Re: Re: Oregonians

[Guest guest]

What a great idea to interview with the newspaper. How did that come about? At the time I was diagnosed with RSD I put an ad in the local paper for anyone who had or was interested in RSD. I received two calls from that ad. Your interview may help others to recognize and understand RSD/CRPS.The "it's all just in your head" belief system has got tobe stamped out. It seems that this belief is based on ignorance and misinformation. It is no more in your head than diabetes! People don't go around accusing diabetics that it is all in their heads.It is difficult enough to cope with the pain. Having to convince people everyday that it is real causes unbelievable suffering on top of the pain. My patience wears thin on this one, grumble, grumble ……..Lyn,

I belong to this group called RSD National Awareness Campaign and they do all the "leg" work, talking to the newspaper,doing a background about the disease and symptoms. All I had to do is tell my story. If you or anyone else is interested look up http://forums.delphiforums.com/forgracenac/messages

Anyway Lyn I told my husband about another Oregonian and where you live and that we are trying to find a good halfway place, he is thinking about it, or we could just go to Bend for a couple of days.

I so agree with you about the in your head stuff, I even had one receptionist tell me that they didn't believe in that disease, I was speechless, but I now have some brochures from the National Institute of Neurological Disorders and Stroke, that tells all about RSD. I am thinking the next time I am over by the hospital, where this doctor is and handing the receptionist one of the brochures and say gee your doctors here must be pretty much so much smarter than the Institute they should be up for a Nobel prize.

So Lyn I hope you are having a good pain day,

Lin