Re: Liquid supplements and mito consults

[Guest guest]

Marjette

My suggestion is to see the MDA doc who I have been seeing for about 10

years and see what he thinks. He is a very good internist, so he might have

some ideas if he doesn't feel you meet the criteria to see him.

laurie

>

> Reply-To:

> Date: Sun, 06 Jun 2004 21:00:15 -0000

> To:

> Subject: Liquid supplements and mito consults

>

> Hi - Thanks to Janet and Adrienne for answering my questions. I

> have seen Dr. s of Beth Isreal Deaconess Hosptial in

> Boston twice, and have an apt. with Dr Mark Korson there in Sept. Dr.

> s is extremely nice but had high hopes for carnitor helping me,

> which it did not. ( I have huge loss of energy and stamina, weakness

> and faintness.) He seems to have no other suggestions except a

> sleep study. He did not feel that the mito cocktail was too

> important and did not mention that Co-Q-10 or Carnitor were available

> in liquiid form. If it may be better aborbed why didn't he mention

> it?? He also feels that a muscle biopsy would be too much for me to

> go through and not give answers that would help treatment. ( We've

> all heard this - right?)I am torn wondering if I need to accept that

> nothing can be done, or should I contiue to look for a doctor with

> more ideas to try? My GP is wonderful and watches the nutritional

> issues but a researcher would be beneficial. there is also an MDA

> doctor in my town, East Lansing, Michigan, but I have not felt that

> my primary symptoms were muscular. Any opinions most welcome, and

> thank to all of you for sharing all wisdom and support! Marjette

>

>

>

> Medical advice, information, opinions, data and statements contained herein

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> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

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>

[Guest guest]

I agree with Laurie. My daughter and I see the same doc too!

marjette710 wrote:

>Hi - Thanks to Janet and Adrienne for answering my questions. I

>have seen Dr. s of Beth Isreal Deaconess Hosptial in

>Boston twice, and have an apt. with Dr Mark Korson there in Sept. Dr.

>s is extremely nice but had high hopes for carnitor helping me,

>which it did not. ( I have huge loss of energy and stamina, weakness

>and faintness.) He seems to have no other suggestions except a

>sleep study. He did not feel that the mito cocktail was too

>important and did not mention that Co-Q-10 or Carnitor were available

>in liquiid form. If it may be better aborbed why didn't he mention

>it?? He also feels that a muscle biopsy would be too much for me to

>go through and not give answers that would help treatment. ( We've

>all heard this - right?)I am torn wondering if I need to accept that

>nothing can be done, or should I contiue to look for a doctor with

>more ideas to try? My GP is wonderful and watches the nutritional

>issues but a researcher would be beneficial. there is also an MDA

>doctor in my town, East Lansing, Michigan, but I have not felt that

>my primary symptoms were muscular. Any opinions most welcome, and

>thank to all of you for sharing all wisdom and support! Marjette

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>