heelp...need to find a docc fast....urgent

[Guest guest]

I am having a huge crisis with a huge spike in pain all of the suddden. I

was decompressed for the second time in Sept and had a VP shunt put in by Dr

Bolognese, They had to take the shut out for a month or so later b/c of an

allergy. I am in more pain now than ever. Pain and pressure in the back of my

head. Worsening of the baseline to serious severe cough headaches, and

headaches when pushing to pee or poop. Tingling in my face and right arm, poor

balence, nausea. I'm scared, I dont know what is going wrong. I have been to

the

er 5 tines and they were only willing to treat me once. I am getting so

depressed. My autonomic stuff is out of control My vision is messed up. I

need

help. I am going to some friends and my sister to get away from home next

week. I'd like to know what doctors are in the area so I'll know where to go if

I need to. I'll be in the Colombus Ohio Area first, then in Chicago. Please

help me.

SharonWalk

SharonW1124@...

come visit me on my web page

http://hometown.aol.com/sharonw1124/index.html

[Guest guest]

Sharon

I'm sorry to hear that you are not doing well. What supplements are you

taking? Does your doctor think that any new ones or increase in dosage might

help?

Pain just brings more pain, as it stresses our bodies. Have you tried

sleeping as much as you can for a few days? This helps me when in a crash.

laurie

> From: SharonW1124@...

> Reply-To:

> Date: Sat, 26 Jun 2004 20:49:11 EDT

> To:

> Subject: heelp...need to find a docc fast....urgent

>

> I am having a huge crisis with a huge spike in pain all of the suddden. I

> was decompressed for the second time in Sept and had a VP shunt put in by Dr

> Bolognese, They had to take the shut out for a month or so later b/c of an

> allergy. I am in more pain now than ever. Pain and pressure in the back of

> my

> head. Worsening of the baseline to serious severe cough headaches, and

> headaches when pushing to pee or poop. Tingling in my face and right arm, poor

> balence, nausea. I'm scared, I dont know what is going wrong. I have been to

> the

> er 5 tines and they were only willing to treat me once. I am getting so

> depressed. My autonomic stuff is out of control My vision is messed up. I

> need

> help. I am going to some friends and my sister to get away from home next

> week. I'd like to know what doctors are in the area so I'll know where to go

> if

> I need to. I'll be in the Colombus Ohio Area first, then in Chicago. Please

> help me.

>

> SharonWalk

> SharonW1124@...

>

> come visit me on my web page

> http://hometown.aol.com/sharonw1124/index.html

>

>

>

[Guest guest]

Here is the chapter contact in Chicago. You might want to try to reach her and

see if she can help.

Chicago Group

Contact: karenplewis@...

and Gail Wehling

For Ohio

OHchapter@...

Lyman

In Cleveland - on the UMDF Board

S. Kerr, M.D., Ph.D.

Case Western Reserve University

Cleveland, OH

Or E-mail Kara Strittmatter at Kara@... who is in the office and many times

can offer suggestions for physicians.

I'm sorry you are dealing with all of this. It is one of the difficulties of

the disease. Hopefully, you can find some help thru these resources.

Alice

[Guest guest]

I do not know of any doctors in Chicago, but Dr Tick is north of Milwaukee,

about 1 1/2 -2 hrs away depending on what side of Chicago you are at. If

you want I can give you his number but he is very hard to get hold of.

Janet Sample

Re: heelp...need to find a docc fast....urgent

>

> Here is the chapter contact in Chicago. You might want to try to reach

her and see if she can help.

>

> Chicago Group

> Contact: karenplewis@...

> and Gail Wehling

>

> For Ohio

>

> OHchapter@...

> Lyman

>

> In Cleveland - on the UMDF Board

>

> S. Kerr, M.D., Ph.D.

> Case Western Reserve University

> Cleveland, OH

>

>

> Or E-mail Kara Strittmatter at Kara@... who is in the office and many

times can offer suggestions for physicians.

>

> I'm sorry you are dealing with all of this. It is one of the difficulties

of the disease. Hopefully, you can find some help thru these resources.

>

> Alice

>

>

>

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e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

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>

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automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Dr Tick is a great suggestion Janet and if he is that close, I would make that

my recommendation. I know we have members of this list who feel he is wonderful

with Mito patients.

Thanks for sharing this possibility.

Alice