Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hi - Thanks to Janet and Adrienne for answering my questions. I have seen Dr. s of Beth Isreal Deaconess Hosptial in Boston twice, and have an apt. with Dr Mark Korson there in Sept. Dr. s is extremely nice but had high hopes for carnitor helping me, which it did not. ( I have huge loss of energy and stamina, weakness and faintness.) He seems to have no other suggestions except a sleep study. He did not feel that the mito cocktail was too important and did not mention that Co-Q-10 or Carnitor were available in liquiid form. If it may be better aborbed why didn't he mention it?? He also feels that a muscle biopsy would be too much for me to go through and not give answers that would help treatment. ( We've all heard this - right?)I am torn wondering if I need to accept that nothing can be done, or should I contiue to look for a doctor with more ideas to try? My GP is wonderful and watches the nutritional issues but a researcher would be beneficial. there is also an MDA doctor in my town, East Lansing, Michigan, but I have not felt that my primary symptoms were muscular. Any opinions most welcome, and thank to all of you for sharing all wisdom and support! Marjette Quote Link to comment Share on other sites More sharing options...
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