Thanks Laurie, Re: QGel orphan drug status?

[Guest guest]

Laurie, Thanks for the further info. I'm collecting as much as I

can and then will tackle the insurance company again. I spent

1/2 hour with them this morning and got no place, but I'm tough

and will persevere!

Best Wishes,

Anita

> Anita

>

> I think it was Janet Sample that got coverage under the orphan

drug status.

> I have had mine partially covered since I started using it. They

are paying

> for it under durable medical goods and not as a prescription.

>

> Orphan drugs are those that are used for low incidence

diseases. These

> diseases are called orphan diseases. I think that it won't be

terribly long

> before they see it for non-orphan status. They are now using

for ALS and

> Parkinson's besides the one's Barbara mentioned. I think they

are also

> trying it for SMA as well. All probably low incidence diseases,

but

> together, a big chunk of the population.

>

> laurie

>

> > From: " Anita "

> > Reply-To:

> > Date: Mon, 07 Jun 2004 15:03:17 -0000

> > To:

> > Subject: QGel orphan drug status?

> >

> > Someone on the Forum (maybe Laurie?) told me that some

> > insurance companies will pay for Q gel with a mito disease

> > diagnosis because it has an " orphan drug " status. Just got

off

> > the phone trying to find out if my insurance company will pay

for

> > Q gel because it has orphan drug status and thay haven't a

clue

> > as to what I'm talking about. Neither, to be honest, do I. Can

> > anybody clue me in?

> >

> > Thanks, Anita

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author

of this e mail is

> > entirely responsible for its content. List members are

reminded of their

> > responsibility to evaluate the content of the postings and

consult with their

> > physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone

who sends one is

> > automatically moderated or removed depending on the

severity of the attack.

> >

> >

> >

> >

[Guest guest]

Anita

I dealt with the case management department for mine. I now have a case

manager, so anything that doesn't go through as it should, I call her.

Good luck,

laurie

>

> Reply-To:

> Date: Tue, 08 Jun 2004 01:04:41 -0000

> To:

> Subject: Thanks Laurie, Re: QGel orphan drug status?

>

> Laurie, Thanks for the further info. I'm collecting as much as I

> can and then will tackle the insurance company again. I spent

> 1/2 hour with them this morning and got no place, but I'm tough

> and will persevere!

>

> Best Wishes,

> Anita

>

>

>> Anita

>>

>> I think it was Janet Sample that got coverage under the orphan

> drug status.

>> I have had mine partially covered since I started using it. They

> are paying

>> for it under durable medical goods and not as a prescription.

>>

>> Orphan drugs are those that are used for low incidence

> diseases. These

>> diseases are called orphan diseases. I think that it won't be

> terribly long

>> before they see it for non-orphan status. They are now using

> for ALS and

>> Parkinson's besides the one's Barbara mentioned. I think they

> are also

>> trying it for SMA as well. All probably low incidence diseases,

> but

>> together, a big chunk of the population.

>>

>> laurie

>>

>>> From: " Anita "

>>> Reply-To:

>>> Date: Mon, 07 Jun 2004 15:03:17 -0000

>>> To:

>>> Subject: QGel orphan drug status?

>>>

>>> Someone on the Forum (maybe Laurie?) told me that some

>>> insurance companies will pay for Q gel with a mito disease

>>> diagnosis because it has an " orphan drug " status. Just got

> off

>>> the phone trying to find out if my insurance company will pay

> for

>>> Q gel because it has orphan drug status and thay haven't a

> clue

>>> as to what I'm talking about. Neither, to be honest, do I. Can

>>> anybody clue me in?

>>>

>>> Thanks, Anita

>>>

>>>

>>>

>>> Medical advice, information, opinions, data and statements

> contained herein

>>> are not necessarily those of the list moderators. The author

> of this e mail is

>>> entirely responsible for its content. List members are

> reminded of their

>>> responsibility to evaluate the content of the postings and

> consult with their

>>> physicians regarding changes in their own treatment.

>>>

>>> Personal attacks are not permitted on the list and anyone

> who sends one is

>>> automatically moderated or removed depending on the

> severity of the attack.

>>>

>>>

>>>

>>>