Re: sleeping vs trip

[Guest guest]

" " <schloss76@y...> wrote:

> Lynlorraine wrote:I'll just add to beware of allowing yourself to

be unintentionally pushed above your level of tolerance for any

activity. If you are anything like me the desire to make " things "

comfortable for others sometimes puts you in jeopardy. Resist the

urge

>

> Lyn,

> I think that is what may be happening here. The final decision is

going to be, like the day before we leave. There is just too many

variables to make any desicion before hand. Dwight and his Mom are

going regardless. I will have my sister, and daughters to help me

out with anything I may need. So how are you doing?

> Lin

Dear Lin,

Glad you are going to follow your inner guide and wait until the day

before leaving. It will give everyone else a chance to accept that

you, in fact, may not go and it is your decision because no one (not

even your loved ones) are able to decide for you. That is part of

this wild ride with RSD, don't you think! We just can't plan

the future in the ordinary sense knowing that pain level dictates

activity. Yuk!

You asked how I am doing. I guess you can tell by my posts that my

mind is all over the place remembering my past life centered on

managing pain and disability versus the freedom and independence I

have been experiencing these last several years. I am choosing to

remain hopeful that these two weeks of prednisone will have some

positive affect.

I was on prednisone for (I'm in process of checking all my

records) approx 2 years. That is not a good thing but I did get

better and eventually became pain free with a minor disability of

function at my ankle and foot. Along with the large doses of

prednisone I injected myself daily with calcitonin for at least a

year. Because it was a slow improvement with countless setbacks to

the original level of pain and dysfunction I just don't know what

the source of remission was. I am doing some inner work on my

overall view of how I've been living my life and how I can adapt

to

keep it meaningful and fulfilling as I go through this change.

How are you managing your daily activities? Would you be willing to

describe a typical day for me?

Just an aside- I am a Lynda called Lyn and you are () Lin

interesting .. Thankyou, Lyn (Lynda Lorraine)