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Hi everyone!

Yesterday, I finally got to see a mito doc, Dr. Enns. He was very

nice, caring, and willing to listen! He's running some blood tests,

first. I should hear something in about a week. That should tell us where

to go

rom here. I've been sick since 1986, hope I can finally get a name to

it. I do have a mito disease (megamitochondria with extensive crystille

inclusions). Now, it is just finding out what it is.

Blessings,

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Hi , So gld your experience with the mito doc was a positive

one. Hope you soon get the specific answers you need very

soon. Waiting must be hard now that you're so close.

Best Wishes, Anita

>

>

> Hi everyone!

>

> Yesterday, I finally got to see a mito doc, Dr. Enns. He

was very

> nice, caring, and willing to listen! He's running some blood

tests,

> first. I should hear something in about a week. That should

tell us where

> to go

> rom here. I've been sick since 1986, hope I can finally get a

name to

> it. I do have a mito disease (megamitochondria with extensive

crystille

> inclusions). Now, it is just finding out what it is.

>

> Blessings,

>

>

>

>

>

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In a message dated 6/3/2004 9:53:33 PM Eastern Standard Time,

greytwhisperer@... writes:

Yesterday, I finally got to see a mito doc, Dr. Enns. He was very

nice, caring, and willing to listen! He's running some blood tests,

first. I should hear something in about a week.

HI ,

I am so glad that you had a good appt. with Dr Enns! It's wonderful to

finally have someone who gets it! Did he talk to you at all about the studies he

is

planning on doing with mito patients? He seems to have a lot planned for the

future.

Malisa

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Glad to hear you had a good appointment. Please keep us in the loop as

you find out more.

Kaspick wrote:

>

> Hi everyone!

>

>Yesterday, I finally got to see a mito doc, Dr. Enns. He was very

>nice, caring, and willing to listen! He's running some blood tests,

>first. I should hear something in about a week. That should tell us where

>to go

>rom here. I've been sick since 1986, hope I can finally get a name to

>it. I do have a mito disease (megamitochondria with extensive crystille

>inclusions). Now, it is just finding out what it is.

>

> Blessings,

>

>

>

>

>

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