Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 I was so hoping for the shots. I too heard so many amazing stories with them. I'm going to appeal and fight. I wish all mito people could get it, because to me it makes sence that this would help make the mitochondia stronger. Has any reseach been done in this area. The GH shot are very exspensive though. Maybe they could give it to the sickest. The endo I saw is a research doctor as well. She really listened to my mito symptoms and her thoughts she told me about the endochrine system was so amazing and complex that I know there is much more for doctors to figure out about mitochondria and all related disorders and symptoms. Does the mitochondria break down because of other things or do other thing break down becuase of defects of the mitochondria? I think once they unlock the key to the cell damage they will get the big picture and start curing and treating these illnesses. In my searches and hearing other peoples stories, of lupus , ms, cfs,etc , I come to see that the suffering is the same sharing many of tha same symptoms and mistreatment by the medical profession ie- it's all in our heads. There are MANY sufferers out there. I believe there will be a medical break through. we have to have this hope. Ya know if they would stop working on making cell phones better and consentrate on medical technology and research .......... :-) > > > It is good to hear from you. I have missed you too. > > I don't know if you have heard this or not, but several children and teens > that I am aware of have benefited from human growth hormone. Mito can > attack the endocrine system, the same way as it attacks other organ systems. > It is so hard to put everything into something that doesn't make us pieces > of bodies but a whole one (even if a poorly functioning one). > > laurie > > > From: " tanya2727 " > > Reply-To: > > Date: Thu, 01 Jul 2004 20:25:21 -0000 > > To: > > Subject: Going in circles / miss my mito friends > > > > Hi everyone. Sure do miss you all but I've been trying soooo hard to > > get concrete news to finally tell you before I checked back in. > > > > I did get a DX of fibromyalgia recently. I called my husband and > > said I'm DX with something. I know many of you probaly have it too, > > but the muscle pain got so bad I finally went to a rhum. > > > > As you know I took a hiatus from the group to explore empty sellar > > syndrome which I know I have. On this support site many suffer our > > symptoms. I found a DR. from one of the members and I paid $500.00 > > to see her, she's an endochrinoligist. She said all my problems are > > from a growth hormone deficenecy so I had a 2 hour blood test that > > said I do. She wants me to get shots of GH. My insurane company just > > denided it. > > > > I'm not really convinced this is my problem. She said the reason I > > have the strokelike episodes is because I don't have enough GH. > > This could be true. > > > > Many of my symptoms are fibromyalgia, but I still seem to have the > > mito symtoms too. > > > > My symptoms have increased and I have new problems too. My epstein > > barr count is up, I have a kidney infection,servere muscle pain, > > vision problems, servere stomach distress, servere pain in my > > shoulders and loss of strenght in them, etc. I can do very little > > without getting very tired so I go out very little. > > > > I do have a new attidude though about being chroniclly ill. I > > joined rest ministries, a support site for the chron. ill and the > > info and books I read really helped me so much. The church hurt and > > loss of friend hurt is ok now. It's a part of being chron. ill. I > > socialize when I can and don't sweat it anymore when I can't. > > > > I've also learn how to be in a web support group without causing a > > stir. Every group has something and I understand what I'm looking > > for and understand how far to go with comments and ideas. It's a > > learning thing. Many people don't write and just lurk for this > > reason. I'm glad you all really are nice and liked me. I've come > > to realize that this is a truly caring group and very smart and > > devoted people are here. > > > > If anyone has any thoughts about my complex and confusing going in > > circles symptoms, please share. > > > > I hope you didn't forget me, > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Your question about what is causing what is yes and yes, as my son would say. Things like toxins cause damage to the mitochondria, as does the aging. They are damaged by fuel we provide that isn't used, because of the defect. All these cause free radicals and free radicals damage mitochondria. Many of the supplements recommended by doctors are anti--oxidents which nerutalize the free radicals, slowing down the process of damage. Then the defective mitochondria can't provide enough energy to cells and that then can cause the symptoms we see. It is a combination of good and bad mitochondria that our cells deal with. laurie > > Reply-To: > Date: Fri, 02 Jul 2004 13:44:20 -0000 > To: > Subject: Laurie > > > I was so hoping for the shots. I too heard so many amazing stories > with them. I'm going to appeal and fight. I wish all mito people > could get it, because to me it makes sence that this would help make > the mitochondia stronger. Has any reseach been done in this area. > > The GH shot are very exspensive though. Maybe they could give it to > the sickest. > > The endo I saw is a research doctor as well. She really listened to > my mito symptoms and her thoughts she told me about the endochrine > system was so amazing and complex that I know there is much more for > doctors to figure out about mitochondria and all related disorders > and symptoms. > > Does the mitochondria break down because of other things or do other > thing break down becuase of defects of the mitochondria? > > I think once they unlock the key to the cell damage they will get > the big picture and start curing and treating these illnesses. > > In my searches and hearing other peoples stories, of lupus , ms, > cfs,etc , I come to see that the suffering is the same sharing many > of tha same symptoms and mistreatment by the medical profession ie- > it's all in our heads. > > There are MANY sufferers out there. > > I believe there will be a medical break through. we have to have > this hope. > > Ya know if they would stop working on making cell phones better and > consentrate on medical technology and research .......... :-) > > > > > >> >> >> It is good to hear from you. I have missed you too. >> >> I don't know if you have heard this or not, but several children > and teens >> that I am aware of have benefited from human growth hormone. Mito > can >> attack the endocrine system, the same way as it attacks other > organ systems. >> It is so hard to put everything into something that doesn't make > us pieces >> of bodies but a whole one (even if a poorly functioning one). >> >> laurie >> >>> From: " tanya2727 " >>> Reply-To: >>> Date: Thu, 01 Jul 2004 20:25:21 -0000 >>> To: >>> Subject: Going in circles / miss my mito friends >>> >>> Hi everyone. Sure do miss you all but I've been trying soooo > hard to >>> get concrete news to finally tell you before I checked back in. >>> >>> I did get a DX of fibromyalgia recently. I called my husband and >>> said I'm DX with something. I know many of you probaly have it > too, >>> but the muscle pain got so bad I finally went to a rhum. >>> >>> As you know I took a hiatus from the group to explore empty > sellar >>> syndrome which I know I have. On this support site many suffer > our >>> symptoms. I found a DR. from one of the members and I paid > $500.00 >>> to see her, she's an endochrinoligist. She said all my problems > are >>> from a growth hormone deficenecy so I had a 2 hour blood test > that >>> said I do. She wants me to get shots of GH. My insurane company > just >>> denided it. >>> >>> I'm not really convinced this is my problem. She said the > reason I >>> have the strokelike episodes is because I don't have enough GH. >>> This could be true. >>> >>> Many of my symptoms are fibromyalgia, but I still seem to have > the >>> mito symtoms too. >>> >>> My symptoms have increased and I have new problems too. My > epstein >>> barr count is up, I have a kidney infection,servere muscle pain, >>> vision problems, servere stomach distress, servere pain in my >>> shoulders and loss of strenght in them, etc. I can do very > little >>> without getting very tired so I go out very little. >>> >>> I do have a new attidude though about being chroniclly ill. I >>> joined rest ministries, a support site for the chron. ill and the >>> info and books I read really helped me so much. The church hurt > and >>> loss of friend hurt is ok now. It's a part of being chron. ill. I >>> socialize when I can and don't sweat it anymore when I can't. >>> >>> I've also learn how to be in a web support group without causing > a >>> stir. Every group has something and I understand what I'm looking >>> for and understand how far to go with comments and ideas. It's a >>> learning thing. Many people don't write and just lurk for this >>> reason. I'm glad you all really are nice and liked me. I've > come >>> to realize that this is a truly caring group and very smart and >>> devoted people are here. >>> >>> If anyone has any thoughts about my complex and confusing going > in >>> circles symptoms, please share. >>> >>> I hope you didn't forget me, >>> >>> >>> >>> >>> >>> Medical advice, information, opinions, data and statements > contained herein >>> are not necessarily those of the list moderators. The author of > this e mail is >>> entirely responsible for its content. List members are reminded > of their >>> responsibility to evaluate the content of the postings and > consult with their >>> physicians regarding changes in their own treatment. >>> >>> Personal attacks are not permitted on the list and anyone who > sends one is >>> automatically moderated or removed depending on the severity of > the attack. >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Chris Please see my post to O. I did forget to mention that if you can find out if your insurance has ever approved someone else (even in another state) this can give you leverage. laurie > From: chris1gill@... > Reply-To: > Date: Sun, 22 Aug 2004 07:55:12 EDT > To: > Subject: Re: Laurie > > > Hi Laurie, > > If I may ask, how did you get your medical insurance to cover the CoQ10 > under durable medical?? > > Thanks, > Chris > > In a message dated 8/21/2004 10:05:04 PM Eastern Daylight Time, > writes: > > Subject: Re: Re: ICD Code for Co Q-10 Help > > and Anita > > My blue cross pays part of my Q-gel under durable medical goods, not as a > prescription. > > laurie > > > > > > > Quote Link to comment Share on other sites More sharing options...
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