MERRF DISORDER (ABOUT VITAMINS AND DIETS)

[Guest guest]

HELLO I HAVE (MERRF SYNDROM) MYOCLONIC EPILEPTIC WITH RED REDGED

FIBERS. IT ALL STARTED AT AGE 20 I AM NOW 34 AND HAS INCREASED QUITE

A BIT, MY QUESTION IS ABOUT NATURAL DIETS THAT CAN HELP! I'M ON

MEDICATIONS THAT ARE HELPING ME FOR EPILEPSY AND JERKS (MUSCEL

CONTRACTION THAT LEAD TO UNVOLUNTARY MOVEMENT) I WOULD LIKE TO HAVE

MORE ENERGY WHICH WILL HELP ME A LOT I HEARD ABOUT L-CARNITINE AND

COENZYME Q10, IF SOMEONE HAS ALREADY BEEN ON THOSE VTAMINS PLEASE

WRITE BACK I'DE REALLY APPREACIATE IT.

THANKS,

SAL

[Guest guest]

Sal

Most of us take the carnitine and CoQ10. I take Carnitor (prescription) and

Q-gel (CoQ10 made by Tishcon that is the most bio-available). I can't say

they give me more energy, but at the same time, I will not be without them,

as my mito has not progressed nearly as fast as before since being on them.

I have had to go off of them for a muscle biopsy and felt terrible without

them. I know they improve my mental energy if not my physical energy.

laurie

>

> Reply-To:

> Date: Tue, 25 May 2004 02:15:57 -0000

> To:

> Subject: MERRF DISORDER (ABOUT VITAMINS AND DIETS)

>

> HELLO I HAVE (MERRF SYNDROM) MYOCLONIC EPILEPTIC WITH RED REDGED

> FIBERS. IT ALL STARTED AT AGE 20 I AM NOW 34 AND HAS INCREASED QUITE

> A BIT, MY QUESTION IS ABOUT NATURAL DIETS THAT CAN HELP! I'M ON

> MEDICATIONS THAT ARE HELPING ME FOR EPILEPSY AND JERKS (MUSCEL

> CONTRACTION THAT LEAD TO UNVOLUNTARY MOVEMENT) I WOULD LIKE TO HAVE

> MORE ENERGY WHICH WILL HELP ME A LOT I HEARD ABOUT L-CARNITINE AND

> COENZYME Q10, IF SOMEONE HAS ALREADY BEEN ON THOSE VTAMINS PLEASE

> WRITE BACK I'DE REALLY APPREACIATE IT.

>

> THANKS,

> SAL

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Thank you Laurie, I really appreciate it and hope we can all find something

better..

Sal

MERRF DISORDER (ABOUT VITAMINS AND DIETS)

>

> HELLO I HAVE (MERRF SYNDROM) MYOCLONIC EPILEPTIC WITH RED REDGED

> FIBERS. IT ALL STARTED AT AGE 20 I AM NOW 34 AND HAS INCREASED QUITE

> A BIT, MY QUESTION IS ABOUT NATURAL DIETS THAT CAN HELP! I'M ON

> MEDICATIONS THAT ARE HELPING ME FOR EPILEPSY AND JERKS (MUSCEL

> CONTRACTION THAT LEAD TO UNVOLUNTARY MOVEMENT) I WOULD LIKE TO HAVE

> MORE ENERGY WHICH WILL HELP ME A LOT I HEARD ABOUT L-CARNITINE AND

> COENZYME Q10, IF SOMEONE HAS ALREADY BEEN ON THOSE VTAMINS PLEASE

> WRITE BACK I'DE REALLY APPREACIATE IT.

>

> THANKS,

> SAL

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Hi Laurie, My naturopath has had me taking non-prescription

CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for a

long time. I've been paying for then out of pocket (ARG, $$$$!!),

but they have been worth their weight in gold as far as how much

better I feel on them. I'm going to be seeing my MD soon and I'd

like ask her about my getting them in a form that insurance

would pay for , i.e., via prescription. You mentioned the Carnitor

is prescription only, so that would probably qualify. Do you know

if there's much difference between L-Carnitine and Carnitor? As

far as the Q-gel by Tishcon, is that prescription only , too? Any

major differences there either?

THANKS!

Anita

[Guest guest]

Hi Anita, I was wondering how long did it take before seeing any difference with

L-Carnitine & Coenzyme Q10 I will start this diet soon I have MERRF disorder and

take prescription like Epival & KEPRA these help control my epilepsy and jerks.

Sincerely,

Sal

Re: MERRF DISORDER (ABOUT VITAMINS AND DIETS)

Hi Laurie, My naturopath has had me taking non-prescription

CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for a

long time. I've been paying for then out of pocket (ARG, $$$$!!),

but they have been worth their weight in gold as far as how much

better I feel on them. I'm going to be seeing my MD soon and I'd

like ask her about my getting them in a form that insurance

would pay for , i.e., via prescription. You mentioned the Carnitor

is prescription only, so that would probably qualify. Do you know

if there's much difference between L-Carnitine and Carnitor? As

far as the Q-gel by Tishcon, is that prescription only , too? Any

major differences there either?

THANKS!

Anita

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

[Guest guest]

Anita

The Carnitor is a prescription so it is regulated by the FDA (if in the US),

so it is of known quality and strength. It is L-Carnitine, but in

prescription form. The over the counter kind may not be as pure or the same

strength from one batch to another. I'm sorry to say that not many of us can

get the CoQ10 covered by insurance. I get some of mine covered, but not by

prescription insurance. The Tishcon Q-gel has orphan drug status, so it is

worth trying to get it covered.

Good luck getting it all covered. It is expensive.

laurie

>

> Reply-To:

> Date: Wed, 26 May 2004 01:16:47 -0000

> To:

> Subject: Re: MERRF DISORDER (ABOUT VITAMINS AND DIETS)

>

>

>

> Hi Laurie, My naturopath has had me taking non-prescription

> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for a

> long time. I've been paying for then out of pocket (ARG, $$$$!!),

> but they have been worth their weight in gold as far as how much

> better I feel on them. I'm going to be seeing my MD soon and I'd

> like ask her about my getting them in a form that insurance

> would pay for , i.e., via prescription. You mentioned the Carnitor

> is prescription only, so that would probably qualify. Do you know

> if there's much difference between L-Carnitine and Carnitor? As

> far as the Q-gel by Tishcon, is that prescription only , too? Any

> major differences there either?

>

> THANKS!

> Anita

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Laurie, Thank so much for your info about the Carnitor and Q-gel.

We

shall see how my insurance company reacts. I have an

insurance company

which has been surprisingly good to me over the years with my

Lyme

Disease needs, when other people's insurance companies

were rejecting

THEIR needs, so I hope my good forutune will continue.

I have been SO sorry to read of your van trials and tribulations.

Glad

you survived the latest of the " attack of the frankly, cranky, balky

van " . SO glad you FINALLY got home OK. You are one AMAZING

woman!

Hugs, Anita

<

>

[Guest guest]

Anita

Thanks for the compliment.

They have to replace the fuel pump which they hope to do tomorrow.

Get as much info as you can to present to your insurance. There are several

articles on the UMDF website and a good article on the MDA website.

laurie

>

> Reply-To:

> Date: Wed, 26 May 2004 18:34:31 -0000

> To:

> Subject: Re: MERRF DISORDER (ABOUT VITAMINS AND DIETS)

>

>

> Laurie, Thank so much for your info about the Carnitor and Q-gel.

> We

> shall see how my insurance company reacts. I have an

> insurance company

> which has been surprisingly good to me over the years with my

> Lyme

> Disease needs, when other people's insurance companies

> were rejecting

> THEIR needs, so I hope my good forutune will continue.

>

> I have been SO sorry to read of your van trials and tribulations.

> Glad

> you survived the latest of the " attack of the frankly, cranky, balky

> van " . SO glad you FINALLY got home OK. You are one AMAZING

> woman!

>

> Hugs, Anita

>

> <

in

> the US),

> so it is of known quality and strength. It is L-Carnitine, but in

> prescription form. The over the counter kind may not be as pure

> or the

> same

> strength from one batch to another. I'm sorry to say that not many

> of us

> can

> get the CoQ10 covered by insurance. I get some of mine

> covered, but not

> by

> prescription insurance. The Tishcon Q-gel has orphan drug

> status, so it

> is

> worth trying to get it covered.

>

> Good luck getting it all covered. It is expensive.

>

> laurie>>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Hi Sal,

I " probably " have a rare type of mito disorder called Pyruvate

Dehydrogenase Complex Deficiency (PDCD), so I'm not sure if

my experience with nutritional supplements is the norm. My

positive reaction to things like L-Carnitine and Co Q 10, as well

as a bunch of other nutritional supplements including

manganese, zinc, B1 injections, B complex injections, niacin,

alpha lipoic acid, taurine, and biotin work within an hour. If I

forget to take them and am even a few hours late, the jerking,

ataxia, tremors, muscle weakness, brain fog, supersensitivity top

sound (hyperacusis) etc., return with venegeance. I'm fortunate

to be able to get relief nutritionally because I'm almost a

universal reactor in that I can't take drugs, even OTC pain

relievers.

Best Wishes in your own health journey,

Anita

----------------------------------------------

> Hi Anita, I was wondering how long did it take before seeing

any difference with L-Carnitine & Coenzyme Q10 I will start this

diet soon I have MERRF disorder and take prescription like

Epival & KEPRA these help control my epilepsy and jerks.

>

> Sincerely,

> Sal

> Re: MERRF DISORDER (ABOUT VITAMINS

AND DIETS)

>

>

>

>

> Hi Laurie, My naturopath has had me taking non-prescription

> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for

a

> long time. I've been paying for then out of pocket (ARG,

$$$$!!),

> but they have been worth their weight in gold as far as how

much

> better I feel on them. I'm going to be seeing my MD soon and

I'd

> like ask her about my getting them in a form that insurance

> would pay for , i.e., via prescription. You mentioned the

Carnitor

> is prescription only, so that would probably qualify. Do you

know

> if there's much difference between L-Carnitine and Carnitor?

As

> far as the Q-gel by Tishcon, is that prescription only , too? Any

> major differences there either?

>

> THANKS!

> Anita

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list

moderators. The author of this e mail is entirely responsible for

its content. List members are reminded of their responsibility to

evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending

on the severity of the attack.

>

>

>

>

[Guest guest]

Hi Sal,

I " probably " have a rare type of mito disorder called Pyruvate

Dehydrogenase Complex Deficiency (PDCD), so I'm not sure if

my experience with nutritional supplements is the norm. My

positive reaction to things like L-Carnitine and Co Q 10, as well

as a bunch of other nutritional supplements including

manganese, zinc, B1 injections, B complex injections, niacin,

alpha lipoic acid, taurine, and biotin work within an hour. If I

forget to take them and am even a few hours late, the jerking,

ataxia, tremors, muscle weakness, brain fog, supersensitivity top

sound (hyperacusis) etc., return with venegeance. I'm fortunate

to be able to get relief nutritionally because I'm almost a

universal reactor in that I can't take drugs, even OTC pain

relievers.

Best Wishes in your own health journey,

Anita

----------------------------------------------

> Hi Anita, I was wondering how long did it take before seeing

any difference with L-Carnitine & Coenzyme Q10 I will start this

diet soon I have MERRF disorder and take prescription like

Epival & KEPRA these help control my epilepsy and jerks.

>

> Sincerely,

> Sal

> Re: MERRF DISORDER (ABOUT VITAMINS

AND DIETS)

>

>

>

>

> Hi Laurie, My naturopath has had me taking non-prescription

> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for

a

> long time. I've been paying for then out of pocket (ARG,

$$$$!!),

> but they have been worth their weight in gold as far as how

much

> better I feel on them. I'm going to be seeing my MD soon and

I'd

> like ask her about my getting them in a form that insurance

> would pay for , i.e., via prescription. You mentioned the

Carnitor

> is prescription only, so that would probably qualify. Do you

know

> if there's much difference between L-Carnitine and Carnitor?

As

> far as the Q-gel by Tishcon, is that prescription only , too? Any

> major differences there either?

>

> THANKS!

> Anita

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list

moderators. The author of this e mail is entirely responsible for

its content. List members are reminded of their responsibility to

evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending

on the severity of the attack.

>

>

>

>

[Guest guest]

Thank you Anita, I also wish you the best what you described about the jerks

looks pretty much like what happens to me. I was wondering with your nutritional

diet does it control your jerks completely? In my case I still cant and is

quite frustrating but hopefully Carnitine & Qo10 will help.. Any advice would be

greatly appreciated.

Sal

Re: MERRF DISORDER (ABOUT VITAMINS

AND DIETS)

>

>

>

>

> Hi Laurie, My naturopath has had me taking non-prescription

> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for

a

> long time. I've been paying for then out of pocket (ARG,

$$$$!!),

> but they have been worth their weight in gold as far as how

much

> better I feel on them. I'm going to be seeing my MD soon and

I'd

> like ask her about my getting them in a form that insurance

> would pay for , i.e., via prescription. You mentioned the

Carnitor

> is prescription only, so that would probably qualify. Do you

know

> if there's much difference between L-Carnitine and Carnitor?

As

> far as the Q-gel by Tishcon, is that prescription only , too? Any

> major differences there either?

>

> THANKS!

> Anita

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list

moderators. The author of this e mail is entirely responsible for

its content. List members are reminded of their responsibility to

evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending

on the severity of the attack.

>

>

>

>

[Guest guest]

Sal

I take the prescription " Lamictal " which almost completely controls my

myoclonus (jerking) unless I have really overdone it.

laurie

>

> Reply-To:

> Date: Thu, 27 May 2004 17:27:21 -0400

> To: >

> Subject: Re: MERRF DISORDER (ABOUT VITAMINS AND DIETS)

>

> Thank you Anita, I also wish you the best what you described about the jerks

> looks pretty much like what happens to me. I was wondering with your

> nutritional diet does it control your jerks completely? In my case I still

> cant and is quite frustrating but hopefully Carnitine & Qo10 will help.. Any

> advice would be greatly appreciated.

>

> Sal

> Re: MERRF DISORDER (ABOUT VITAMINS

> AND DIETS)

>>

>>

>>

>>

>> Hi Laurie, My naturopath has had me taking non-prescription

>> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for

> a

>> long time. I've been paying for then out of pocket (ARG,

> $$$$!!),

>> but they have been worth their weight in gold as far as how

> much

>> better I feel on them. I'm going to be seeing my MD soon and

> I'd

>> like ask her about my getting them in a form that insurance

>> would pay for , i.e., via prescription. You mentioned the

> Carnitor

>> is prescription only, so that would probably qualify. Do you

> know

>> if there's much difference between L-Carnitine and Carnitor?

> As

>> far as the Q-gel by Tishcon, is that prescription only , too? Any

>> major differences there either?

>>

>> THANKS!

>> Anita

>>

>>

>>

>>

>>

>>

>>

>> Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list

> moderators. The author of this e mail is entirely responsible for

> its content. List members are reminded of their responsibility to

> evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>>

>> Personal attacks are not permitted on the list and anyone who

> sends one is automatically moderated or removed depending

> on the severity of the attack.

>>

>>

>>

>>

[Guest guest]

Hi Laurie,

I read about Lamictal it looks very much like what I'm on right now Epival and

Keppra which are also Anti-Epilepsy and help a bit controlling my myoclonus

(jerking) I will continue my journey with CoQ10 & L Carnitine and see how better

I feel, my goal is to try not taking any more drugs if possible?

Thanks

Sal

Re: MERRF DISORDER (ABOUT VITAMINS

> AND DIETS)

>>

>>

>>

>>

>> Hi Laurie, My naturopath has had me taking non-prescription

>> CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs) for

> a

>> long time. I've been paying for then out of pocket (ARG,

> $$$$!!),

>> but they have been worth their weight in gold as far as how

> much

>> better I feel on them. I'm going to be seeing my MD soon and

> I'd

>> like ask her about my getting them in a form that insurance

>> would pay for , i.e., via prescription. You mentioned the

> Carnitor

>> is prescription only, so that would probably qualify. Do you

> know

>> if there's much difference between L-Carnitine and Carnitor?

> As

>> far as the Q-gel by Tishcon, is that prescription only , too? Any

>> major differences there either?

>>

>> THANKS!

>> Anita

>>

>>

>>

>>

>>

>>

>>

>> Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list

> moderators. The author of this e mail is entirely responsible for

> its content. List members are reminded of their responsibility to

> evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>>

>> Personal attacks are not permitted on the list and anyone who

> sends one is automatically moderated or removed depending

> on the severity of the attack.

>>

>>

>>

>>

[Guest guest]

Hi Sal, In my case with PDCD (probably NOT your " average "

mito disease) I am lucky that the L-Carnitine and C0Q10, plus a

WIDE range of (specific for me via tests) nutritional

supplements including B 1 (thiamine) and B complex injections,

specific amino acids, and MANY minerals plus lots of organic

butter, " Udo Blen Oil (a high omega 3-6-9-fatty acid oil blend)

and a ketogenic diet generally keep me pretty much seizure, jerk,

and tremor free now. However, if I miss even one component by

even a couple of hours, or am under a lot of stress or physical

exercise without taking my " regime " more frequently, they all

return, so I know it's effective " symptom management " , but not

" cure " .

Interestingly, perhaps because PDCD can " screw up " sodium

ion channel function, GREEN veggies usually cause me to seize,

unless I eat them in very small quantities, perhaps because they

are so high in potassium and that throws the sodium/potassium

balance off. A heck of a thing for a vegetarian!!!

Best Wishes in your quest for help and answers that will work for

you.

Anita

> > Hi Anita, I was wondering how long did it take before seeing

> any difference with L-Carnitine & Coenzyme Q10 I will start

this

> diet soon I have MERRF disorder and take prescription like

> Epival & KEPRA these help control my epilepsy and jerks.

> >

> > Sincerely,

> > Sal

> > Re: MERRF DISORDER (ABOUT

VITAMINS

> AND DIETS)

> >

> >

> >

> >

> > Hi Laurie, My naturopath has had me taking

non-prescription

> > CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs)

for

> a

> > long time. I've been paying for then out of pocket (ARG,

> $$$$!!),

> > but they have been worth their weight in gold as far as how

> much

> > better I feel on them. I'm going to be seeing my MD soon

and

> I'd

> > like ask her about my getting them in a form that

insurance

> > would pay for , i.e., via prescription. You mentioned the

> Carnitor

> > is prescription only, so that would probably qualify. Do you

> know

> > if there's much difference between L-Carnitine and

Carnitor?

> As

> > far as the Q-gel by Tishcon, is that prescription only , too?

Any

> > major differences there either?

> >

> > THANKS!

> > Anita

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list

> moderators. The author of this e mail is entirely responsible

for

> its content. List members are reminded of their responsibility

to

> evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone

who

> sends one is automatically moderated or removed depending

> on the severity of the attack.

> >

> >

> >

> >

[Guest guest]

Hi Anita,

Wow you really have to be disciplined I can tell your a strong woman to go

through all this! For me to take a few pills a day its a struggle I cant see

myself going through a strict diet plus injections like you. I guess I'm lucky

and should not complain as I can see how people like you can be an inspiration

for me to be more disciplined.

Talk to you soon Anita,

Sal

Re: MERRF DISORDER (ABOUT

VITAMINS

> AND DIETS)

> >

> >

> >

> >

> > Hi Laurie, My naturopath has had me taking

non-prescription

> > CoQ 10 (Lipoquinone-100mgs) and L-Carnitine (330mgs)

for

> a

> > long time. I've been paying for then out of pocket (ARG,

> $$$$!!),

> > but they have been worth their weight in gold as far as how

> much

> > better I feel on them. I'm going to be seeing my MD soon

and

> I'd

> > like ask her about my getting them in a form that

insurance

> > would pay for , i.e., via prescription. You mentioned the

> Carnitor

> > is prescription only, so that would probably qualify. Do you

> know

> > if there's much difference between L-Carnitine and

Carnitor?

> As

> > far as the Q-gel by Tishcon, is that prescription only , too?

Any

> > major differences there either?

> >

> > THANKS!

> > Anita

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list

> moderators. The author of this e mail is entirely responsible

for

> its content. List members are reminded of their responsibility

to

> evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone

who

> sends one is automatically moderated or removed depending

> on the severity of the attack.

> >

> >

> >

> >

[Guest guest]

Hi Sal, Thanks for the kind words!

Not sure " disciplined " OR " strong " apply. I suspect " desperate

with a strong will to live " might .

By essentially having to " go it alone " without a lot of positive

traditional MD input (other than 1st- it's all in your head; then- we

don't know what's wrong with you , live with it, and you'll probably

get get sicker)...... I've been forced to explore a lot of other healing

alternatives, some of which lead me to nutritionally savvy

alternative/integrated medicine MD's and naturopaths.

I am so blessed to have my symptoms of 22 years to be

gradually improving over the past several years on my nutritional

regime. Now, with the help of some wonderful and generous

mitos I am learning more about the 'why " .

Healing Best Wishes,

Anita