Re: Have you gotten to the point?

[Guest guest]

YES, I haveshore gotten to this point (a LONF time ago) and have gone

as far as ringing all the doc's in my area when I need to see a new

one or new kind and asking the secretaries to ask the doc's and to

call me back with the answer ( " Do you know anything about EDS? and if

so how much?) and then I tend to choose the one who knows (as long as

he/she is also good at what they do).

Sharon

> That when at a new Dr that doesn't know jack S..t about EDS, that

you just ( under your breath of course) you just laugh at them. Endro

yesterday, the Dr said he knew very little of EDS and continually

kept trying to hold Dylan's hand and stretch the skin off it. (his

skin isn't stretchy) Is that all they know?..... Dylan and I just

looked at each other and had that, why bother telling them, look

between us. The Drs you know you are going too see again, of course

you try to teach them what they are willing to learn, but the one

time Drs?... It's getting old.

> And the stiae marks? " ,,,,,,Well of course he has stretch marks he

has gained 20 pounds and grew an inch " . Give me a break please!!!!

Can we please see a real Dr????

> Cindy C.

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