Re: Im here/ Donna Hi! To Debbie and All Pin Pals

[Guest guest]

I think by now everyone knows that i am from Chino California. Feel free to 'map me'. That sounds like an interesting hobby. Will everyone get to see it or is it something that you are doing for your own personal use?.....lynlorraine wrote:

Debbie and to all "pin pals",I am happy you are using a map, too. It is fun to do! I know that you are above reproach. And I would love to share my info with you. That is not the point. I just don't want my fellow members thinking that I give out their information to others without approval and I don't know how to do this unless I ask each one each time. I did not think of this when I first started my hobby so I didn't set it up that way. In fact I thought EVERYONE on the site would love to have it! Several things have happened since then that make me realize it isn't that simple. Actually a big part of the fun and connectedness is asking each person for their info and then getting to meet them when they answer. What I did was post a message telling what I was doing and asking

if anyone would give me their town and state. Some replied publicly and others privately. Maybe I have answered my own question..... I hope you understand my postion. Let me say again. I think it is super cool that you are excited about posting a map. Several others started it when I did too. It is a great way to "see" the group everyday.I'd like to know how everyone feels about this. I need feedback. At this time I have decided to keep it to myself until I have a consensus. If everyone wants to have a list we share I could do that to!!! I'm open for suggestions from all, With love and hopes for pain free days. Lyn <ducotedm@b...> wrote:> Lyn, I have started putting stars on a U.S. map for all of us RSDers. Can you just send me city and states. I will figure out names. I don't want any of us to be stalked. HA!HA!

What excitement!!!!! Just kidding. > Thank You,> Debbie> > PS Add Monroe, Louisiana> > > > > >

[Guest guest]

Lyn, I understand your position and it would probably be more fun to find out

myself. I have some addresses for Christmas cards and I could use that as one

source plus my personal emails. Thank You for your honesty and the way you

protect member's privacy. After reading your letter I realized that you were

right. I went back to work today after two weeks off with every other day

having Stellate Ganglion Blocks. I had six and now I am back at work today. I

couldn't seem to focus b/c we increased the Neurotin again but I have the choice

uncontrollable pain or lack of the usual concentration. I have to get out 20

letters to principals in the morning by 7:30 and I am still working on them.

This is also the first night I have had my house to myself my mom has been

staying with me and it's been good just sitting in my chair with the heating pad

and watching my tree and relaxing. I will get the typing done in a few minutes

once I read my emails. I feel pretty good for my first day back. It's amazing

how things can change from day to day. That's one thing about RSD that is always

interesting to me. I better close, I am rambling. Thanks again for protecting

privacy. Love ya, Debbie D.

>

>

> Date: 2004/12/05 Sun PM 07:52:25 EST

> To: RSD-CRPSofAmerica

> Subject: Re: Im here/ Donna Hi! To Debbie and All Pin Pals

>

>

Debbie and to all " pin pals " ,

I am happy you are using a map, too. It is fun to do! I know that

you are above reproach. And I would love to share my info with you.

That is not the point. I just don't want my fellow members thinking

that I give out their information to others without approval and I

don't know how to do this unless I ask each one each time. I did

not think of this when I first started my hobby so I didn't set it

up that way. In fact I thought EVERYONE on the site would love to

have it! Several things have happened since then that make me

realize it isn't that simple.

Actually a big part of the fun and connectedness is asking each

person for their info and then getting to meet them when they

answer. What I did was post a message telling what I was doing and

asking if anyone would give me their town and state. Some replied

publicly and others privately. Maybe I have answered my own

question..... I hope you understand my postion. Let me say again.

I think it is super cool that you are excited about posting a map.

Several others started it when I did too. It is a great way

to " see " the group everyday.

I'd like to know how everyone feels about this. I need feedback.

At this time I have decided to keep it to myself until I have a

consensus. If everyone wants to have a list we share I could do

that to!!! I'm open for suggestions from all, With love and hopes

for pain free days. Lyn

<ducotedm@b...> wrote:

> Lyn, I have started putting stars on a U.S. map for all of us

RSDers. Can you just send me city and states. I will figure out

names. I don't want any of us to be stalked. HA!HA! What

excitement!!!!! Just kidding.

> Thank You,

> Debbie

>

> PS Add Monroe, Louisiana

> >

> >

> >

[Guest guest]

Lyn, I understand your position and it would probably be more fun to find out

myself. I have some addresses for Christmas cards and I could use that as one

source plus my personal emails. Thank You for your honesty and the way you

protect member's privacy. After reading your letter I realized that you were

right. I went back to work today after two weeks off with every other day

having Stellate Ganglion Blocks. I had six and now I am back at work today. I

couldn't seem to focus b/c we increased the Neurotin again but I have the choice

uncontrollable pain or lack of the usual concentration. I have to get out 20

letters to principals in the morning by 7:30 and I am still working on them.

This is also the first night I have had my house to myself my mom has been

staying with me and it's been good just sitting in my chair with the heating pad

and watching my tree and relaxing. I will get the typing done in a few minutes

once I read my emails. I feel pretty good for my first day back. It's amazing

how things can change from day to day. That's one thing about RSD that is always

interesting to me. I better close, I am rambling. Thanks again for protecting

privacy. Love ya, Debbie D.

>

>

> Date: 2004/12/05 Sun PM 07:52:25 EST

> To: RSD-CRPSofAmerica

> Subject: Re: Im here/ Donna Hi! To Debbie and All Pin Pals

>

>

Debbie and to all " pin pals " ,

I am happy you are using a map, too. It is fun to do! I know that

you are above reproach. And I would love to share my info with you.

That is not the point. I just don't want my fellow members thinking

that I give out their information to others without approval and I

don't know how to do this unless I ask each one each time. I did

not think of this when I first started my hobby so I didn't set it

up that way. In fact I thought EVERYONE on the site would love to

have it! Several things have happened since then that make me

realize it isn't that simple.

Actually a big part of the fun and connectedness is asking each

person for their info and then getting to meet them when they

answer. What I did was post a message telling what I was doing and

asking if anyone would give me their town and state. Some replied

publicly and others privately. Maybe I have answered my own

question..... I hope you understand my postion. Let me say again.

I think it is super cool that you are excited about posting a map.

Several others started it when I did too. It is a great way

to " see " the group everyday.

I'd like to know how everyone feels about this. I need feedback.

At this time I have decided to keep it to myself until I have a

consensus. If everyone wants to have a list we share I could do

that to!!! I'm open for suggestions from all, With love and hopes

for pain free days. Lyn

<ducotedm@b...> wrote:

> Lyn, I have started putting stars on a U.S. map for all of us

RSDers. Can you just send me city and states. I will figure out

names. I don't want any of us to be stalked. HA!HA! What

excitement!!!!! Just kidding.

> Thank You,

> Debbie

>

> PS Add Monroe, Louisiana

> >

> >

> >

[Guest guest]

Lyn, I understand your position and it would probably be more fun to find out

myself. I have some addresses for Christmas cards and I could use that as one

source plus my personal emails. Thank You for your honesty and the way you

protect member's privacy. After reading your letter I realized that you were

right. I went back to work today after two weeks off with every other day

having Stellate Ganglion Blocks. I had six and now I am back at work today. I

couldn't seem to focus b/c we increased the Neurotin again but I have the choice

uncontrollable pain or lack of the usual concentration. I have to get out 20

letters to principals in the morning by 7:30 and I am still working on them.

This is also the first night I have had my house to myself my mom has been

staying with me and it's been good just sitting in my chair with the heating pad

and watching my tree and relaxing. I will get the typing done in a few minutes

once I read my emails. I feel pretty good for my first day back. It's amazing

how things can change from day to day. That's one thing about RSD that is always

interesting to me. I better close, I am rambling. Thanks again for protecting

privacy. Love ya, Debbie D.

>

>

> Date: 2004/12/05 Sun PM 07:52:25 EST

> To: RSD-CRPSofAmerica

> Subject: Re: Im here/ Donna Hi! To Debbie and All Pin Pals

>

>

Debbie and to all " pin pals " ,

I am happy you are using a map, too. It is fun to do! I know that

you are above reproach. And I would love to share my info with you.

That is not the point. I just don't want my fellow members thinking

that I give out their information to others without approval and I

don't know how to do this unless I ask each one each time. I did

not think of this when I first started my hobby so I didn't set it

up that way. In fact I thought EVERYONE on the site would love to

have it! Several things have happened since then that make me

realize it isn't that simple.

Actually a big part of the fun and connectedness is asking each

person for their info and then getting to meet them when they

answer. What I did was post a message telling what I was doing and

asking if anyone would give me their town and state. Some replied

publicly and others privately. Maybe I have answered my own

question..... I hope you understand my postion. Let me say again.

I think it is super cool that you are excited about posting a map.

Several others started it when I did too. It is a great way

to " see " the group everyday.

I'd like to know how everyone feels about this. I need feedback.

At this time I have decided to keep it to myself until I have a

consensus. If everyone wants to have a list we share I could do

that to!!! I'm open for suggestions from all, With love and hopes

for pain free days. Lyn

<ducotedm@b...> wrote:

> Lyn, I have started putting stars on a U.S. map for all of us

RSDers. Can you just send me city and states. I will figure out

names. I don't want any of us to be stalked. HA!HA! What

excitement!!!!! Just kidding.

> Thank You,

> Debbie

>

> PS Add Monroe, Louisiana

> >

> >

> >

[Guest guest]

Dear Debbie,

Glad you understand. I was sure you would! Thank you. Have some

fun with your mapping and let me know how you enjoy it and how you

have set it up, when you have a chance.

I hope your blocks and neurontin help you stabilize pain and

concentration and you can get your work down as planned. I also am

constantly amazed how things change from day to day. What a puzzle

we live! With love and hopes for pain free days, Lyn

<ducotedm@b...> wrote:

> Lyn, I understand your position and it would probably be more fun

to find out myself.

.. I went back to work today after two weeks off with every other

day having Stellate Ganglion Blocks. I had six and now I am back at

work today. I couldn't seem to focus b/c we increased the Neurotin

again but I have the choice uncontrollable pain or lack of the usual

concentration.

I feel pretty good for my first day back. It's amazing how things

can change from day to day. That's one thing about RSD that is

always interesting to me. I better close, I am rambling. Thanks

again for protecting privacy. Love ya, Debbie D.

> >