Mattie and the future

[Guest guest]

I have to ditto . Debra, That was a beautiful message. Thank you so

much for taking the time to send it when I know you are so very ill.

Hugs!

Alice

---------- Forwarded Message ----------

that was beautiful Debra, thank you!

Smiles,

Mattie and the future

> I have only been on this group for a few months, it was Alice's suggestion

that I read here because she is certain I have mito...we connected through

my ci and deafness. I have never lurked on a more caring, genuine board.

Everyone here is family, I have no idea how long this has existed but it

seems like births and deaths are a family thing and each of you is just

emailing, instead of grabbing the phone. There are celebrations of

victories, and common goals of sharing the important information mito

warrants that are profound but, the sharing of the everyday challenges, the

long almost endless wait for diagnoses, and the down times are what makes

everyone feel so at ease and comfortable.

>

> I found out about Mattie Stepanik while watching Oprah a year or more ago.

He was asking that everyone concentrate healing thoughts about a sore on his

head that might need a skin graft if it didn't heal soon and surgery for the

graft was too risky. I thought he had MD and felt pain that he and his Mom

battled this alone but together after her losing three other children and

knowing his time was limited. It was not until yesterday that I read he had

mito. I know each of you feels as if a relative has passed. He gave this

awful disease visibility and prayerfully, I hope his death will bring it

more awareness also.

>

> I am sorry your most visible spokesperson is gone but his legacy of

looking to the future while celebrating today is alive and flourishing on

. Tonight I pray each of you realizes your special place in this

world also.

>

> Debra

>

>