Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hello, my name is Anne, I read here a lot and post very infrequently. You all have been so helpful. I was diagnosed last summer although my biopsy later came up negative. I have a daughter with complex 1 and 111 deficiency through muscle biopsy and I have been diagnosed off of symptoms and family history. I do see Dr Greg Enns at Stanford also, he is wonderful and has followed my daughter for 8 years but I also have a great neurologist in Greenbrae, California who does case management on us and is excellent in many ways. I have a question for Anita, my neuro and I came to the conclusion that I probably have PDH this last week and was wondering if you could post the protocol you are talking about. I don't see Dr. Enns until later in the summer and my neuro would like to discuss this with him before I go down there. Anymore information you could give me on this would be so appreciated. Thanks, Anne Quote Link to comment Share on other sites More sharing options...
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