Re: Low magnesium; for Alice...

[Guest guest]

Dear Alice,

Thanks so much for posting the very good article on the relationship of

low magnesium and tinnitus, both of which I have.

My endo put me on mg a month ago, and it seems to be helping with my

motility problems and with the muscle cramps.

Trouble is, it causes diarrhea, and hence long drives and magnesium can

be a bad mix!

IMPORTANT QUESTION FOR YOU:

I am sure that all of us are wondering if you are doing any better now?

It has been so rough for you for many months, Alice!

Do you have another CI mapping coming up? Have you been able to bring

your faithful Stella back into your life? Her companionship and

assistance are invaluable.

If you don't mind, kindly post and let us know your present status. You

have been a truly wonderful presence in our lives.

A thousand thanks to you for everything that you do for so many..

Take care, Alice

.

[Guest guest]

Hi ,

I appreciate your inquiry about me. Not a whole lot has changed and although Dr

Cohen would like to put me on some IV Carnitor, my PCP wanted me to try Creatine

instead which he gave her as an alternative. The Creatine helped me to feel

better but no matter how much water I drank, my ankles and my feet were swelling

up so I discontinued it. The doctor was concerned with a difficulty setting up

the IV Carnitor so I'm just holding off until I see her on 6/9.

I'm on Oxygen at night and I think that has helped somewhat. I will see the

pulmonologist this coming Friday to see what he wishes to do. I see the neuro

opthamologist on 6/7 as well so you see, I have a round of appointments ahead of

me.

We are going to try to map the new implant again on 6/29 (which was my mother's

birthday) and I am hopeful but not really confident that it's going to work this

time.

It would be nice to start feeling like a real person again. Quite frankly, the

way things are right now are making daily life very difficult and I have even

considered the possible need to start looking at assisted living facilities.

Alice

[Guest guest]

Dear Alice,

Your reply to my question makes me very concerned about you...You have

been such a dear friend to me since we met online in 1998. The current

multiple problems you face make this time sound like the most difficult

you have encountered thus far with mito. I am glad, though, that you

have these upcoming medical appts. Do these doctors know each other, and

work together on your behalf?

Is there any possible, known trigger for these symptoms? Have you had a

prolonged time with poor sleeping/resting? More stress? (Heaven knows

that the CI surgery would stress anyone!) I wish we lived nearby so I

could srop by for a chat. Do both Cindy and live near you now?

I m hoping and praying on your behalf, and I am certain there are MANY

also doing likewise.

Take care, Alice.

Love,