doctors > > there but it may > > just be for band providers i'm not too sure). I > > wish you the best > > of luck. > > > > Haylee > > mom to Andre 21 months tort/doc band #1 22/11/05 > doc > > band #2 21/6/06 > > & Lesly 21 months > > > > > > > > > > > > > > my 5 mo daughter has tort., mild plagio and > very > > subtle facial > > > asymmetry. i had been going back and forth over > > whether to get the > > > band. i was leaning towards not getting it since > > i've seen some > > change > > > from all the repo and starting OT. this > afternoon, > > we went for a > > > consultation with a neurologist and i decided to > > go ahead and get > > the > > > band. while he said her case was mild, he said > > that repo and > > therapy > > > would help - but probably not " fix " it > completely. > > also, the > > clincher > > > was that he said that when our daughter is 13 > and > > she sees and is > > > upset by the asymmetry in her face she might ask > > why we didn't do > > > everything we could to fix it when she was a > baby. > > that did it for > > me. > > > we have an appointment at CT in two weeks. > > > > > > i just wanted to share my experience for those > out > > there with mild > > > cases and not sure what to do. > > > > > > --julie > > > > > > > > > > > > > > > > Children are educated by what the grown-up is and > not by his talk. > Carl G. Jung > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Molly, Thank you so much for the info. I wil look into this. a --- " Foley, Molly " <mafoley@...> wrote: > There are a couple of different charities that will > fly you for free to your > appointments. You may want to look into them if the > repositioning doesn't > help and if you decide to pursue treatment on the > mainland. > > http://www.angelflightamerica.org/index.php > > http://www.angelflight.com/ > > http://www.angelflight.org/ > > Molly > California > Nicolas, 8.5 months, tort & plagio, STARband > 4/25/06 > , 3 > , 6.5 > > > Re: Re: mild plagio - decided to > get the band > > > We were told my son has a mild case as well but > because we are in Hawaii, we would have to go to the > mainland for treatment. I am torn about what to do > but the expense of traveling to get treatments kinda > scares us. So we are just doing the repositioning. > Good Luck > > --- haylee204 <rascle204@...> wrote: > > > That is exactly what my son's father and I > thought. > > I wish so bad > > that I had your doctor. It would be great if you > > could add this > > doctor to our database (I think you can add > doctors > > there but it may > > just be for band providers i'm not too sure). I > > wish you the best > > of luck. > > > > Haylee > > mom to Andre 21 months tort/doc band #1 22/11/05 > doc > > band #2 21/6/06 > > & Lesly 21 months > > > > > > > > > > > > > > my 5 mo daughter has tort., mild plagio and > very > > subtle facial > > > asymmetry. i had been going back and forth over > > whether to get the > > > band. i was leaning towards not getting it since > > i've seen some > > change > > > from all the repo and starting OT. this > afternoon, > > we went for a > > > consultation with a neurologist and i decided to > > go ahead and get > > the > > > band. while he said her case was mild, he said > > that repo and > > therapy > > > would help - but probably not " fix " it > completely. > > also, the > > clincher > > > was that he said that when our daughter is 13 > and > > she sees and is > > > upset by the asymmetry in her face she might ask > > why we didn't do > > > everything we could to fix it when she was a > baby. > > that did it for > > me. > > > we have an appointment at CT in two weeks. > > > > > > i just wanted to share my experience for those > out > > there with mild > > > cases and not sure what to do. > > > > > > --julie > > > > > > > > > > > > > > > > Children are educated by what the grown-up is and > not by his talk. > Carl G. Jung > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Molly, Thank you so much for the info. I wil look into this. a --- " Foley, Molly " <mafoley@...> wrote: > There are a couple of different charities that will > fly you for free to your > appointments. You may want to look into them if the > repositioning doesn't > help and if you decide to pursue treatment on the > mainland. > > http://www.angelflightamerica.org/index.php > > http://www.angelflight.com/ > > http://www.angelflight.org/ > > Molly > California > Nicolas, 8.5 months, tort & plagio, STARband > 4/25/06 > , 3 > , 6.5 > > > Re: Re: mild plagio - decided to > get the band > > > We were told my son has a mild case as well but > because we are in Hawaii, we would have to go to the > mainland for treatment. I am torn about what to do > but the expense of traveling to get treatments kinda > scares us. So we are just doing the repositioning. > Good Luck > > --- haylee204 <rascle204@...> wrote: > > > That is exactly what my son's father and I > thought. > > I wish so bad > > that I had your doctor. It would be great if you > > could add this > > doctor to our database (I think you can add > doctors > > there but it may > > just be for band providers i'm not too sure). I > > wish you the best > > of luck. > > > > Haylee > > mom to Andre 21 months tort/doc band #1 22/11/05 > doc > > band #2 21/6/06 > > & Lesly 21 months > > > > > > > > > > > > > > my 5 mo daughter has tort., mild plagio and > very > > subtle facial > > > asymmetry. i had been going back and forth over > > whether to get the > > > band. i was leaning towards not getting it since > > i've seen some > > change > > > from all the repo and starting OT. this > afternoon, > > we went for a > > > consultation with a neurologist and i decided to > > go ahead and get > > the > > > band. while he said her case was mild, he said > > that repo and > > therapy > > > would help - but probably not " fix " it > completely. > > also, the > > clincher > > > was that he said that when our daughter is 13 > and > > she sees and is > > > upset by the asymmetry in her face she might ask > > why we didn't do > > > everything we could to fix it when she was a > baby. > > that did it for > > me. > > > we have an appointment at CT in two weeks. > > > > > > i just wanted to share my experience for those > out > > there with mild > > > cases and not sure what to do. > > > > > > --julie > > > > > > > > > > > > > > > > Children are educated by what the grown-up is and > not by his talk. > Carl G. Jung > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Hi a - I would hate to see you miss out on getting a band, should you need it, just because the flights to the mainland are cost prohibitive. Now you can base your decision on whether your child really needs the band and you don't have to let the travel interfere with your decision. Molly Re: Re: mild plagio - decided to > get the band > > > We were told my son has a mild case as well but > because we are in Hawaii, we would have to go to the > mainland for treatment. I am torn about what to do > but the expense of traveling to get treatments kinda > scares us. So we are just doing the repositioning. > Good Luck > > --- haylee204 <rascle204@...> wrote: > > > That is exactly what my son's father and I > thought. > > I wish so bad > > that I had your doctor. It would be great if you > > could add this > > doctor to our database (I think you can add > doctors > > there but it may > > just be for band providers i'm not too sure). I > > wish you the best > > of luck. > > > > Haylee > > mom to Andre 21 months tort/doc band #1 22/11/05 > doc > > band #2 21/6/06 > > & Lesly 21 months > > > > > > > > > > > > > > my 5 mo daughter has tort., mild plagio and > very > > subtle facial > > > asymmetry. i had been going back and forth over > > whether to get the > > > band. i was leaning towards not getting it since > > i've seen some > > change > > > from all the repo and starting OT. this > afternoon, > > we went for a > > > consultation with a neurologist and i decided to > > go ahead and get > > the > > > band. while he said her case was mild, he said > > that repo and > > therapy > > > would help - but probably not " fix " it > completely. > > also, the > > clincher > > > was that he said that when our daughter is 13 > and > > she sees and is > > > upset by the asymmetry in her face she might ask > > why we didn't do > > > everything we could to fix it when she was a > baby. > > that did it for > > me. > > > we have an appointment at CT in two weeks. > > > > > > i just wanted to share my experience for those > out > > there with mild > > > cases and not sure what to do. > > > > > > --julie > > > > > > > > > > > > > > > > Children are educated by what the grown-up is and > not by his talk. > Carl G. Jung > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.