Feeling terrible since tilt table test

[Guest guest]

In a message dated 5/20/2004 1:21:53 PM Eastern Standard Time,

hanna5918@... writes:

My doctor didn't understand why it worked but I know it

did. I'm really desparate for some relief. I called the neuro

yesterday who ordered the test and he prescribed antivert which isn't

doing anything but making me more tired. Any ideas?

Hi Hanna,

I have actually heard this before. People with Chronic fatigue sydrome who

have the tilt test done often feel worse for a few days afterwards. I would

imagine it would be similar with any patient who has a positive test. They are

basically stressing your body when you have the tilt test and since any type of

stressor can bring on symptoms in a mito patient, it would make sense that

you could feel worse afterwards. I didn't feel well for the rest of the evening

after I had my test last year, but I think I felt ok the next day.

I hope you feel better! REST until things get better.

Malisa

[Guest guest]

Has anyone here had a tilt table test? I had the test Tuesday and

since then I feel like every symptom I've ever had is back. I am

extremely weak and fatigued, my heart races when I move, I have

trembling, chills, my skin is itching and tingling all over, nausea

and retching, eye pain, and the list goes on. I didn't feel well

before the test but nothing like this. I'm tempted to take some

leftover prednisone, as I took this in the past when I had bad

symptoms. My doctor didn't understand why it worked but I know it

did. I'm really desparate for some relief. I called the neuro

yesterday who ordered the test and he prescribed antivert which isn't

doing anything but making me more tired. Any ideas?

[Guest guest]

Hanna

You might have been coming down with a virus when you went for the test and

now you are battling both. I usually take some extra CoQ10 before or after

any test that is stressful.

Prednisone worked for me a couple of times and then didn't anymore. I just

took a week long burst. You should probably check with the doctor before

taking it.

I hope you get to feeling better.

laurie

>

> Reply-To:

> Date: Thu, 20 May 2004 17:18:17 -0000

> To:

> Subject: Feeling terrible since tilt table test

>

> Has anyone here had a tilt table test? I had the test Tuesday and

> since then I feel like every symptom I've ever had is back. I am

> extremely weak and fatigued, my heart races when I move, I have

> trembling, chills, my skin is itching and tingling all over, nausea

> and retching, eye pain, and the list goes on. I didn't feel well

> before the test but nothing like this. I'm tempted to take some

> leftover prednisone, as I took this in the past when I had bad

> symptoms. My doctor didn't understand why it worked but I know it

> did. I'm really desparate for some relief. I called the neuro

> yesterday who ordered the test and he prescribed antivert which isn't

> doing anything but making me more tired. Any ideas?

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

---Hi Hanna, I am sorry you are having such a hard time. Your

symptoms sound to familiar. I am dx with POTS too. I strongly

recommend you drink lots of fluid and increase your salt intake, you

really need to keep yourself hydrated. Propel is a good electrolyte

drink, which really helps me. They have found that people with POTS

have low volume and we need lots of extra fluids esp during a

crisis. I also recommend that when you are laying down to have your

head propped up on something so you are not always flat. Try and sit

up as much as possible. Laying a lot makes your symptoms worse. For

POTS

I presently take a beta-bloker..nadolol ( this has kept my heartrate

down and has kept me from hyperventilating which I did a lot of)

Many POTS patients benifit from a low dose SSRI. I take effexor

which many can not tolerate. It really helps raise my blood pressure

and helps with fatique. Plus I have some depression issues.

I take florinif which helps the body retain more sodium and keeps

the fluid levels up. I am very dizzy and symtomatic without it.

I have also increased my salt and fluid intake. I wear compression

hose if I need to stand a lot.

It took a while and a lot of trial and error to find the right

combination of meds for me. I finally feel like my symptoms are

under control most of the time.

THe tilt test is a stressor to your body which really affects mito

symptoms. I hope you are feeling better soon. I know how awful those

symptoms can feel. Hang in there.

Dawn

In , " hanna5918 " wrote:

> Has anyone here had a tilt table test? I had the test Tuesday and

> since then I feel like every symptom I've ever had is back. I am

> extremely weak and fatigued, my heart races when I move, I have

> trembling, chills, my skin is itching and tingling all over,

nausea

> and retching, eye pain, and the list goes on. I didn't feel well

> before the test but nothing like this. I'm tempted to take some

> leftover prednisone, as I took this in the past when I had bad

> symptoms. My doctor didn't understand why it worked but I know it

> did. I'm really desparate for some relief. I called the neuro

> yesterday who ordered the test and he prescribed antivert which

isn't

> doing anything but making me more tired. Any ideas?